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knitty kitty

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Everything posted by knitty kitty

  1. knitty kitty
    I'm saying you need to talk to your GI. You said he was going to check for deficiencies after your EGD. Ask him about Wet Beriberi. Read the symptoms and more about Wet Beriberi, page 7 https://www.ncbi.nlm.nih.gov/books/NBK537204/ If your symptoms are similar to the description, you make the decision of what you want to do next. I...
  2. knitty kitty
    @cnazrael89, I'm concerned about the edema. That can be a sign of thiamine insufficiency. It's so high up your leg! Since you have increased your gluten consumption, your body may be running out of thiamine. Dr. Derek Lonsdale has researched thiamine and says that the body's requirement for Thiamine increases with the amount of carbohydrates...
  3. knitty kitty
    Hello, @Jimmy123, There's been a few discussions on other threads about shared kitchens and cross contamination. NonCeliacs putting the knife they've used to smear mayo on their gluteny bread back in the jar, thus contaminating the whole jar? Has something happened to you that prompted the question? Can you elaborate?
  4. knitty kitty
    I haven't had a problem with Kroger store brand.
  5. knitty kitty
    @Hb333, I have DH, negative serology and type two diabetes. Diabetes, anemia and vitamin deficiencies can cause negative serology. DH is pressure sensitive. It often forms under bra straps, under elastic bands (underwear, waistband), where seams of clothing presses on skin. Elbows and knees can get lots of pressure, but DH can occur anywhere...
  6. knitty kitty
    Not my forte, but maybe someone more fluent in computer stuff can help. And there we go! Thanks, @trents!
  7. knitty kitty
    I can have a delay of a couple of days, but other times I can have an immediate reaction. It comes from quantity and quality (some flours contain more gluten than others), and if I've been glutened recently before (level of antibodies). Daycare may use Play Doh, paste, and finger paints, (all may contain wheat) in addition to contaminated snacks. ...
  8. knitty kitty
    Have you tried keeping a food journal of what your son eats and when the rash flares up?
  9. knitty kitty
    Yes, the antibodies originate in the small intestine, but the antibodies circulate in the blood stream. The antibodies will bind to gluten (or cells in our bodies that resemble gluten) raising an "Intruder Alert". Immune cells like mast cells react to this alarm wherever they may be located in the body, intestines or nasal passages, lungs, throat, etc....
  10. knitty kitty
    Hmmm, misspelled...auto-speller....should be... Attack Thanks
  11. knitty kitty
    But what are you eating? Have you tried keeping a food journal? Does your doctor aware you have diarrhea that badly? I'm concerned. I had accidental bowel movements when I had Gastrointestinal Beriberi, a form of thiamine deficiency that doctors overlook. If it is thiamine deficiency, taking Thiamine should help stop it.
  12. knitty kitty
    @trents, That may be true for the initial trigger for Celiac Disease, but in people already with Celiac Disease, any exposure can stimulate the immune cells already trained to attack gluten to go into high gear again. This is called histamine intolerance and mast cell activation syndrome.
  13. knitty kitty
    @Outlaw, Welcome to the forum, Kelly! Lactase is the enzyme that "digests" lactose, the sugar in milk. Lactase is made by cells in the tips of the villi in the small intestine. As the antibodies against gluten also attack our own cells, these lactase producing cells get damaged and can no longer produce lactase resulting in lactose intolerance...
  14. knitty kitty
    @Wheatwacked, I took high doses Thiamine Hydrochloride like you are doing, but I found with the fat soluble forms, benfotiamine and allithiamine, I was able to take those forms at lower dosages and continued to have health benefits and improvements. Also be sure you take Magnesium, as it provides the spark for Thiamine in any form to work properly...
  15. knitty kitty
    Yes, if you've been eating gluten for a year, you should be producing antibodies by now. The gluten challenge calls for consuming at least two slices of bread or equivalent for six to eight weeks before testing. Be sure to ask for the complete Celiac panel of tests: tissue transglutaminase (tTG) immunoglobulin A (IgA) and tTG immunoglobulin...
  16. knitty kitty
    @soundslikedelicious, Apology accepted. I've met only proselytizing vegetarians who were of the "I can't eat anything with a face" persuasion, so was completely baffled why someone so adverse to eating meat would consume a food that mimicked meat. Thanks to your explanation and that of @dovahgolzseyol, I understand a bit more. Thanks...
  17. knitty kitty
    Jen, I believe you about the modified food starch sources, read about them, scared of how starch is treated with chemicals and irradiated to make some kinds of mfs. I'm concerned there may be something else going on that needs medical attention. Are all your accidental glutennings this severe? You said you've been in pain for days...
  18. knitty kitty
    @soundslikedelicious, Thank you for explaining that to me. I'm not rude nor judgemental. I was having difficulty understanding. Now you've clarified reasons why you want pretend meat on your plate, I'll go back to eating my pretend toast.
  19. knitty kitty
    Non-responsive celiac disease may be due to histamine intolerance. Histamine is released by mast cells as part of the immune response. Histamine promotes inflammation and stimulates the immune system to make a bigger immune response, including making more antibodies. DAO is an enzyme that breaks down histamine. Because of malabsorption of micronutrients...
  20. knitty kitty
    High dose Thiamine has been life-changing for me. I started with Thiamine Hydrochloride, 300 mg, with each meal. I tried Benfotiamine and Allithiamine. These are fat soluble forms of Thiamine that can get into cells. Benfotiamine has proven helpful with gastrointestinal symptoms, while Allithiamine helps with neurological (brain function) symptoms...
  21. knitty kitty
    Yes. The blood work your doctor did was probably testing the amount of antibodies your body produces against gluten. Your body only produces these antibodies when gluten is present in the diet. When you remove gluten from your diet, your body gradually stops producing antibodies against gluten. These antibodies attack not only gluten, but...
  22. knitty kitty
    @Maja57 and @asaT, I found the Autoimmune Protocol Diet very helpful in reducing inflammation and improving health. The Autoimmune Protocol Diet has been studied and shown to work. "Efficacy of the Autoimmune Protocol Diet for Inflammatory Bowel Disease" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/ Dr. Sara Ballantyne,...
  23. knitty kitty
    Definitely related to gluten. Some of us lucky ones make tissue transglutaminase antibodies (Ttg 6) that affect the brain in addition to the usual antibodies (Ttg 2) when exposed to gluten. There are tests to measure the Ttg 6 antibodies. My gluten ataxia has improved dramatically with High Dose Thiamine treatment with Allithiamine, a form of thiamine...
  24. knitty kitty
    @DK1984, You may want to focus on getting more protein in your diet. Fats are important, but proteins are needed to build and repair our bodies. I came across an old study on nutrition which stated when there's a protein deficiency the fat pads around the eyes disappear as does the fat pads in the cheeks. Anesthesia has been known to deplete...
  25. knitty kitty
    @Katie27212, Welcome to the forum! The excess vaginal discharge and itching can be due to deficiencies in several B Complex vitamins. Deficiencies in Riboflavin and Pyridoxine (Vitamin B2 and B6) can cause itching and skin problems in the genital area. Deficiency in Thiamine Vitamin B1 can cause excessive vaginal discharge. I experienced...
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