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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Hmmm, misspelled...auto-speller....should be... Attack Thanks
  2. knitty kitty
    But what are you eating? Have you tried keeping a food journal? Does your doctor aware you have diarrhea that badly? I'm concerned. I had accidental bowel movements when I had Gastrointestinal Beriberi, a form of thiamine deficiency that doctors overlook. If it is thiamine deficiency, taking Thiamine should help stop it.
  3. knitty kitty
    @trents, That may be true for the initial trigger for Celiac Disease, but in people already with Celiac Disease, any exposure can stimulate the immune cells already trained to attack gluten to go into high gear again. This is called histamine intolerance and mast cell activation syndrome.
  4. knitty kitty
    @Outlaw, Welcome to the forum, Kelly! Lactase is the enzyme that "digests" lactose, the sugar in milk. Lactase is made by cells in the tips of the villi in the small intestine. As the antibodies against gluten also attack our own cells, these lactase producing cells get damaged and can no longer produce lactase resulting in lactose intolerance...
  5. knitty kitty
    @Wheatwacked, I took high doses Thiamine Hydrochloride like you are doing, but I found with the fat soluble forms, benfotiamine and allithiamine, I was able to take those forms at lower dosages and continued to have health benefits and improvements. Also be sure you take Magnesium, as it provides the spark for Thiamine in any form to work properly...
  6. knitty kitty
    Yes, if you've been eating gluten for a year, you should be producing antibodies by now. The gluten challenge calls for consuming at least two slices of bread or equivalent for six to eight weeks before testing. Be sure to ask for the complete Celiac panel of tests: tissue transglutaminase (tTG) immunoglobulin A (IgA) and tTG immunoglobulin...
  7. knitty kitty
    @soundslikedelicious, Apology accepted. I've met only proselytizing vegetarians who were of the "I can't eat anything with a face" persuasion, so was completely baffled why someone so adverse to eating meat would consume a food that mimicked meat. Thanks to your explanation and that of @dovahgolzseyol, I understand a bit more. Thanks...
  8. knitty kitty
    Jen, I believe you about the modified food starch sources, read about them, scared of how starch is treated with chemicals and irradiated to make some kinds of mfs. I'm concerned there may be something else going on that needs medical attention. Are all your accidental glutennings this severe? You said you've been in pain for days...
  9. knitty kitty
    @soundslikedelicious, Thank you for explaining that to me. I'm not rude nor judgemental. I was having difficulty understanding. Now you've clarified reasons why you want pretend meat on your plate, I'll go back to eating my pretend toast.
  10. knitty kitty
    Non-responsive celiac disease may be due to histamine intolerance. Histamine is released by mast cells as part of the immune response. Histamine promotes inflammation and stimulates the immune system to make a bigger immune response, including making more antibodies. DAO is an enzyme that breaks down histamine. Because of malabsorption of micronutrients...
  11. knitty kitty
    High dose Thiamine has been life-changing for me. I started with Thiamine Hydrochloride, 300 mg, with each meal. I tried Benfotiamine and Allithiamine. These are fat soluble forms of Thiamine that can get into cells. Benfotiamine has proven helpful with gastrointestinal symptoms, while Allithiamine helps with neurological (brain function) symptoms...
  12. knitty kitty
    Yes. The blood work your doctor did was probably testing the amount of antibodies your body produces against gluten. Your body only produces these antibodies when gluten is present in the diet. When you remove gluten from your diet, your body gradually stops producing antibodies against gluten. These antibodies attack not only gluten, but...
  13. knitty kitty
    @Maja57 and @asaT, I found the Autoimmune Protocol Diet very helpful in reducing inflammation and improving health. The Autoimmune Protocol Diet has been studied and shown to work. "Efficacy of the Autoimmune Protocol Diet for Inflammatory Bowel Disease" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/ Dr. Sara Ballantyne,...
  14. knitty kitty
    Definitely related to gluten. Some of us lucky ones make tissue transglutaminase antibodies (Ttg 6) that affect the brain in addition to the usual antibodies (Ttg 2) when exposed to gluten. There are tests to measure the Ttg 6 antibodies. My gluten ataxia has improved dramatically with High Dose Thiamine treatment with Allithiamine, a form of thiamine...
  15. knitty kitty
    @DK1984, You may want to focus on getting more protein in your diet. Fats are important, but proteins are needed to build and repair our bodies. I came across an old study on nutrition which stated when there's a protein deficiency the fat pads around the eyes disappear as does the fat pads in the cheeks. Anesthesia has been known to deplete...
  16. knitty kitty
    @Katie27212, Welcome to the forum! The excess vaginal discharge and itching can be due to deficiencies in several B Complex vitamins. Deficiencies in Riboflavin and Pyridoxine (Vitamin B2 and B6) can cause itching and skin problems in the genital area. Deficiency in Thiamine Vitamin B1 can cause excessive vaginal discharge. I experienced...
  17. knitty kitty
    I have problems with nitrates and nitrites. Celiac people seem to produce more nitrites as part of the inflammation process anyway, so adding dietary nitrates and nitrites add to the load our bodies must cope with. I usually get severe migraines after nitrite and nitrate exposure. Vitamin C is helpful. Sodium ascorbate in the list of ingredients...
  18. knitty kitty
    Unfortunately, doctors are not given much training in vitamins. Doctors are usually trained in pharmaceutical company funded medical learning institutions. Doctors are trained to prescribe pharmaceuticals. Blood tests for vitamin deficiencies are not accurate because vitamins are used inside cells. There can be vitamin deficiency symptoms before deficiency...
  19. knitty kitty
    Hello, From the description of your stools, you may be having fat malabsorption which is common in Celiac Disease. In early Thiamine insufficiency, the body starts conserving thiamine by burning our own muscles for energy. Your weight or body mass index may have changed. Is your added middle fat or edema (water retention)? The gauntness...
  20. knitty kitty
    @AutumnSky, Yes, I get that vibration, too! What a sad experience! I'm so sorry you had to endure such ignorance. Things I try to quiet the vibration: Have a warm cup of Oolong tea. It has L-Theanine, a natural amino acid, that really helps with relaxation. Theanine supplements are available. Take 1000mg of Tryptophan (a form...
  21. knitty kitty
    @Wheatwacked, What form of B1 Thiamine are you taking?
  22. knitty kitty
    I had some bumps along the way, and severe nutritional deficiencies that needed attention and time to correct. It wasn't a straight progression. Some days it felt like "two steps forward and one step back", but I kept at it. Everyone is different. The longer I was on the AIP diet, the more my body "relaxed". The inflammation left, the anxiety left...
  23. knitty kitty
    Prunes help slow things down a bit. Or dates... Hope you feel better.
  24. knitty kitty
    Niacin, Vitamin B 3, the kind that causes flushing, helps immensely with DH. Some acne is associated with DH and improves with Niacin. Reducing intake of iodine helps DH. Iodine is in Dairy, Seafood, especially crustaceans, nori, kelp, and iodized salt. @Hb333, BV is associated with Thiamine deficiency. Production of antibodies can be affected...
  25. knitty kitty
    Histamine Intolerance goes with Mast Cell Activation Syndrome. In Celiac Disease, mast cells multiply dramatically. Mast cells release histamine (degranulation). Mast cells that don't have enough thiamine B1 degranulate easily and frequently. Vitamin B12 and Vitamin C are needed to break down histamine. I found choosing low histamine foods...
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