knitty kitty
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Hi, @Vincent pemberton, I experienced High Calorie Malnutrition, a thiamine deficiency disorder. The more carbohydrates we eat, we need an increased amount of Thiamine to process the carbs into energy. For every 1000 calories, we need 1 mg more minimum. Increased intake of carbohydrates for the gluten challenge definitely would require more...
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Vit B-12 and other serum levels
knitty kitty replied to ShelleyWeiser's topic in Related Issues & Disorders
I interpreted that Shelley was researching Pernicious Anemia and Intrinsic Factor. I didn't see where she had been diagnosed with it. If she had been diagnosed with Pernicious Anemia, she would have been given B12 shots. The liver can store B12 for several years. So B12 deficiency symptoms may not appear right away. B12 when released from the liver... -
The second best test for Thiamine is the Erythrocyte Transketolase test. I don't know if it's still available. The labs were closed a couple years ago. The best test is to take it for a few weeks and look for improvement. So after you get your blood drawn, take some Thiamine just to see for yourself if you notice improvement. Let us know what you...
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@Vincent pemberton, How are you doing? I'm concerned because the symptoms you describe could be due to a very serious vitamin deficiency, Thiamine Vitamin B1 deficiency. Thiamine deficiency can present with edema of the arms and legs and neuropathy (pain and weakness in legs). I had a similar upbringing with my family not believing...
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Thiamine and diabetes: back to the future? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8505293/ The first reports of a link between thiamine and diabetes date back to the 1940s. Some years later, a role for thiamine deficiency in diabetic neuropathy became evident, and some pilot studies evaluated the putative effects of thiamine supplementation...
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Brown rice isn't fortified. Grocery store lights will deplete Thiamine in brown rice just like sunlight. And if you're eating a lot of it while low in Thiamine....High Calorie Malnutrition, and Celiac malabsorption... I would try supplementing. "Hi" to your mum! I'm diabetic, too. Most diabetics are deficient in Thiamine because our kidneys...
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@Baz, Oh, yes, indeed, the symptom improvement for me was within an hour. I was extremely low, so my improvement was probably more dramatic than most. I had Wernicke's Encephalopathy but do not drink. (Alcohol makes me feel like I drank ground glass.) If you want to be checked for vitamin deficiencies, do it before taking supplements. Once...
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Vit B-12 and other serum levels
knitty kitty replied to ShelleyWeiser's topic in Related Issues & Disorders
Riboflavin Vitamin B 2 helps with migraines. I had migraines so bad while deficient. Thiamine B 1 helps with brain fog. Hope you feel better! Keep us posted on your progress! -
Hey, @Baz, My yawning and anxiety were due to Thiamine deficiency. I was yawning all the time and having more frequent anxiety which escalated to panic attacks. The Thiamine deficiency progressed to Gastrointestinal Beriberi, which has the same symptoms as you mentioned, gas bloating and diarrhea. Alcohol consumption can cause Thiamine...
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Scott Adams' Story of His Diagnosis of Celiac Disease
knitty kitty commented on Scott Adams's article in Diagnosis, Testing & Treatment
I wouldn't recommend lite breads. They're packed with fillers, often excessive fiber and resistant (hard to digest) starches, that will not make your challenge pleasant. Excessive fiber makes for frequent bathroom trips. -
Vit B-12 and other serum levels
knitty kitty replied to ShelleyWeiser's topic in Related Issues & Disorders
Welcome to the forum, @ShelleyWeiser, No, serum B12 levels cannot be used as an indicator of absorption. Your Marsh scores are a better indicator of poor absorption. Have you had an endoscopy to check for healing in the intestines recently? Your high Anti-Gluten antibodies could be a reaction to Casein, the protein in dairy that causes the... -
Scott Adams' Story of His Diagnosis of Celiac Disease
knitty kitty commented on Scott Adams's article in Diagnosis, Testing & Treatment
If you're not eating sufficient gluten, before the antibody tests, they can be negative. You need to be eating 4 - 6 slices of bread per day for at least two weeks prior. The more the better to provoke a reaction. 3 grams of gluten a day is enough to cause symptoms but is not enough to cause the antibody level to get high enough to show up in the bloodstream... -
@ShaynaL530, If you're not eating sufficient gluten, before the antibody tests, they can be negative. You need to be eating 4 - 6 slices of bread per day for at least two weeks prior. 3 grams of gluten a day is enough to cause symptoms but not enough to cause the antibody level to get high enough to show up in the bloodstream. You have to be eating...
