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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @adhdgi, welcome to the forum! Thiamine deficiency can cause anorexia and also bulimia. I've struggled with both of these due to Thiamine Deficiency. You said you had anxiety and depression, heartburn, constant fatigue, irritability and joint pain. These are all symptoms Thiamine deficiency. And the surreal feeling... "i don’t even k...
  2. knitty kitty
    Welcome, @Chickennugget88! Being checked for nutritional deficiencies is part of proper follow up care for Celiac people. Our bodies need B12 Cobalamine, B2 Riboflavin, B6 Pyridoxine, and B9 Folate to make red blood cells. Iron is absorbed better if taken with Vitamin C. Thiamine B1 and Niacin B3 are also needed. So a good B Complex supplement...
  3. knitty kitty
    That's great you've decided to try Thiamine! Let us know your results! I also take Allithiamine and Benfotiamine, both are fat soluble forms of Thiamine that help immensely because they can get into cells easily. You may prefer one of them to the thiamine hydrochloride. The WHO uses thiamine hydrochloride because it is cheaper and readily available...
  4. knitty kitty
    @ellen101, Welcome to the forum! I have had problems with my voice, stuttering, voice cracking and not being able to get words out when I was deficient in Thiamine Vitamin B1. Thiamine deficiency can happen in Celiac Disease because of malabsorption, but thiamine deficiency can occur without Celiac Disease if a person eats a diet lacking...
  5. knitty kitty
    We need gluten free bakeries!
  6. knitty kitty
    @itarachiu, and dear readers, These are symptoms I have experienced while deficient in B vitamins, especially Thiamine. There's eight B vitamins. The eight B vitamins work together, so if we're deficient in one, we're probably low in the others as well. So it's best to supplement all eight. Thiamine can become deficient quickest because...
  7. knitty kitty
    Since you have had positive antibody tests and symptoms, it may be wise to have further genetic testing done to look for other Celiac variants. Are you including dairy in your diet? Any medications?
  8. knitty kitty
    Benfotiamine helps with intestinal healing along with tryptophan and Theanine. Benfotiamine helps with insulin production and sensitivity in Diabetes. The pancreas uses lots of Thiamine. Most Diabetics are deficient in Thiamine. (One of those chicken/egg questions is ... which comes first, thiamine deficiency or diabetes?) The common pharmaceutical...
  9. knitty kitty
    As I understand, some genetic tests search only for the most common Celiac genes HLA DQ 2 and 8. There are other Celiac genes, though less common. A different genetic testing may uncover other genes for Celiac Disease. It may be a good idea to get a copy of the test results.
  10. knitty kitty
    Do you have the results?
  11. knitty kitty
    @Ginger38, I had to make a mental adjustment with Celiac Disease. I had to learn how to eat to live, not live to eat. Hippocrates: “Let food be thy medicine and medicine be thy food." The AIP diet is a bit sparse without carbohydrates from grains and starchy vegetables, but removing those gives the digestive system a rest from dealing w...
  12. knitty kitty
    Have you tried the Autoimmune Protocol Diet? It gave my tummy a break and I started feeling better quickly. https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet And... https://www.thepaleomom.com/start-here/the-autoimmune-protocol/
  13. knitty kitty
    @Bill1991, I had nerve pain, peripheral neuropathy. What works for me is Benfotiamine, B Complex, B12 Cobalamine, B6 Pyridoxine, Tryptophan, and Vitamin C. I was surprised to find Vitamin C has a link to CRPS. "Other rare clinical signs of scurvy include skeletal muscle degeneration, complex regional pain syndrome (CRPS), cardiac hypertrophy...
  14. knitty kitty
    I would suggest the complete Celiac Disease panel. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Anemia and Diabetes can cause false negatives, so can having Dermatitis Herpetiformis. I'm a big fan of genetic testing.
  15. knitty kitty
    Vitamin D by itself does not prevent fractures, but when taken with Calcium supplements, Vitamin D and Calcium have been shown to prevent fractures. "Ca/D reduces the risk of hip and any fracture in analyses combining institutionalized and community-dwelling individuals." Vitamin D Supplementation and Fractures in Adults: A Systematic Umbrella Review...
  16. knitty kitty
    Did you have any other antibody tests done like the DPG?
  17. knitty kitty
    Yes. We need stomach acid (and bile from the gallbladder) to break fats apart.
  18. knitty kitty
    Were you eating gluten regularly before the test?
  19. knitty kitty
    Niacinamide is NOT the synthetic form of Niacin. "...not niacin in form of niacinamide (mide's are synthetic or modified forms of vitamins and that's now what you want)." There's different forms of Niacin that do different things. Niacin as nicotinic acid will cause flushing. BUT Niacinamide does not cause flushing. Our bodies can turn Niacin...
  20. knitty kitty
    High dose Thiamine is not a mainstream practice yet.
  21. knitty kitty
    Katkits60, This AIP diet is like a vacation for your digestive system. Yes, the AIP diet is very different from how we're used to eating, but it is very worthwhile. If you sprained your ankle or hurt your arm, you wouldn't go out and jog or lift weights. No, you would go easy, get some rest, take time off your regular scheduled activities....
  22. knitty kitty
    Have you tried the Autoimmune Protocol diet? It was developed by a doctor with Celiac for herself and her children, Dr. Sarah Ballantyne. https://www.thepaleomom.com/start-here/the-autoimmune-protocol/ Following the AIP diet, my inflammation levels decreased and I felt much improved. This article might be of interest to you. This study found...
  23. knitty kitty
    And one more about a person who drank glyphosate and his medical support included Thiamine. Glyphosate Poisoning with Acute Pulmonary Edema https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4413421/
  24. knitty kitty
    And this one... Glyphosate, pathways to modern diseases II: Celiac sprue and gluten intolerance https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3945755/
  25. knitty kitty
    @nimzabo, Thought you would be interested in articles on EMF and Thiamine... https://www.objectivenutrients.com/insights/thiamine-emf-sensitivity/ And... https://www.hormonesmatter.com/emf-hypersensitivity-and-thiamine/
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