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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Just take it and see if it helps. Remember thiamine needs magnesium to function properly, so get a magnesium citrate or magnesium glycine supplement, too. With your history of using alcohol...is your doctor aware of your previous alcohol use? "Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking...
  2. knitty kitty
    Alcoholism causes malabsorption of vitamins. Celiac Disease causes malabsorption of vitamins. Doctors are trained to think in little boxes. I had five doctors asked me if I drank. When I insisted that I didn't, they turned on their heel and walked away. If it walks like a duck and quacks like a duck.... The World Health Organization says...
  3. knitty kitty
    I would not eat it because it's made with soy. Lots of Celiacs, including me, have a problem with soy. Why does a Vegetarian want to eat imitation meat? Seems incongruous...
  4. knitty kitty
    Yes, vestibular systems seem to be affected by gluten. Insufficiencies in Vitamin D, Niacin, B12 and Thiamine HCl can all produce imbalances.
  5. knitty kitty
    A B Complex supplement containing all eight B vitamins is a good idea. Because if you're low in one B vitamin, you're probably low across the board. The eight B vitamins all work together. They are water soluble and are nontoxic. Any excess is excreted in urine. A Magnesium citrate or magnesium glycine supplement should be added, too, because thiamine...
  6. knitty kitty
    No! Not Thiamine Mononitrate! Thiamine Mononitrate is the least bioavailable form of thiamine. You want Thiamine Hydrochloride. like this for example... https://www.nowfoods.com/products/supplements/vitamin-b-1-100-mg-tablets Or Benfotiamine.... https://www.lifeextension.com/search#q=benfotiamine&t=coveo4A2453FD Or Allithiamine...
  7. knitty kitty
    @Walter123, You should be off all vitamin/mineral supplements six to eight weeks prior to checking for vitamin levels by blood tests, otherwise the test merely measures how much of that vitamin/mineral you've consumed in the previous twenty-four to forty-eight hours. Thiamine deficiency can affect the thyroid causing fluctuations in thyroid hormone...
  8. knitty kitty
    @MerryA, Welcome to the forum! So sorry to hear about your husband. I had similar symptoms, high blood pressure and was put on meds, IBS symptoms, Gerd/reflux, shortness of breath, tachycardia, anxiety and panic attacks. My symptoms resolved when I took high dose Thiamine Vitamin B1. The Gluten Free diet can be deficient in certain...
  9. knitty kitty
    Very interesting rabbit hole.... Here, see for yourself! Effect of psoralen-induced photodermatitis on tryptophan metabolism in rats https://pubmed.ncbi.nlm.nih.gov/7460074/ And... https://en.m.wikipedia.org/wiki/Kynurenine_pathway And... The Effects of a Gluten-Free Diet on Immune Markers and Kynurenic Acid Pathway Metabolites...
  10. knitty kitty
    An endoscopy WITHOUT consuming gluten for 6-8 weeks before would give the doctors a better idea of the damage already done, a baseline by which future endoscopies could be measured. But just for diagnostic purposes, with blood tests results so high, that seems unnecessary.
  11. knitty kitty
    Sores in the mouth occur in Vitamin C deficiency and B12 deficiency.
  12. knitty kitty
    This article should be of interest to you..... Treatment of polymorphous light eruption with nicotinamide: a pilot study https://pubmed.ncbi.nlm.nih.gov/2942169/ "In a pilot study, 42 patients suffering from polymorphous light eruption (PLE) were treated with oral nicotinamide, 3 g daily, for 2 weeks. Twenty-five patients remained free from...
  13. knitty kitty
    @MKC, Welcome to the forum! How long have you been including gluten in your diet after the one month off? Some doctors will diagnose Celiac Disease based on positive blood tests and positive genetic testing. Be sure your doctor includes the whole Celiac panel when testing for antibodies. https://celiac.org/about-celiac-disease/screening...
  14. knitty kitty
    @Mckenzie111, Welcome to the forum! My DH will flare if I eat foods high in iodine like dairy, crustaceans and other seafood including nori seaweed. My worst flare was after being given iodide based contrast dye for x-rays at hospital. Here's an interesting article.... Dermatitis herpetiformis resistant to dapsone due to dietary iodide...
  15. knitty kitty
    I found an interesting article about levels of certain vitamins being lower in depressed patients. Blood plasma B vitamins in depression and the therapeutic response to electroconvulsive therapy https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8474603/
  16. knitty kitty
    HCQ can cause low thiamine Vitamin B1. Drug–nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://academic.oup.com/ajcn/article/111/1/110/5637679
  17. knitty kitty
    @Anne Jory, A stressor, like receiving the Covid vaccines, causes your immune system to gear up and make anti-Covid antibodies. This immune system response uses up lots of Thiamine Vitamin B1 and can tip the balance into Thiamine deficiency. Symptoms of Thiamine deficiency include unintentional weight loss, diarrhea, and thyroid problems. Without...
  18. knitty kitty
    I agree with @trents that doctors are pretty clueless about testing protocols. It is the reason the average time for a diagnosis is ten years during which time a cascade of health issues can occur, further clouding the real source of the problem while doctors merely prescribe pharmaceuticals to alleviate the symptoms. And, no, severity of symptoms...
  19. knitty kitty
    Welcome to the forum, @cteo! One only need eat two slices of wheat bread a day. Perhaps you are eating much more than this amount and maybe you could cut back a little. You may want to consider cutting back on dairy as well. Dairy can cause additional inflammation and higher ttg levels. Eliminating dairy might lessen the severity of some of your...
  20. knitty kitty
    @T burd, welcome to the forum! Do look into thiamine deficiency. Here's an interesting article for you... Wernicke's encephalopathy mimicking neuropsychiatric symptoms in patients with systemic lupus erythematosus: a report of three cases and literature review https://pubmed.ncbi.nlm.nih.gov/27416844/
  21. knitty kitty
    Our bodies produce other antibodies than just ttg2, the antibody most suspected Celiacs are tested for. Ttg6 has recently been recognized as an antibody involved in gluten ataxia. So maybe they just have not discovered the connection yet. Did you make any changes in your diet during those times of improvement? Things I found helpful with my skin...
  22. knitty kitty
    Thought these might be enlightening... Diet and Psoriasis: Part 2. Celiac Disease and Role of a Gluten-Free Diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4104239/ And... Coeliac Disease-Associated Antibodies in Psoriasis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3756193/
  23. knitty kitty
    Thiamine deficiency can cause a voracious appetite. I went through this myself. Gluten containing food products frequently do not contain enough bioavailable thiamine to process the carbohydrates into energy. Gluten free processed food products are not required to be enriched with missing vitamins. Thiamine deficiency can cause an increase...
  24. knitty kitty
    I bought Dr. Sarah coffee! Dr. Sarah's Autoimmune Protocol Diet changed my life! Let's donate to help save her website!
  25. knitty kitty
    @nimzabo, I'm familiar with thiamine deficiency because I suffered from it and have done much research on it. Thiamine deficiency is linked to cardiac problems such as you describe. It's called "Wet Beriberi". I had heart monitoring and the doctors could not find anything wrong. Another aspect of Thiamine deficiency is called "sailors' asthma...
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