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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    This sounds like Refeeding Syndrome. Refeeding Syndrome occurs when malnourished people take in too many carbohydrates which causes an electrolyte imbalance which can cause a sudden drop in blood pressure (fainting), feeling extremely cold and not being able to warm up, convulsions, seizures, loss of consciousness and deep, dark depression. I...
  2. knitty kitty
    Get checked for vitamin and mineral deficiencies as part of proper follow up care for Celiac Disease. Tachycardia, peripheral neuropathy, muscle cramps, migraines, raised liver enzymes, ataxia, gait changes, vestibular (balance) problems are all symptoms of Thiamine deficiency. Vestibular signs of thiamine deficiency during the early...
  3. knitty kitty
    Diabetics are usually deficient in Thiamine Vitamin B1. Thiamine is needed to turn carbohydrates, fats and proteins into energy for our bodies. Increasing the amount of carbohydrates in your diet can cause a dip in your thiamine level. When our thiamine level gets low, our bodies switch from aerobic energy production to anaerobic energy production, ketosis...
  4. knitty kitty
    Allithiamine is found in garlic. It is soluble in fat, so that means it can get inside cells easily. It can cross the blood brain barrier by itself and is especially helpful for neurological symptoms like brain fog, anxiety, ADHD, memory loss, Parkinson's, Alzheimer's, Wernicke's, Aspergers, schizophrenia and depression. Benfotiamine is also fat...
  5. knitty kitty
    P.S. you may want to lay off the iron and try copper instead. Thiamine and copper make enzymes that allow cells to hold onto iron.
  6. knitty kitty
    When I was recovering, I took Thiamine Hydrochloride 300 mg every three hours. That's about as much as the body can absorb in that amount of time. I had to have Benfotiamine and Allithiamine sent to me, but added those in as soon as they arrived. I took Benfotiamine 250 mg with meals because this form helps with gastrointestinal healing and diabetes. ...
  7. knitty kitty
    High dose Thiamine is required to correct Thiamine deficiency otherwise the Thiamine will have trouble getting into cells. Thiamine Transporters turn off during deficiency. High dose Thiamine can flood the system and get into the cells better. Dr. Lonsdale explains here... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
  8. knitty kitty
    Welcome to the forum! Get checked for THIAMINE Vitamin B1 deficiency! Flagyl is a medication that keeps thiamine from working. Symptoms of Thiamine deficiency include rapid, unintentional weight loss, fatigue (beriberi means "I can't, I can't), anxiety and insomnia. Here's some helpful articles... https://www.hormonesmatter.com...
  9. knitty kitty
    Hi! Welcome back! Sorry to hear you've had such a bumpy journey. I'm wondering if your hypoglycemia could be caused by Insulin Autoimmune Syndrome. In Celiac Disease, we can begin to make antibodies against ourselves. Autoimmune thyroid disease resulting in Hashimotos thyroiditis is one example. In Diabetes, auto-antibodies destroy the pancreatic...
  10. knitty kitty
    Not meaning to hijack this conversation, but.... There's a link between cannabis use and Thiamine deficiency. Thiamine deficiency is frequently misdiagnosed. Cannabis blocks thiamine from being used properly. The symptoms of prodromal cannabis use are congruent with the symptoms of Thiamine deficiency. Here's an informative article about...
  11. knitty kitty
    Egads! I don't understand why your doctors don't think it's Celiac from the biopsies! There are other genes for Celiac Disease than just those two. This article offers information on genetic variations for Celiac Disease based on geographic location.... "Celiac disease: Prevalence, diagnosis, pathogenesis and treatment" https://www...
  12. knitty kitty
    @Jasmina, Welcome to the forum! Sorry you seem to be having problems with gluten free breads. Your symptoms seem to indicate an allergic like reaction. Tapioca starch is made from cassava. Some people have a latex food allergy. They react to banana, avocado and cassava among other foods because of the similarity to latex (rubber)....
  13. knitty kitty
    Condolences, @cristiana. Wonderful video! I always wondered what she carried in her purse. She will be greatly missed.
  14. knitty kitty
    @MathewAzreal22, Welcome to the forum. This is an older article and comments. You may not get a response from the poster. Thiamine deficiency can cause lack of weight gain. In thiamine deficiency state, the body burns fat for fuel, hence no weight gain. Anxiety is an early symptom of thiamine insufficiency, as is depression. Vitamin D...
  15. knitty kitty
    @Bev in Milw, Found these for you.... Autism Case Report: Cause and Treatment of “High Opioid Tone” Autism https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8180893/ And... μ opioid receptor, social behaviour and autism spectrum disorder: reward matters https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6016638/ And... Gluten-Free...
  16. knitty kitty
    @Grant Laws, Welcome to the forum! I was prescribed Sertraline HCl under the name Zoloft. I became very ill. Please remember that the gastrointestinal tract has a limited vocabulary. Every tummy ache isn't necessarily caused by gluten. Through research, I found that gluten free Celiac patients on PPIs, NSAIDs and SSRIs (like Zoloft...
  17. knitty kitty
    This article about DAO is really interesting. I found the part about how certain vitamin and mineral deficiencies can affect DAO production in the body. https://mthfrsupport.com.au/2016/09/dao-deficiency-and-histamine-the-unlikely-connection/
  18. knitty kitty
    Thought this article might be relevant... Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ Do supplement your vitamins and minerals. The gluten free diet can be lacking in certain vitamins, especially the B Vitamins.
  19. knitty kitty
    @Beck123, Yes, if I eat dairy even without gluten, I will get DH outbreaks. This article might be helpful.... Mucosal reactivity to cow's milk protein in coeliac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/ I also get eczema from dairy. So I'm a flaky, bumpy, itchy mess if I consume dairy.
  20. knitty kitty
    Thought this article would be of interest here... Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/
  21. knitty kitty
    Here's a good article for you to start your research... Mucosal reactivity to cow's milk protein in coeliac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/ I stick to a Paleo diet, the Autoimmune Protocol Diet (AIP) which promotes healing. Efficacy of the Autoimmune Protocol Diet for Inflammatory Bowel Disease https...
  22. knitty kitty
    It's rare to have a deficiency in just one single vitamin. Deficiencies usually occur in all of them. The eight B vitamins all work together. Folate B9 needs B12 Cobalamine but also B6 Pyridoxine and Riboflavin B2 which needs enzymes made from Niacin B3 and Thiamine B1. Folic acid is the synthetic form of Folate. It's better to take Folate...
  23. knitty kitty
    Welcome to the forum, @Beck123! Longtime DH sufferer here. I had to remove everything dairy from my diet. Not only am I lactose intolerant (I can't digest the sugar in milk, lactose), I am sensitive to the protein in milk, casein. Not only does milk cause continuing inflammation and damage like gluten, dairy is high in iodine. I also found...
  24. knitty kitty
    @Jensamms, I've found it helpful to keep a food mood poo'd journal to help identify problematic foods. I also followed the Autoimmune Protocol Diet which helps intestines heal. It's mostly grassy fed meat, veggies and some fruits. By cutting out carbohydrates and starchy vegetables, the intestinal bacteria will change from those gas producing...
  25. knitty kitty
    Welcome to the forum, @LizG! We recommend keeping a "food-mood-poo'd" journal. Recording what you eat and the digestive outcomes can be extremely helpful in pinpointing problematic foods. The Autoimmune Protocol Diet (AIP diet) which has been scientifically proven to promote healing is highly recommended. This diet includes fresh grass fed meat...
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