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Scott Adams' Story of His Diagnosis of Celiac Disease
knitty kitty commented on Scott Adams's article in Diagnosis, Testing & Treatment
@kerey knapp, Be sure you continue eating a sufficient amount of gluten before the endoscopy next month (4-6 slices of bread or equivalent a day). If you go gluten free now, your blood antibodies will disappear and your intestines won't show as much damage from Celiac Disease. Make sure the doctor takes several biopsies because the damage can... -
@Aine, The common factor is the HLA genes that all these autoimmune diseases share. It's possible you had Celiac Disease which caused the anemia. Skin manifestations of Celiac Disease can take various forms, dermatitis herpetiformis, eczema, psoriatic, and more. Hashimoto's thyroiditis can be precipitated by antigluten antibodies attacking...
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@GardeningForHealth, Have you tried cutting out of your diet all processed gluten free facsimile foods to see if your symptoms improve? I found following a low histamine Paleo diet (the Autoimmune Protocol Diet) extremely helpful in lowering histamine levels, lowering inflammation, and calming mast cells. Supplementing with essential vitamins...
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Deficiency in Thiamine Vitamin B1 will show up on MRIs as white spots on the brain in certain areas including the cerebellum. It's called Nonalcoholic Wernicke's Encephalopathy. Thiamine is on of eight essential B vitamins. To recover from deficient thiamine, high doses are required quickly so that the brain damage will not be permanent. Yes, non...
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It has to do with Mast Cell Activation Syndrome. Mast cells become activated when the immune or autoimmune response is triggered, as in Celiac Disease or a cold. If stimulated for long enough, frequently enough, mast cells develop "itchy trigger fingers" and release infection fighting histamine at the least provocation. High levels of histamine cause...
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Cashews can cause diarrhea... https://www.livestrong.com/article/494134-effect-of-cashews-on-digestion/
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@KierstenL, Your symptoms sound similar to mine when I started gluten free. Celiac Disease causes malabsorption. You're not absorbing sufficient nutrients, vitamins and minerals. Vitamin B1, thiamin, runs out first because it cannot be stored for longer than three weeks, and we need so much of it, especially when we're sick, emotionally...
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@Jacobx823, You may be having a reaction to the various nuts in Larabars like I did. Almonds are very hard to digest, as are most other nuts. Celiac Disease can lead to other food sensitivities. Lowering your intake of high histamine foods like nuts can help lower inflammatory responses. I get dates and have never been glutened by them...
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@suzy q, Welcome to the forum! I have had pain from crushed vertebrae, but I found that a combination of Thiamine (in the form called Benfotiamine, Vitamin B 1), Pyridoxine (Vitamin B 6), and Cobalamine (Vitamin B12) have analgesic effects. Doctors are not given much nutritional education, so they miss the importance of correcting malnutrition...
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@Jimmy2014, I looked up the ingredients in the iron formulation your son is taking. It contains carrageenan, derived from seaweed. I have had a problem with carrageenan in iron supplements and processed gluten free foods to enhance texture. Due to the high iodine content, carrageenan causes Dermatitis Herpetiformis outbreaks. Dermatitis Herpetiformis...
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Scott Adams' Story of His Diagnosis of Celiac Disease
knitty kitty commented on Scott Adams's article in Diagnosis, Testing & Treatment
@Judith Drexler, Pesto Bismol contains aspirin. Aspirin is an NSAID. NSAIDs cause continuing inflammation and villi damage. I was given the same advice. Pesto Bismol overtime just tore my digestive system up more. I found taking Tryptophan supplements much better. Tryptophan helps calm and repair the digestive tract. Benfotiamine promotes intestinal... -
Low libido without gluten
knitty kitty replied to Spherical Bird's topic in Related Issues & Disorders
The Autoimmune reaction to gluten includes the release of histamine by mast cells. High histamine level symptoms include brain fog, anxiety and depression. Panax ginseng lowers histamine by preventing mast cells from releasing histamine. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3659609/ Histamine can be found in foods, too. You might...
