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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Conniem, Welcome to the forum! The rash may flare again if gluten is consumed. Iodine (as in salt, dairy, and shellfish) can cause DH flares. Yes, the DH can fade and flare for weeks after an exposure to gluten. Genetic testing for Celiac genes might be more conclusive. People who have DH can test negative on Celiac blood tests...
  2. knitty kitty
    @Gillianannpansan, Welcome to the forum! Our bodies make antibodies against gluten (and casein the protein in dairy) as long as we are consuming it. Where we stop consuming gluten, our bodies stop making the antibodies. So having a blood test for gluten antibodies after you stopped eating gluten will more than likely be negative. You...
  3. knitty kitty
    @Tracy414, Welcome! I have DH and I've had serionegative test results. I found this article in my researching and thought you would be interested. It's from 2019. Dermatitis Herpetiformis: Novel Perspectives https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6579917/ "...recent evidence suggested that DH is changing. Firstly, some studies...
  4. knitty kitty
    @Brook-lyn, I decided to use unscented laundry detergent, no dryer sheets or fabric softeners that leave scents on clothes, no perfumed body washes or hand soap. I used to get so sick to my stomach (and a migraine) walking by the perfume and cosmetics counters in stores. Some people's homes I've visited have been intolerable because the air ...
  5. knitty kitty
    @Brook-lyn, Welcome to the forum! Do any of these homes visited use automatic scent dispensers? I have gotten sick from plug in air fresheners, heavy perfumes, some deodorants, scented candles, etc. It has to do with a hypersensitivity to Sulfites which are used in perfumes and scents, and some medications. Some Celiacs develop this hypersensitivity...
  6. knitty kitty
    Not eating enough gluten prior to antibody testing will not give accurate results. Hyperplasia is found in Celiac Disease. Autoimmune gastritis is a common finding in Celiac Disease.
  7. knitty kitty
    Just wanted to add for future reference that anemia, like pernicious anemia, iron deficiency anemia, B12 deficiency anemia, affects not only red blood cell production but also affects white blood cell production. White blood cells include antibodies like antibodies against gluten. So having anemia can result in false negatives on blood tests for Celiac...
  8. knitty kitty
    It's recommended that gluten be included in the diet for a minimum of two weeks before endoscopy, and eight weeks before blood antibody tests for Celiac Disease. Yes, a few weeks off of gluten can cause false negatives on testing.
  9. knitty kitty
    This is a site for Celiac Disease and related problems. We are trying to educate others about how Celiac can overlap and affect other autoimmune diseases and overall health. If you want to close your mind to the facts, that's your choice and you get to deal with the consequences. Name calling is not necessary.
  10. knitty kitty
    Blood tests can be false negatives if not enough gluten was eaten for a long enough duration prior to testing. Damage typically seen in Celiac Disease can easily be missed due to the size of the small intestine (the size of a tennis court if laid out flat) and the patchiness of the damage. Some damage is out of the reach of endoscope. Some damage can...
  11. knitty kitty
    I have had my gallbladder removed. I have autoimmune gastritis. I have Type Two Diabetes. I have hashimotos thyroiditis. I lost sixty pounds in six weeks due to my GI issues. I'm not harassing. I'm educating. Show us the results of your tests for Celiac Disease testing.
  12. knitty kitty
    I had genetic testing for Celiac Disease because I got so ill consuming gluten. Many doctors are capable of doing genetic testing. There's genetic test kits done through the mail. I do have brain health issues. I was so deficient in certain vitamins and minerals I developed ataxia and Wernicke's Encephalopathy. Yes, my vitamin deficiency...
  13. knitty kitty
    I was saying in my post that you're in denial about having Celiac Disease.
  14. knitty kitty
    @EileenB1022, If you were tested three times this year and were not consuming enough gluten to produce antibodies, the tests would have shown False Negatives.
  15. knitty kitty
    @EileenB1022, How do you know you don't have Celiac Disease? Have you had genetic testing done? Have you had antibody tests done? Help me understand why you are certain you don't have Celiac Disease.
  16. knitty kitty
    Mucosal reactivity to cow's milk protein in coeliac disease https://pubmed.ncbi.nlm.nih.gov/17302893/
  17. knitty kitty
    @EileenB1022, Welcome to the forum! We're very familiar with Celiac Disease and the various health conditions that can occur with it. It takes ten years or longer for some of us to be properly diagnosed because Celiac Disease can cause so many effects on different organs and body systems. We Celiacs have wasted precious years of our lives...
  18. knitty kitty
    @Termite, Welcome to the forum! If you can't tolerate the eight weeks of gluten challenge for testing of antibodies against gluten in the blood as @trents mentioned, testing for any genes for Celiac Disease and positive response on a gluten free diet may be taken as a diagnosis for Celiac Disease by some doctors. Keep us posted on your progress...
  19. knitty kitty
    @itarachiu, Welcome to the forum! I have a problem with nightshades, a group of plants that contains glycoalkaloids that can cause inflammation and promote autoimmune responses. Whether I eat them or smoke tobacco, nightshades cause symptoms like you describe. I've had to cut out all nightshades from my diet and quit smoking. Like @Wheatwacked said...
  20. knitty kitty
    I take Thiamine at the beginning of meals and magnesium after the meal. And I do take Magnesium at bedtime with tryptophan (a form of Niacin Vitamin B3 that is required for those feel good neurotransmitters serotonin and dopamine, and helps heal the intestines) and Pyridoxine Vitamin B6 which works with Thiamine to heal the nerves and helps with relaxation...
  21. knitty kitty
    Have you tried a magnesium citrate supplement? Magnesium helps muscles relax. And magnesium is a catalyst for Thiamine. As you may have noted in the studies I posted, higher than RDA amounts of Thiamine are needed to help in an insufficiency or deficiency of Thiamine (500 mg or more). Thiamine Hydrochloride, Allithiamine and Benfotiamine are beneficial...
  22. knitty kitty
    @Chris91, It would be a good idea to get proper Celiac testing done, like @trents suggests. You could be doing serious damage to your long term health. Some scientific studies are suggesting that NCGS symptoms may be preliminary to Celiac Disease in some people. Genetic testing or antibody testing after gluten challenge would be beneficial. Malabsorption...
  23. knitty kitty
    Remember that processed gluten free facsimile foods are not required to be enriched with vitamins and minerals like their gluten containing counterparts. We need the Eight Essential B Vitamins to turn our carbs and fats into energy and enzymes so our bodies work properly. Consider supplementing with a gluten free B Complex and magnesium citrate. ...
  24. knitty kitty
    @Rogol72, So happy to hear the Thiamine HCL is working for you! 🐱 Isn't is amazing how quickly the benefits appear! Benfotiamine will have amazing results, too! Life Extension, Dr.'s Best and Country Life are brands that are available here in the U.S.. I hope you can find one of those. Be sure to check the amount of Benfotiamine in...
  25. knitty kitty
    Arsenic binds with Thiamine Vitamin B1. Arsenic binds with Thiamine making that thiamine unavailable for the body to use. Arsenic can bind so much Thiamine that Arsenic can precipitate a Thiamine deficiency. If you eat rice, make sure you take thiamine, whether from food sources like meat and liver or from supplements like thiamine hydrochloride...
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