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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Hello, @Rogol72, What a nice topic to discuss! Yes, there's a link between mast cells, histamine intolerance and thiamine deficiency. Using your smoked fish episode as a starting point.... Smoked foods contain sodium sulfite which triggers mast cell degranulation. Sodium Sulfite-Induced Mast Cell Pyroptosis and Degranulation https...
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I’m Done and Feel Like Giving up
knitty kitty replied to Ginger38's topic in Coping with Celiac Disease
Constipation is a symptom of Thiamine Vitamin B1 deficiency. Magnesium will help because it works with thiamine, but thiamine is needed also. This article explains how thiamine deficiency effects the part of the brain that controls automatic body functions like pooping. https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency... -
Ataxia is a symptom of Thiamine Vitamin B1 deficiency. Paresthesia and neuropathy are more symptoms. Magnesium and thiamine work together, too. Thiamine works with the other seven essential B vitamins. Taking a B Complex, Vitamin D and magnesium are great ways to ensure our bodies get plenty of the building blocks needed for health.
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@victoriayatesxo, Welcome to the forum! Have you been checked for all types of anemia? Anemia can cause fatigue and somnolence. I've slept through ambulances, fire trucks, tornado sirens, etc. when I've been anemic. The medication you mentioned is prescribed to people with ADHD and people with ADHD can benefit from taking extra thiamine...
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Microbial transglutaminase is used in ice cream as a texture enhancer. It is technically an enzyme and part of the production process and as such is not required to be listed as an ingredient on the label. Microbial transglutaminase is used in baked goods, yogurt, ice cream, and processed foods, in both gluten free and nongluten-free foods.
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Poop advice!
knitty kitty replied to Mombles's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Mombles, Welcome to the forum! The poop situation may be a result of fats not being properly digested. Usually the gall bladder releases bile that contains enzymes that break down fats. When it doesn't have enough Vitamin B1 Thiamine, the gall bladder doesn't make and secrete bile properly. Remember, Celiac Disease damages the small intestine... -
Getting diagnosis
knitty kitty replied to Sirenna's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sirenna, Yes, they can all be related to Celiac Disease. Reflux oesophagitis in adult coeliac disease: beneficial effect of a gluten free diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1773586/ (Includes information on hiatal hernias) And... An Update on Eosinophilic Esophagitis: Etiological Factors, Coexisting Diseases... -
Getting diagnosis
knitty kitty replied to Sirenna's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Sirenna! Yes, sometimes getting a diagnosis can be frustrating and time consuming. Seems most doctors have outdated concepts of Celiac Disease. If you Google "African Americans with Celiac Disease nih", results show several studies from the National Institute of Health. Like this one.... Celiac Disease and the... -
Chronic diarrhea can be a symptom of vitamin deficiencies. Vitamin B12 deficiency can cause diarrhea and even brain health changes before a deficiency can be detected in a blood test. https://www.nhlbi.nih.gov/health/anemia/vitamin-b12-deficiency-anemia And... Diarrhea and novel dietary factors emerge as predictors of serum vitamin B...
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
That article says of the infant "Her mother attempted to reintroduce cow milk on the 59th and 64th day, but this was immediately followed by allergic manifestations which supported the diagnosis of cow milk allergy." Cow Milk allergy is an allergic reaction to the protein casein in milk. NOT because the milk had lactic acid, but because of the... -
Can Refeeding Cause My Skin to Becoming Leathery?
