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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Oh, absolutely, get the kids tested. Mouth ulcers can be a symptom of B12 deficiency. B12 deficiency can worsen symptoms of ADHD.
  2. knitty kitty
    @Ginger38, Sorry, I misunderstood. Maybe this recent study will help you feel better. Clinical Value of Tissue Transglutaminase Antibodies in Celiac Patients over a Long Term Follow-Up https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8465060/ And maybe this one... Mean platelet volume can indicate dietary adherence and disease...
  3. knitty kitty
    @Oliverg, Tinnitus can be caused by low Vitamin B12. Vitamin B12 can also cause sweating, but that's usually night sweats in post menopausal woman. Vitamin D deficiency can cause sweating. The increased sweating could be from high blood sugar. Have you been checked for Diabetes? It might just be high blood sugar from eating gluten...
  4. knitty kitty
    By tested wonky, I ate sufficient gluten on purpose before blood testing, but still had low numbers. I had Gastrointestinal symptoms, DH, I knew were from the gluten, but not high antibodies in the blood. The level of antibodies in the blood doesn't correspond to the level of damage in the small intestine, either. Celiac seems to work...
  5. knitty kitty
    @Ginger38, I tested wonky on my blood tests because I have diabetes, but anemia can also mess up blood tests for Celiac Disease. I had a genetic test done, which shows I have two Celiac genes. You can have the genes, but some people's genes are not activated, so they don't have active Celiac, just the potential for it. However, with improvement...
  6. knitty kitty
    Anniehall, Have you ever tried removing dairy products from your diet? Dairy, especially the protein casein, can cause all sorts of problems in the skin, including acne and ketosis pillaris. Dairy Intake and Acne Vulgaris: A Systematic Review and Meta-Analysis of 78,529 Children, Adolescents, and Young Adults https://www.ncbi.nlm...
  7. knitty kitty
    @Anniehall and all, Dermatitis Herpetiformis is pressure sensitive. DH blisters will form where there is pressure on the skin. DH will form under elastic due to the pressure on the skin. Latex allergy can be life-threatening, causing anaphylaxis (not being able to breathe), or can cause a reaction like contact dermatitis if an IgE mediated...
  8. knitty kitty
    @Ashleigh, A slight positive for Celiac Disease is a positive for Celiac Disease. It's like being told you're slightly pregnant. It's going to develop into something bigger. The damage caused by Celiac Disease works on a sliding scale. While you had been gluten free, your intestines would have healed from previous damage and your immune...
  9. knitty kitty
    @Anniehall, Tea tree oil may be helpful in acne which is caused by bacterial infection because of its antimicrobial properties. However, it can be very irritating. Correlations of the components of tea tree oil with its antibacterial effects and skin irritation https://www.sciencedirect.com/science/article/pii/S1021949813000082 Overuse...
  10. knitty kitty
    Mucosal reactivity to cow's milk protein in coeliac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/ "A mucosal inflammatory response similar to that elicited by gluten was produced by CM protein in about 50% of the patients with coeliac disease. Casein, in particular, seems to be involved in this reaction."
  11. knitty kitty
    Hi! Certain types of medications can cause continuing gastrointestinal symptoms. Nsaids, PPI's and SSRIs. Which medications are you taking? Dairy corn, and soy are not included in the Autoimmune Protocol Diet (AIP diet). This diet has been shown to promote intestinal healing. I've found it to be very helpful in reducing the inflamation and bloating...
  12. knitty kitty
    @Anniehall and all, I treat my outbreaks of DH with Niacinamide. Niacinamide is a form of Niacin (Vitamin B3). Niacinamide clears the deposits of antibodies that cause the blisters. Milk is a good source of Niacin, by the way. Our bodies can convert Niacin to Niacinamide. Two Cases of Dermatitis Herpetiformis Successfully Treated...
  13. knitty kitty
    @marcel g, You may want to add a magnesium citrate supplement. Thiamine and magnesium work together. Magnesium may help your pins and needles and muscle twitches.
