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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    How is that being corrected? Are you taking any medications?
  2. knitty kitty
    Welcome to the forum! Have you been checked for Small Intestinal Bacterial Overgrowth? SIBO can occur with or without Celiac Disease. That white tongue might be thrush, Candida overgrowth. Do you have Diabetes? Do you eat a diet high in carbohydrates? Hope we can help you find answers.
  3. knitty kitty
    Welcome to the forum! You could get a genetic test to see if you have any genes for Celiac Disease. Some doctors will make a Celiac diagnosis if you have genetic markers for Celiac and show improvement on the gluten free diet. Do get checked for nutritional deficiencies which occur in Celiac Disease as a result of damage to the small intestine...
  4. knitty kitty
    Welcome to the forum! You have several choices.... 1. Get a new doctor... although he is correct in that having been gluten free for a month may have reduced the antibodies tested for in complete Celiac panel blood tests and results now may be ambiguous. 2. Go back on gluten for eight weeks and then do a complete Celiac panel and endoscopy...
  5. knitty kitty
    Deficiencies in Vitamin D, Vitamin C, and Thiamine can affect one's period.
  6. knitty kitty
    Not a geneticist, but looks like the HLA Variants you have tested positive for ARE capable of causing Celiac Disease. HLA-DQB1 gene https://medlineplus.gov/genetics/gene/hla-dqb1/ And... HLA-DQA1 and HLA-DQB1 in Celiac disease predisposition: practical implications of the HLA molecular typing https://www.ncbi.nlm.nih.gov...
  7. knitty kitty
    This article may be helpful... Hiding in Plain Sight https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
  8. knitty kitty
    Although not as common as DQ 2 or DQ 8 genes, there are other genes that code for Celiac, like DQ 9.
  9. knitty kitty
    I found an interesting article about functional dyspepsia and diet... Diet and functional dyspepsia: Clinical correlates and therapeutic perspectives https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7015717/ And I found some articles about how tryptophan is needed to make serotonin which helps the gastrointestinal tract function properly...
  10. knitty kitty
    Welcome back to the forum! Sorry to hear you're having diagnosis problems. Many of us have endured years of symptoms in a struggle to get a diagnosis. Since you've only been off of gluten for a month or so, doing a gluten challenge for eight weeks and another endoscopy may be the best way for you to get that diagnosis. Anemia can affect...
  11. knitty kitty
    Have you tried Oolong tea? It has little caffeine and lots of L-Theanine, an amino acid that helps healing, reduces stress and anxiety.
  12. knitty kitty
    Thiamine deficiency can manifest as constipation. SIBO can contribute to Thiamine deficiency. There's a section on gastrointestinal symptoms in thiamine deficiency in this article.... Thiamine deficiency disorders: a clinical perspective https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ And...I include this because these patients...
  13. knitty kitty
    @Skellig, Another test your doctor might agree to run, or available through the mail, is a genetic test. You may want to have your B12 and iron (ferritin) levels checked as well, especially since you've had it in the past. Sometimes anemia can affect antibody production. So can diabetes.
  14. knitty kitty
    It was probably Niacin Vitamin B3. Niacin deficiency exacerbates Dermatitis Herpetiformis and Niacin deficiency is also photosensitive causing skin lesions and permanent hyperpigmentation. Read more on this link to the article... Nicotinic acid therapy of dermatitis herpetiformis https://pubmed.ncbi.nlm.nih.gov/15412276/
  15. knitty kitty
    Thank you. It's interesting to note levels at diagnosis, severity of intestinal damage, and degree of adherence to gluten-free diet also affect autoantibody production and half life.
  16. knitty kitty
    Yes, DH can be made worse with exposure to the sun. Mine is. "Certain DH triggers, such as UVB exposure and trauma, have the ability to induce IL-8 production, and thus induce the appearance of cutaneous lesions." Dermatitis herpetiformis: pathophysiology, clinical presentation, diagnosis and treatment https://www.ncbi.nlm.nih.gov/pmc/articles...
  17. knitty kitty
    Was your thiamine level tested? Which test was used to measure it? Thiamine deficiency can still occur although blood levels are within "normal" levels because blood tests don't accurately measure the amount of thiamine in the tissues. The body will starve the tissues in order to maintain thiamine level in the blood so thiamine will get into the brain...
  18. knitty kitty
    Follow your cardiac doctor's advice. Remain gluten free. A genetic test for common genes in Celiac Disease may be a better option for you as you won't have to endure a gluten challenge for a genetic test. Atrial fibrillation, POTS, and water retention are all symptoms of thiamine deficiency. Thiamine Vitamin B1 is one of the B vitamins that...
  19. knitty kitty
    Please provide a source or reference for this statement.
  20. knitty kitty
    Welcome to the forum! No, don't rule it out yet. How long were you eating no gluten or low gluten? It takes about six to eight weeks to build up an autoimmune reaction that is measurable by those tests. It is possible that you went gluten free long enough for your immune system to calm down and the two week gluten challenge was not long...
  21. knitty kitty
    Welcome to the club! (Not diagnostic, just familiar symptomology commonly seen in Celiac Disease).
  22. knitty kitty
    A person only needs one of the Celiac genes. It doesn't have to be paired with another. Could your daughter's PMLE actually be Dermatitis Herpetiformis? Or Vitamin B3 Niacin deficiency (pellagra) which causes similar photo sensitive skin eruptions? Curious, knitty kitty
  23. knitty kitty
    Plantar fascia are the tendons that connect the toes to the heel. Plantar fasciitis is the inflammation of any of these tendons. The pain can be at the attachment point of these tendons at the heel, across the sole of the foot to the toes, on the outside of the foot, the middle or the inside of the foot. A ganglion cyst is smashed with a thick book...
  24. knitty kitty
    Deficiencies in Vitamin B12 and Vitamin C can cause those.
  25. knitty kitty
    @LH7, Welcome to the forum! You might find this thread an interesting and informative read....
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