knitty kitty replied to Wendy Darling's topic in Related Issues & Disorders
Here's an article or two that might help.... DIET IN DERMATOLOGY: PRESENT PERSPECTIVES https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2965901/ And... https://www.hmpgloballearningnetwork.com/site/podiatry/when-vitamin-and-nutritional-deficiencies-cause-skin-and-nail-changes And.... Hidden Hunger: A Pellagra Case Report https... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
I'm curious about your UBO's on your MRI. Dr. H.'s article talks about ataxia and MRI changes, but doesn't mention thiamine deficiency. Thiamine deficiency can cause bright spots on MRIs. Just curious if your bright spots might be caused by thiamine deficiency as well. Vestibular signs of thiamine deficiency during the early phase of suspected... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Ehlers-Danlos syndrome? -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
The inability to put on weight is a symptom of thiamine insufficiency. Interestingly, packing on excess fat can also be a symptom of thiamine insufficiency. Turning carbohydrates into fat when thiamine is low is the body's way of saving thiamine. The body burns fat as it's energy source when it's trying to be thrifty with low thiamine levels, too. Peripheral... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Yes. Exercise uses a lot of Thiamine to provide energy for all that muscle movement. When thiamine starts to run short, the body switches from aerobic means of burning energy to an anaerobic means that leaves lactic acid behind. This lactic acid build up is known as "the burn" as in the catch phrase "feel the burn". Normally, resting after exercise allows... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@HectorConvector, The AutoImmune Protocol diet would really help in pinpointing which foods are problematic and what is upsetting your system. The AIP diet includes meat and fish and vegetables. The AIP diet excludes all grains, corn, rice, eggs, dairy, legumes, beans, nuts, seeds, some fruit, and nightshade vegetables (potatoes, tomatoes, peppers... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@HectorConvector, Are you eating fresh fish or canned fish? Canned fish as well as smoked fish and all kinds of crustaceans have high levels of histamine. You might try fresh or frozen fish. Do cut out the dairy. Did the Apple pie have High Fructose Corn Syrup? Fructose malabsorption can cause problems. Make sure you are getting... -
Supplementing with the eight essential B vitamins can help stop gluten cravings. Wheat products are required by law to be enriched with vitamins and minerals lost in processing. In other words, wheat products have vitamins added to them. Celiac Disease damages the small intestine where the B vitamins are normally absorbed. We often do not get...
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@Charlia Daisey, Does your daughter have low Vitamin D? The Relationship between Vitamin D Status and the Menstrual Cycle in Young Women: A Preliminary Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6265788/
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Interesting articles about Thiamine Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/#idm140604396876032title Shoshin Beriberi in Critically-Ill patients: case series https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4443551/ ...
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Celiac & Dry Eyes/Blurry Vision
knitty kitty replied to BNGed8's topic in Related Issues & Disorders
I thought this study was very interesting... It finds that Vitamins B1 (Thiamine) and B12 (Cobalamine) play an important part in alleviating dry eyes. Effects of Oral Vitamin B1 and Mecobalamin on Dry Eye Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7508221/ And Omega Three fats can help, too... Omega-3 Essential Fatty Acids... -
There's a connection between low B12 and autoimmune Hives... Low B12 levels in chronic idiopathic urticaria https://pubmed.ncbi.nlm.nih.gov/15736714/ You might want to consider taking a B Complex supplement
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Bloating and abdominal pain even when not eating gluten
knitty kitty replied to Stevo's topic in Related Issues & Disorders
@Stevo, You might try the Autoimmune Protocol diet, a Paleo diet scientifically shown to help healing in the digestive tract. Cruciferous vegetables are notorious for producing lots of gas because they contain high levels of sulfur which is turned into sulfur gas by intestinal bacteria. (Hence that rotten egg smell.) Try eliminating cruciferous... -
Hi, Maureen! There are eight B vitamins, of which B12 is just one. The eight essential B vitamins all work together interdependently. You may find taking a B Complex that includes all eight B vitamins would be more beneficial than just the B12 shots. "Effect of thiamin deficiency on pancreatic acinar cell function" https://pubmed.ncbi.nlm...
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Are you aware that "Align" probiotics contain sodium caseinate, a form of casein, a protein in dairy products, to which your wife may be reacting? Casein has been shown to promote continuing inflammation in the digestive tract. Here's an informative article.... https://www.healthline.com/nutrition/sodium-caseinate Perhaps stopping the...