  14. knitty kitty
    @BlackRaven135, Welcome to the forum! You've been courageous to come look for help here. Never give up! Have you been diagnosed with Celiac Disease? Sometimes a wheat intolerance is misdiagnosed as Celiac. What brought about your decision to go gluten free? I've found going on the AIP diet, the Autoimmune Protocol diet, has been most helpful...
  15. knitty kitty
    @KKMom, I've had ER doctors elbowing each other in the ribs, rolling their eyes and saying "What a hypochondriac!" One doctor agreed to check my Vitamin D level only after he had double checked that my insurance would cover it. He was stunned by the test results, saying "Dead people have higher levels than that!" And yet he refused to test any...
  16. knitty kitty
    The World Health Organization (WHO) has a field test for Thiamine deficiency. If a person cannot rise from a squat, thiamine deficiency is probable. If one has difficulty rising from a squat, there is likely a thiamine insufficiency. Thiamine is given (300-1500 mg/day). If health improvements are seen, a diagnosis of Thiamine deficiency is made. Thiamine...
  17. knitty kitty
    Doctors routinely check only Vitamins D and B12. Because these are exceptional vitamins in that they can be stored for years in the liver, testing for only these two vitamins don't accurately reflect deficiencies in the other vitamins. Blood work doesn't reflect actual vitamin levels inside tissues and organs where vitamins are actually used. Many...
  18. knitty kitty
    Beverly, Was your fungal infection a yeast infection? If so, yeast infections can go with SIBO. It's the normally occurring bacteria and fungus in our guts or on our skin that can become overgrown with a high carbohydrate diet. They run amok because our immune system is so overwhelmed. A low or no carbohydrate diet, like the Autoimmune...
  19. knitty kitty
    @Aaron, Cauliflower and broccoli are members of the Cruciferous family of veggies. They contain high levels of Sulfites. Peas are high in Sulfites, too, although they don't belong to this class of veggies. Here's an interesting article... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4017440/ Since Sulfites are used in many processed...
  20. knitty kitty
    Beverly, Have you been checked for SIBO? Intestinal bacteria can ferment and feed on carbohydrates that aren't digested thoroughly which can result in lots of gas, bloating and pain. I've had this, and the pain was constant. Adopting a low or no carbohydrate diet like the Autoimmune Protocol Diet can help starve out these bad SIBO bacteria...
  21. knitty kitty
    @KKMom, Welcome to the forum! So sorry you feel poorly. It's good that you are seeing a dietician soon. Gluten can act as an opioid. Once gluten free, you can feel really run through the wringer. While you're healing, you may benefit from eating easy to digest foods, soups and stews. You might find dairy causes problems. Some of us...
  22. knitty kitty
    Hello! I get lower left back pain in some instances of constipation or bad gas, but also when I have a flare up of diverticulitis. A daily prune or two can help if it's constipation from the quinoa. If you think it's worse and the pain doesn't leave with a bowel movement, consult your doctor. A colonoscopy might be useful in spotting diverticulosis...
  23. knitty kitty
    @sae0693, Ptosis can be a symptom of Thiamine deficiency, as well as fatigue, depression and anxiety. I've experienced all this myself. The bloating can be caused by Small Intestinal Bacterial Overgrowth. Thiamine usually keeps these carbohydrate-loving bacteria in check, but without plenty of Thiamine, the nasty buggers spread into the small...
  24. knitty kitty
    I've learned that one is supposed to take six to eight weeks off vitamin supplements before testing for deficiencies. Most B vitamins can be stored for that long, however, in thiamine deficiency, your thiamine stores can be depleted in as little as nine days. So, no wonder @Wheatwacked starts to feel sick without them by day 10. Blood tests can reflect...
  25. knitty kitty
    Hey, Red! I found Vitamin D, magnesium, and a B Complex supplement and some extra Thiamine (Vitamin B1) in the form of Allithiamine very helpful. (Inositol needs the eight essential B vitamins in the B complex to work properly. Celiac Disease damages the part of the small intestine where the B vitamins are usually absorbed...so supplementing...
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