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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    There's different reasons why one may be seronegative. Some Seronegative Celiacs may be genetically encoded to be IgA deficient. But, they may still make IgG antibodies, hence both IgA and IgG antibodies are tested for in the full Celiac Panel of blood tests. Instead of IgA and IgG antibodies, some Seronegative Celiacs may make other types of antibodies...
  2. knitty kitty
    @jmiller93, Some of us are seronegative and don't test positive on tTg IgA tests. Anemia, diabetes, and Thiamine deficiency can cause false negatives on Celiac panels. Have you been checked for nutritional deficiencies? Iron? Thiamine? Vitamin B12? Vitamin D? Only one Celiac markers is needed to develop the active disease. I agree a...
  3. knitty kitty
    @HWB, Have you been checked for SIBO? Small Intestinal Bacterial Overgrowth will cause constipation and chemically breath. The best way to get rid of SIBO is to go on a ketogenic/Paleo diet, like the Autoimmune Protocol Diet. It starves out the carbohydrate loving bacteria and allows good bacteria to repopulate the small intestine. The...
  4. knitty kitty
    @Louise Broughton, Some types of interferon drugs can precipitate a Thiamine deficiency, by destroying thiamine and blocking its absorption. Thiamine deficiency symptoms encompass all the symptoms you listed. Gastrointestinal Beriberi caused by Thiamine deficiency has symptoms of vomiting, bloating, abdominal pain and diarrhea. I've experienced this...
  5. knitty kitty
    Hi, @Blue Roan, I have Sjogren's Syndrome that made my salivary glands under my jaw swell. I also have dry eyes from Sjogren's. Yes, Sjogren's is yet another fun autoimmune disease that can occur in Celiac Disease. It starts in the salivary glands. Vitamin D deficiency can also make salivary glands swell. I was very deficient in Vitamin D also...
  6. knitty kitty
    Are you scratching hard enough to leave bruising -- the dark marks? But no rash? And worse with exercise? And no flaking? I had vitamin deficiencies that caused neuropathy - itching, buzzing, tingling sensations, that I would scratch until I left bruising. Many of the B vitamins, if deficient, can cause this itchy feeling without a visible...
  7. knitty kitty
    @pasqualeb, You may want to request being checked for Vitamin D, Vitamin C, and Thiamine deficiencies. We need extra Thiamine when we are active, especially in hot weather, when we're physically sick, and when we're under emotional stress. Vitamin D deficiency is very common in Celiac Disease. Malabsorption of the eight essential B vitamins...
  8. knitty kitty
    Yes, I've experienced this! I squatted down to get something off the bottom shelf in the grocery store and could not get back up! The Squat test is used as a diagnostic test for Thiamine deficiency. If you cannot rise unaided to standing position from a squat, you probably have thiamine deficiency. Malabsorption of essential nutrients...
  9. knitty kitty
    Hello, again. I found this supplement at Amazon that works astoundingly well for pain. The three B vitamins in it, Thiamine B1, Pyridoxine B6, and Cobalamine B12, when taken together relieve pain as well as Nsaids. Not only do I get joint pain (especially in my fingers and can't knit 😿), I get back pain from crushed vertebrae (osteopenia), and th...
  10. knitty kitty
    I didn't want anyone to think rinsing quinoa would get rid of lectins. Terribly sorry, read your post too fast. Rinsing rice isn't recommended because rinsing rice will dissolve the added vitamins (they look like grains of rice).
  11. knitty kitty
    Welcome to the forum, @Jean Shifrin Yes, I get achy swelling joints if exposed to gluten. The antigluten antibodies can attack the connective tissue in joints. Here's an interesting article... Isolated polyarthritis revealing celiac disease: A case report https://pubmed.ncbi.nlm.nih.gov/37434897/ And another... Celiac Disease...
  12. knitty kitty
    Lectins are broken down by cooking. Using a pressure cooker is recommended for breaking down lectins in beans. Cooking all alternative grains and rice thoroughly should help.
