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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Blue-Sky, Please read this article on thiamine... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ I read your links. Then we can discuss why high dose Thiamine is beneficial. Thanks
  2. knitty kitty
    @Rogol72, Pantothetic acid works with Thiamine B1. Google "adrenal glands and thiamine". Thiamine is needed to down regulate the adrenal response.
  3. knitty kitty
    Gut pain is associated with thiamine deficiency. Fighting an infection like Covid can decrease your thiamine level to the point of deficiency. Be well: A potential role for vitamin B in COVID-19 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/#sec0045title The World Health Organization recommends giving thiamine hydrochloride 500 mg...
  4. knitty kitty
    I can't tolerate "smoked" stuff. Apparently smoke flavorings have lots of Sulfites and I have a Hypersensitivity Type Four to Sulfites. I cannot tolerate any sulfite containing drugs. (And there's lots of them.) Some Celiacs react to the protein avenin in oats the same way as to gluten.
  5. knitty kitty
    @Ginger38, I was ill for a long time, too. Doctors don't recognize Celiac Disease very well. They are stuck on seeing the damage in the small intestine to confirm active Celiac Disease. Unfortunately, not all the reasons are known why, but the damage varies, so some people are not diagnosed. I disagree with having to do a gluten challenge....
  6. knitty kitty
    @Katerific, Yes, inflammation from Celiac will cause elevated leukocytes in the stool. The smoked seasoning and the luncheon meat probably contain a food additive called "meat glue" or microbial transglutaminase. Microbial transglutaminase is produced from microbes in a lab. Meat glue is used as a flavor and texture enhancer. Meat glue...
  7. knitty kitty
    Sounds like that test may only be looking for the two most common Celiac genes. @ravenwoodglasshas an interesting set of Celiac genes. If you have the genes for Celiac and have health improvements on the gluten free diet, you can assume you have Celiac Disease. Simply having the genes doesn't mean the genes have been activated. A triggering...
  8. knitty kitty
    Sea salt has iodine in it naturally.
  9. knitty kitty
    @MrsTurner, It's not all in your head! When doctors don't know they blame the patient. You know your body better than anyone. Do keep looking for answers! There's many reasons why some people don't test positive on blood tests like the iga ttg. Ask for a genetic test. Celiac Disease is genetic, your genes won't change if you're gluten free...
  10. knitty kitty
    Vitamin D does its best work when it gets around 80 nmol/l, at which level Vitamin D acts like a hormone and can regulate the immune system. I started feeling much better when I got my Vitamin D level up. I was extremely deficient in Vitamin D and other vitamins and minerals as well. It's very difficult to correct a deficiency by diet alone. Extended...
  11. knitty kitty
    Yes, but it's not like vitiligo. Facial skin is finer and naturally won't get as dark as arms or legs. Another possibility would be low blood pressure as in POTS (postural orthostatic tachycardia syndrome) but she's not mentioned those symptoms. It's a mystery!
  12. knitty kitty
    @sunflowers, Welcome to the forum! Anemia can affect the production of white blood cells (and thus antibody production) as well as the production of red blood cells. We've had several members who reported as positive on only the DPG. Don't worry, we'll still let you in the Celiac club. Keep us posted on your endoscopy results!
  13. knitty kitty
    She's asking about the paleness of her face.
  14. knitty kitty
    Have you been checked for vitamin and mineral deficiencies? Low Vitamin D and/or deficiencies in the eight B vitamins can cause similar symptoms! Celiac Disease causes malabsorption of nutrients. Correction of essential vitamins and minerals will help alleviate those symptoms!
  15. knitty kitty
    https://www.frontiersin.org/articles/10.3389/fnut.2019.00048/full Previously, we examined B cell immunometabolism in the intestine. In the intestine, naïve immunoglobulin (Ig) M+ B cells differentiate into IgA+ B cells in Peyer's patches (PPs) by class switching, and then IgA+ B cells differentiate into IgA-producing plasma cells in the intestinal lamina ...
  16. knitty kitty
    I found some interesting articles that describe Copper deficiency as having a role in pale skin. Copper is needed to make melanin (the pigment in skin, hair and eyes)! Pale skin and other symptoms could be a sign of insufficient copper. See if your symptoms match... https://www.healthline.com/nutrition/copper-deficiency-symptoms ...
  17. knitty kitty
    Along those lines that @ravenwoodglass mentioned, getting a baseline endoscopy now without the gluten challenge and another in the future for comparison might be an option.
  18. knitty kitty
    @bostonceliacer, Welcome to the forum! We'd love to help! Have you been checked for vitamin and mineral deficiencies as proper follow up care? Damage to the small intestine from Celiac can make absorption of nutrients difficult. Deficiencies in some of the eight essential B vitamins can cause fatigue. The eight B vitamins are called essential...
  19. knitty kitty
    HLA is a type of genetic test that will identify Celiac genes as well. Doctors are clueless about how badly we react to gluten. "Lick a cracker" ???? !!!!!! Find another doctor who will do the genetic test. (Or threaten your current doctor you will change doctors if he doesn't do a genetic test. A written request to the doctor and the overseeing...
  20. knitty kitty
    @DutchCeliac, Welcome to the forum! Have you had your Vitamin D level checked? I found an interesting article about Vitamin D and pigmentation... A Dermatologist's Perspective on Vitamin D https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3498088/ And... https://ods.od.nih.gov/factsheets/VitaminD-HealthProfessional/ Getting...
  21. knitty kitty
    @Myki, Have you looked into Small Intestinal Bacterial Overgrowth (SIBO)? Besides dairy and PPI's, SIBO can cause continuing symptoms. I adopted the AutoImmune Protocol Diet (AIP diet), and after a few days my symptoms began to improve. I also lost weight which was water weight from bloated intestines. Do get checked for vitamin and...
  22. knitty kitty
    Welcome to the forum, @Nickkk! Yes, yes, and yes. Genetic testing can determine whether you carry any of the genes that code for Celiac Disease. Your genes don't change, so no gluten challenge is needed. The most common genes for Celiac are DQ 2 and DQ 8, although there are other less common ones out there. Swollen lymph nodes in the neck...
  23. knitty kitty
    The high iron levels could be connected to hemachromatosis. Perhaps discuss this possibility with your doctor. Here's an article... Hope this helps.
  24. knitty kitty
    @Meghan255, Welcome to the forum! Could you please tell us what you include in your diet? Do you include dairy? Do you eat Gluten free facsimile foods (cookies, bread, processed packaged foods)? Do you eat nightshades (tomatoes, potatoes, eggplant, and peppers)? Are you vegetarian? Thanks!
  25. knitty kitty
    Get a genetic test. You can't have Celiac Disease without having the genes. Genes don't change and you don't have to eat gluten. The most common Celiac genes are DQ 2 and DQ 8. There are others that occur less frequently. I've often wondered what happened to that part of the Hippocratic oath that says "first do no harm."
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