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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Lindquist, You might feel better taking a B Complex vitamin supplement. Since you are low in other B vitamins, you are probably low in all eight. A B Complex will give you all eight. Additional supplementation with Thiamine Vitamin B 1 can help with the constipation and water retention in your legs and stomach. Thiamine B1 will help your thyroid...
  2. knitty kitty
    Doctors are trained to prescribe pharmaceuticals. They get very little training in vitamins and minerals that we need. Doctors think a magic pill will fix everything. You're not deficient in pharmaceuticals. You're deficient in the essential vitamins and minerals our bodies need to heal and repair itself. Do take a B Complex supplement so you will...
  3. knitty kitty
    @itarachiu, Eat some carrots cooked until soft. The lemonade is acidic. You are probably feeling it go through your digestive tract, not your spleen or kidney. If you eat something like carrots that will counteract all the pain of the acidic lemonade.
  4. knitty kitty
    @Lindquist, Blood type tests are different from tests for antibodies against gluten made in Celiac Disease. Blood tests don't tell if you have Celiac Disease. To test for antibodies against gluten, you have to eat gluten for two months in order to have enough antibodies to test. If you can't eat gluten that long, you can get a DNA test...
  5. knitty kitty
    Thiamine helps the mast cells to stop releasing histamine. Vitamins B12 and Vitamin C break down histamine. Did you talk to your doctor about supplementing with vitamins and minerals? The B vitamins and Vitamin C are water soluble and nontoxic.
  6. knitty kitty
    Have you read about histamine intolerance? Histamine is released as part of the immune response. Sometimes the mast cells that make and release histamine get out of control. Thiamine helps the mast cells calm down and quit releasing histamine. But you also want to eat a diet that's low in histamine, too. Some foods contain more histamine than...
  7. knitty kitty
    DGP positive tests for Celiac in children and young adults are common because of their immature immune systems. A positive is a positive. Your doctor may want to do an endoscopy. Some doctors will make a diagnosis on blood tests alone if they are 10 X normal. Keep us posted on your progress. Best wishes.
  8. knitty kitty
    I experienced "sailors asthma" and edema before diagnosis. Sailors asthma happens when you don't have enough thiamine Vitamin B1. Retaining water, especially edema (swelling) of the ankles and legs is another symptom of thiamine insufficiency. If you've been eating a high carbohydrate diet, you may not be getting enough thiamine. The...
  9. knitty kitty
    @musicalmummy We're praying for you all.
  10. knitty kitty
    @itarachiu I like magnesium glycinate because it's easily absorbed. Magnesium citrate is also good. Be careful because too much can cause diarrhea. If that does happen, don't take as much. Thiamine Hydrochloride is good to start with. Benfotiamine helps the digestive tract heal. Here's a link to the Autoimmune Protocol Diet. https...
  11. knitty kitty
    @Sherma, First, be thankful that you have family to spend Thanksgiving with. Second, get a video link to your family. Your kids can help you set it up. Then you can watch from home. You could do sewing projects while you video chat. This could be a way to keep hubby busy while you do other things. Use it for visiting more than once a year....
  12. knitty kitty
    @itarachiu, I'm so glad you found B12 helps! Does taking just the thiamine help when you have anxiety? I'd be interested to know. Do take a B Complex and the thiamine. Just taking one B vitamin can cause an imbalance in the others. B12 needs Folate B9 (methylfolate will help more than folic acid). Folate needs B6 pyridoxine which needs...
  13. knitty kitty
    I would recommend getting 100 mg capsules. Start with one capsule with each meal. You can take more or less. Everybody's different so you have to see what works for you. Also take a B Complex (just one with breakfast) and a magnesium supplement because thiamine (benfotiamine) needs all the B vitamins and magnesium to work. You may want to...
  14. knitty kitty
    Apparently Type Two Refractory Celiac Disease has a genetic component. Have you tried taking Benfotiamine? Benfotiamine is a form of thiamine that reduces inflammation. High doses have been shown to be beneficial.
  15. knitty kitty
    No, it's nontoxic. There's a lipid (fat) attached to the end of the thiamine part. The lipid tail is what gets the whole molecule through the cell membrane (made of lipids), but that tail is snapped off easily and reused as a lipid. There is a "thiamine paradox" where a few weeks into taking thiamine, a person might feel worse. Dr. Derrick Lonsdale...
  16. knitty kitty
    @cnazrael89, Oh, thank you! I had a rough and bumpy journey to my Celiac diagnosis. If I can help others on their journey....it makes mine worthwhile. We're all going the same direction, so let's go together!
  17. knitty kitty
    I would suggest taking B12 before your breakfast meal. The B Complex at the beginning of two meals and magnesium at the end of meals. Iron is absorbed better if taken with Vitamin C. Since some of the B vitamins are involved in energy production, I prefer to take them earlier in the day so they don't keep me awake. LOL Be consistent and take...
  18. knitty kitty
    @cnazrael89, Share this article with your son's pediatrician. The correct way Celiac Disease diagnosis passes through DGP IgG levels in children https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9275736/
  19. knitty kitty
    @musicalmummy, You said "I can’t eat much without feeling gassy". That's symptomatic of Celiac and you've adjusted your diet not to include "much" already. Your body won't make antibodies to gluten if you are not eating gluten. The blood tests for Celiac measure these antibodies. Not consuming enough gluten will skew the test to a false n...
  20. knitty kitty
    @itarachiu, That brand of vitamins uses thiamine mononitrate, a form of thiamine that is not as well used by the body. Other forms like Benfotiamine or Thiamax (thiamine tetrahydrofurfuryl disulfide) are more useful. These forms can get into cells easily. If you can find one of those forms or even thiamine hydrochloride, those would be better...
  21. knitty kitty
    Welcome to the forum, @musicalmummy! Gastroscopy and biopsy is the "Gold Standard" of diagnosis. "...mildly atrophic mucosa was found in the duodenal bulb..." may well be Celiac Disease. The duodenal bulb is often the area where damage is found. That's where your doctor can see changes with the naked eye. Much of the damage in early Celiac...
  22. knitty kitty
    @itarachiu, You can set a good example for him. He will notice how your health improves as you heal while eating a healthy diet. Look into the Autoimmune Protocol Diet (AIP diet). https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet I followed this diet and it has really helped. You'll feel better soon. Choose low...
  23. knitty kitty
    Best@Kristin441, Welcome to the forum! I experienced the no appetite, fatigue, anxiety and nausea. These are all symptoms of thiamine (Vitamin B1) deficiency. Blood tests for Thiamine are not always accurate. Gluten containing flours are required to be enriched with vitamins and minerals, however gluten free facsimile foods are not required...
  24. knitty kitty
    @Slayxbella, Welcome to the forum! Here's a link to Gliadin X. https://www.gliadinx.com/?ref=gFe06sbd2VHY It's available on Amazon.
  25. knitty kitty
    @ACEed, Welcome to the forum! My heart goes out to you. I do believe you. I've had the same struggle. And I know how painful not being believed can be. {{{Hugs}}} We believe you here. What helped me was learning that gluten products are enriched with the vitamins and minerals that my body was craving. Celiacs have trouble absorbing...
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