  13. knitty kitty
    @SoBannaz, You said your skin looks like you've been burned. Is it just red or do you have plaques and scales? Blisters? Does it get worse in the sun?
  14. knitty kitty
    @Nogluten4thisgirl, It's been my experience these symptoms are related to vitamin deficiencies caused by poor absorption due to intestinal damage and inflammation caused by Celiac Disease. They are inextricably linked. How long have you been taking B12 and Vitamin D supplements? What changes have you seen in your levels? There's eight B vitamins...
  15. knitty kitty
    Welcome to the forum, @Nogluten4thisgirl! Those symptoms are related to nutritional deficiencies. Because the intestines get damaged in Celiac Disease, they cannot absorb sufficient vitamins and minerals. NCGS doesn't damage the intestines, but it may be a precursor to celiac disease and damage hasn't started yet. There's eight essential...
  16. knitty kitty
    Welcome to the tribe, @Aussie Celiac! How are you progressing? Are your iron levels getting better?
  17. knitty kitty
    Impressive! I wish I had a green thumb! I followed a Paleo diet, the Autoimmune Protocol diet. It cuts out all grains and processed foods made with grains for a few weeks. I felt great improvement during that time. I didn't eat grains again for a few months because I kept feeling better. Gluten is a lectin, a carbohydrate storage molecule...
  18. knitty kitty
    Would you tell us what you do eat? I had a problem with high histamine foods when I first started eating gluten free. Perhaps we can help point out problematic foods. Do you keep a food journal?
  19. knitty kitty
    The use of Microbial Transglutaminase as a food additive, used in baked goods, dairy products, and processed foods since 1989, has increased rapidly. Microbial transglutaminase has been found to be an agent that triggers Celiac Disease. High fructose corn syrup was introduced in the 1970's as a cheaper alternative to sugar. High fructose corn...
  20. knitty kitty
    Yes, a nutritionist should be able to order tests for nutritional deficiencies. Test for magnesium, Vitamin D, and iron. Blood tests for the B vitamins are not accurate. The best way to test for deficiencies is to take B Complex and Benfotiamine and look for improvement. I like Life Extension, and Nature's Way. Yes, available on Amazon. Stay...
  21. knitty kitty
    Magnesium deficiency can cause constipation. Thiamine deficiency can cause constipation. Thiamine and Magnesium work together to make essential life sustaining enzymes. To resolve my ongoing symptoms, I chose to follow the Autoimmune Protocol Diet (AIP diet), which is a very strict Paleo diet. No processed foods, no dairy, no grains, no nuts...
  22. knitty kitty
    A multivitamin is not going to correct nutritional deficiencies. The eight essential B vitamins are water soluble and easily lost with digestive problems. Add a B Complex and Benfotiamine with your multivitamin. The B vitamins cannot be made in our bodies. We must get them from foods or supplements every day. The more carbohydrates...
  23. knitty kitty
    @TabithaJ, Did your Vitamin D deficiency coincidence with your period of infertility? Celiac Disease causes malabsorption of essential nutrients. It's rare to have a deficiency in just one vitamin. Do get checked for nutritional deficiencies. Do talk to your doctor about supplementing with vitamins and minerals while healing. Have...
  24. knitty kitty
    @kopiq, Gastritis, B12 deficiency, and anemia are all conditions that can occur in Celiac Disease. Loss of appetite, abdominal pain, and hair loss are symptoms of Thiamine deficiency. Gluten free carbohydrates do not contain sufficient amounts of essential vitamins and minerals. Malabsorption of vitamins and minerals is a hallmark of...
  25. knitty kitty
    @kopiq, Welcome to the forum! Be proactive. Call the GI Specialist and ask if you need to be eating gluten for the endoscopy. Ask if you can get on a cancellation list to be seen sooner. If you stop eating gluten before the endoscopy, healing will take place, not giving an accurate picture of what damage is being done in reaction to gluten. ...
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