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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    I experienced "sailors asthma" and edema before diagnosis. Sailors asthma happens when you don't have enough thiamine Vitamin B1. Retaining water, especially edema (swelling) of the ankles and legs is another symptom of thiamine insufficiency. If you've been eating a high carbohydrate diet, you may not be getting enough thiamine. The...
  2. knitty kitty
    @musicalmummy We're praying for you all.
  3. knitty kitty
    @itarachiu I like magnesium glycinate because it's easily absorbed. Magnesium citrate is also good. Be careful because too much can cause diarrhea. If that does happen, don't take as much. Thiamine Hydrochloride is good to start with. Benfotiamine helps the digestive tract heal. Here's a link to the Autoimmune Protocol Diet. https...
  4. knitty kitty
    @Sherma, First, be thankful that you have family to spend Thanksgiving with. Second, get a video link to your family. Your kids can help you set it up. Then you can watch from home. You could do sewing projects while you video chat. This could be a way to keep hubby busy while you do other things. Use it for visiting more than once a year....
  5. knitty kitty
    @itarachiu, I'm so glad you found B12 helps! Does taking just the thiamine help when you have anxiety? I'd be interested to know. Do take a B Complex and the thiamine. Just taking one B vitamin can cause an imbalance in the others. B12 needs Folate B9 (methylfolate will help more than folic acid). Folate needs B6 pyridoxine which needs...
  6. knitty kitty
    I would recommend getting 100 mg capsules. Start with one capsule with each meal. You can take more or less. Everybody's different so you have to see what works for you. Also take a B Complex (just one with breakfast) and a magnesium supplement because thiamine (benfotiamine) needs all the B vitamins and magnesium to work. You may want to...
  7. knitty kitty
    Apparently Type Two Refractory Celiac Disease has a genetic component. Have you tried taking Benfotiamine? Benfotiamine is a form of thiamine that reduces inflammation. High doses have been shown to be beneficial.
  8. knitty kitty
    No, it's nontoxic. There's a lipid (fat) attached to the end of the thiamine part. The lipid tail is what gets the whole molecule through the cell membrane (made of lipids), but that tail is snapped off easily and reused as a lipid. There is a "thiamine paradox" where a few weeks into taking thiamine, a person might feel worse. Dr. Derrick Lonsdale...
  9. knitty kitty
    @cnazrael89, Oh, thank you! I had a rough and bumpy journey to my Celiac diagnosis. If I can help others on their journey....it makes mine worthwhile. We're all going the same direction, so let's go together!
  10. knitty kitty
    I would suggest taking B12 before your breakfast meal. The B Complex at the beginning of two meals and magnesium at the end of meals. Iron is absorbed better if taken with Vitamin C. Since some of the B vitamins are involved in energy production, I prefer to take them earlier in the day so they don't keep me awake. LOL Be consistent and take...
  11. knitty kitty
    @cnazrael89, Share this article with your son's pediatrician. The correct way Celiac Disease diagnosis passes through DGP IgG levels in children https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9275736/
  12. knitty kitty
    @musicalmummy, You said "I can’t eat much without feeling gassy". That's symptomatic of Celiac and you've adjusted your diet not to include "much" already. Your body won't make antibodies to gluten if you are not eating gluten. The blood tests for Celiac measure these antibodies. Not consuming enough gluten will skew the test to a false n...
  13. knitty kitty
    @itarachiu, That brand of vitamins uses thiamine mononitrate, a form of thiamine that is not as well used by the body. Other forms like Benfotiamine or Thiamax (thiamine tetrahydrofurfuryl disulfide) are more useful. These forms can get into cells easily. If you can find one of those forms or even thiamine hydrochloride, those would be better...
  14. knitty kitty
    Welcome to the forum, @musicalmummy! Gastroscopy and biopsy is the "Gold Standard" of diagnosis. "...mildly atrophic mucosa was found in the duodenal bulb..." may well be Celiac Disease. The duodenal bulb is often the area where damage is found. That's where your doctor can see changes with the naked eye. Much of the damage in early Celiac...
  15. knitty kitty
    @itarachiu, You can set a good example for him. He will notice how your health improves as you heal while eating a healthy diet. Look into the Autoimmune Protocol Diet (AIP diet). https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet I followed this diet and it has really helped. You'll feel better soon. Choose low...
  16. knitty kitty
    Best@Kristin441, Welcome to the forum! I experienced the no appetite, fatigue, anxiety and nausea. These are all symptoms of thiamine (Vitamin B1) deficiency. Blood tests for Thiamine are not always accurate. Gluten containing flours are required to be enriched with vitamins and minerals, however gluten free facsimile foods are not required...
  17. knitty kitty
    @Slayxbella, Welcome to the forum! Here's a link to Gliadin X. https://www.gliadinx.com/?ref=gFe06sbd2VHY It's available on Amazon.
  18. knitty kitty
    @ACEed, Welcome to the forum! My heart goes out to you. I do believe you. I've had the same struggle. And I know how painful not being believed can be. {{{Hugs}}} We believe you here. What helped me was learning that gluten products are enriched with the vitamins and minerals that my body was craving. Celiacs have trouble absorbing...
  19. knitty kitty
    @itarachiu, I understand. My parents were stuck in their ways, too. I was prescribed Metformin for my diabetes. Metformin causes thiamine and folate deficiencies because Metformin blocks the transporters that carry thiamine and folate into the cells. Do encourage your father talk to his doctor about supplementing with a B Complex and Thiamine...
  20. knitty kitty
    Welcome to the forum, @DC98! You may be deficient in all eight B vitamins. Celiac Disease damages the small intestine where most of the vitamins are absorbed. The rash under your nose is indicative of Riboflavin B2 deficiency. I had this myself. Thiamine B1 in the form Benfotiamine will help you feel less fatigued and help with your...
  21. knitty kitty
    It has soybeans. Do you have a problem with soybeans? Some Celiacs have to avoid them. It also has thiamine mononitrate which is not a bioavailable form of thiamine. Get additional thiamine as Benfotiamine. It helps heal the digestive tract.
  22. knitty kitty
    @Chance, Welcome to the forum! Have you been checked for vitamin and mineral deficiencies? Since Celiac Disease affects the absorption of micronutrients (vitamins and minerals), correcting deficiencies is a priority. Discuss with your doctor or nutritionist the benefits of the Autoimmune Protocol Diet. The AIP diet has been shown...
  23. knitty kitty
    Well, this was decades ago, before the new nutritional and ingredient information labeling requirements.
  24. knitty kitty
    Covid can deplete your Thiamine stores and cause a deficiency. Be well: A potential role for vitamin B in COVID-19 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/ And... https://www.hormonesmatter.com/recovering-from-long-covid-with-thiamine/ Another symptom of low Thiamine is constipation, IBS, leaky gut... https...
  25. knitty kitty
    Yes, your body can crave foods that contain the micronutrients your body is low in. This can be a problem with some Celiacs because their bodies can crave gluten containing products. Remember that wheat and other gluten containing grains are Required by law to be enriched with vitamins and minerals lost in processing. Bread manufacturers have...
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