Jump to content

knitty kitty

Moderators
 View Profile  See their activity

  • Posts

    3,653

  • Joined

  • Last visited

  • Days Won

    177

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @MBjim! The damage done to the small intestine can vary. Are you familiar with Marsh scores? Marsh scores describe the severity of damage in the small intestine. Not eating sufficient gluten daily for at least two weeks prior to an endoscopy can affect how badly damaged and inflamed the small intestine becomes. ...
  2. knitty kitty
    @ac5858, After being on the gluten free diet for such a long time, it is more likely you have developed nutritional deficiencies. These are all symptoms of Thiamine deficiency. I know from experience, thiamine deficiency will cause Depression, extreme fatigue, headaches and brain fog, and canker sores and acne. Nutritional deficiencies...
  3. knitty kitty
    Nutritional deficiencies can play a part in pelvic pain...Since Celiac Disease can lead to nutritional deficiencies even on a gluten free diet, trial supplementation may be helpful. "Nutritional deficiencies and metabolic disorders are not uncommon among women with MFPP but may be overlooked by medical practitioners as an underlying contributor to CPP...
  4. knitty kitty
    @bechari, Do you wash your rice before you cook it? Washing rice can wash away the the vitamins in enriched white rice. Your symptoms sound like mine when I was deficient in vitamins, especially thiamine deficiency. Vitamin D deficiency can cause vertigo, but in thiamine deficiency, vertigo, peripheral neuropathy, and muscle spasms...
  5. knitty kitty
    Neuropathy is a classic symptom of Thiamine deficiency. Doctors do not recognize Thiamine Deficiency Diseases yet. I had improvement in my peripheral neuropathy, in my feet and hands within an hour of taking Thiamine Hydrochloride. @trents, Naltrexone can be used to help with pain... The use of low-dose naltrexone (LDN) as a novel anti...
  6. knitty kitty
    @Bettyvan, Swelling of the extremities (hands, feet, ankles, calves) is a symptom of Thiamin deficiency. Thiamin deficiency is a serious medical condition. Thiamin deficiency can worsen quickly and cause heart problems, ataxia, and brain dysfunction. It can result in death. You should talk to your doctor about supplementing with thiamin. Your...
  7. knitty kitty
    Don't give up on getting a diagnosis of Celiac Disease. Wait until you get your endoscopy (continue with gluten in your diet) before you start looking for other causes. Metformin can cause vitamin deficiencies in Thiamine B 1 and Folate B9 by blocking their absorption. Without Folate B9, Cobalamine B12 can't be used effectively. These deficiencies...
  8. knitty kitty
    Yes, anti-DGP testing is valid in adults. Antibodies against deamidated gliadin peptides identify adult coeliac disease patients negative for antibodies against endomysium and tissue transglutaminase https://pubmed.ncbi.nlm.nih.gov/20456302/ "In this study of patients...IgA/IgG-DGP identified adult coeliac disease patients negative for antibodies...
  9. knitty kitty
    B12 deficiency can cause anhidrosis (not sweating) and hypohidrosis (very little sweating). B12 deficiency is common in both Celiac Disease and scleroderma as well as Sjogren's syndrome. Celiac Disease can cause problems with absorption of Vitamin B12 Cobalamine. B12 needs to bind with an intrinsic factor produced in the stomach in order to be...
  10. knitty kitty
    UBOs can be found in Thiamine deficiency. Cerebellar spots... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2854955/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9945014/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9402833/ And... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4728174/ Thiamine deficiency...
  11. knitty kitty
    @Vicrob, Thiamine deficiency can occur outside of alcoholism. Thiamine deficiency can occur in malabsorption syndromes like Celiac Disease. Elevated liver enzymes are frequently seen in alcoholism because alcohol interferes with the absorption of Thiamine (Vitamin B1) resulting in Thiamine deficiency. Alcoholism damages the small intestine where...
  12. knitty kitty
    @Dtoc and all, Just a little side note... That "daily skin dust" on your calves sounds similar to the dust I had on my feet and calves when I had deficiency in Vitamin B 3, Niacin. It starts with"dust', but it can get worse. Rough, scale-y and bumpy skin appears on hands, feet, and neck (called boots and gloves of pellagra). A reddening...
  13. knitty kitty
    @lyndze, Celiac Disease destroys the lining of the small intestine preventing the absorption of essential vitamins and minerals. You should be checked for vitamin and mineral deficiencies as part of proper follow up care for Celiac people. Anemia and Diabetes (both types) can affect blood tests for Celiac Disease, resulting in false negatives...
  14. knitty kitty
    You could try taking Benfotiamine, a form of Vitamin B 1 that has been shown to promote healing in the intestines.
  15. knitty kitty
    @Michael Swanson, Some Celiacs react to the protein casein in dairy products as though it were gluten because the casein molecules resemble gluten molecules. Some Celiacs develop lactose intolerance because they can't produce the enzyme lactase that digests the milk sugar lactose. In either case, intestinal bacteria ferment the undigested...
  16. knitty kitty
    Yes, in some cases, people with CSF leaks have the fluid leak out the nose or down the throat. Others have tears in the membrane that is supposed to keep the fluid in. Thiamine contributes to the integrity of the membrane and in regulation of CSF pressure.
  17. knitty kitty
    @Joan Bundtzen, Have you done any investigation into Thiamine deficiency as a cause of cerebral spinal fluid leakage? https://pubmed.ncbi.nlm.nih.gov/6182272/
  18. knitty kitty
    There are studies showing high dose Thiamine supplementation can have a detrimental effect on cancer cells, working as well as some anticancer drugs. B Vitamins and Their Role in Immune Regulation and Cancer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7693142/
  19. knitty kitty
    @plumbago, I'm thrilled to hear you have tried thiamine! Unfortunately, yes, thiamine testing is a bit inaccurate because thiamine gets turned into enzymes that are used within cells and tissues which is not measurable by blood testing. Even a thiamine rich meal preceding testing can skew blood tests for thiamine. The Erythrocyte Transketalase...
  20. knitty kitty
    @plumbago, Hope you're feeling better. I had an eye problem several years ago. My left eye had swelling and hemorrhaging. My ophthalmologist sent me to see specialists at the Helen Keller Institute for the Blind Hospital. They couldn't figure out what was going on. I was prescribed a dozen eye drops to take around the clock and some medications...
  21. knitty kitty
    https://www.niams.nih.gov/health-topics/autoimmune-diseases
  22. knitty kitty
    Doctors tell you to continue eating gluten until they can see the damage for themselves in the endoscopy and biopsies. They must all be from Missouri. Some doctors will make a diagnosis of Celiac if the blood tests for antibodies are extremely high and if Celiac genes are present.
  23. knitty kitty
    @LP023, It's not the amount of gluten eaten. It's the fact that any gluten will trigger the autoimmune response. The autoimmune response to gluten is what causes the damage. The antibodies against gluten also attack the cells and tissues of the body. The body is damaged in tissues and organs by anti-gluten antibodies. It can take months...
  24. knitty kitty
    @Rachel Docksteader, Have your kids been tested for Celiac Disease? Even if they don't have symptoms yet, they could have inherited Celiac genes from you. Cutting the kids' exposure to gluten now may help prevent them from developing Celiac later. There are many members who have a strict gluten free home, but allow gluten eating outside of the...
  25. knitty kitty
    While a person is eating gluten regularly, the body reaches a state of constant inflammation. If this person stops eating gluten, the inflammation calms down. The immune system produces fewer and fewer antibodies against gluten and the body. However, if this person starts eating gluten again as during a gluten challenge, the inflammation increases...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.