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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Dairy will trigger the same reaction as gluten does in about fifty percent of Celiacs because Casein, the protein in dairy, resembles the protein Gluten. Dairy will provoke the same autoimmune reaction as gluten does, including damaging the villi in the intestines! Damage to the villi causes malabsorption of vitamins and minerals. Absorption of all...
  2. knitty kitty
    NCGS (Non Celiac Gluten Sensitivity) can be a precursor to Celiac Disease in people with positive Celiac genes.
  3. knitty kitty
    Welcome to the forum, @Jole, Children often produce DGP IgG antibodies when so young. If TTG IgA antibody testing was done, false negatives could've been seen. Insufficient gluten consumption prior to blood tests can also cause false negatives. Genetic testing for Celiac Disease can help with diagnosis. Since Celiac Disease is an Autoimmune...
  4. knitty kitty
    Welcome to the forum, @Smitty1953, While the positive blood tests and biopsy/endoscopy are the preferred method of diagnosis, genetic testing and improvement on a gluten-free diet are acceptable testing methods if ones health is endangered doing a gluten challenge. Since Celiac Disease is a genetic autoimmune disease, one must have specific genes...
  5. knitty kitty
    @Ginger38, Call your doctor that treats your diabetes about the Januvia and about being at your tolerance level for the gluten challenge. Encourage this doctor to get the appointment with the gastroenterologist moved up. The increase in the dosage of Januvia may be causing side effects. "JANUVIA may have other side effects, including stomach...
  6. knitty kitty
    Fungal infections may be indicative of nutritional deficiencies. Nutritional deficiencies occur in Celiac Disease due to malabsorption. The Gluten Free Diet can be low in essential vitamins and minerals. Many of the B Complex vitamins and fat soluble vitamins (Thiamine B1, Niacin B3, Vitamins C, D, and A) are important to skin integrity. Blood...
  7. knitty kitty
    I agree with @Scott Adams. It may have been something else. Sensitivity to Sulfites can develop in Celiac Disease. Many of those scents in perfumes, air freshener, laundry detergent and dryer sheets contain Sulfites. I've got Sulfite Hypersensitivity. I've reacted to perfumed things. Gluten is not the cause of everything.
  8. knitty kitty
    Yes, @itarachiu, taking antibiotics and probiotics together is rather useless. However, since Rifaximin promotes the good bacteria naturally in the intestines, boosting those with a probiotic containing good bacteria like Lactobacillis should still be beneficial. Finishing the antibiotics first, then follow up with probiotics is a good plan, too.
  9. knitty kitty
    @itarachiu, We are supposed to have beneficial bacteria in our intestines. Rifaximin has been shown in early studies to promote the growth of beneficial intestinal bacteria. You may want to consider taking a probiotic and continue taking B Complex vitamins as Rifaximin can cause vitamin deficiencies. So glad you are seeing improvement...
  10. knitty kitty
    I agree with @Wheatwacked. More nutritional factors need to be looked at in Celiac Disease. Dr. Han only mentioned checking vitamin levels once in passing. Doctors need to acknowledge the importance of nutritional factors in Celiac Disease. Not only does Vitamin D help regulate the immune system, other vitamins like Thiamine and the rest of...
  11. knitty kitty
    @GardeningForHealth, The essential vitamins need to be taken all together. There's a balance. Just taking one vitamin or mineral can throw that balance out of whack. Blood tests for serum vitamin levels are unreliable. You can have vitamin deficiency symptoms before a deficiency is detected in the bloodstream. The proper way to treat...
  12. knitty kitty
    Me, too, @RMJ! I was more curious as to what those vitamins were doing inside our bodies. We cannot live without them, but why? So I switched to microbiology and learned about how vitamins are used to make energy and enzymes that allow our bodies to function properly. While undiagnosed, Celiac Disease causes malabsorption by damaging the villi that...
  13. knitty kitty
    @GardeningForHealth, You've stumbled upon the Autoimmune Protocol Diet. The AIP diet cuts out ALL processed foods (gluten free flours, gluten free premade processed foods, grains and rice, chips, nuts, etc.). The AIP diet includes meat and vegetables and some fruits. You can use fresh veggies or frozen ones without sauces or seasonings. Do not...
  14. knitty kitty
    @NoMoreBreadForMe, Yes, I've experienced this"air hunger" and yawning. My "air hunger" was caused by nutritional deficiencies that occur in Celiac Disease due to malabsorption of nutrients. A deficiency in Thiamine Vitamin B1 causes such symptoms as "air hunger" and lower leg or arm edema, balance issues and mental changes, forgetfulness and irritability...
  15. knitty kitty
    @Scott Adams, I had surgery while my health was going downhill due to undiagnosed, untreated Celiac Disease. I know now I had vitamin deficiencies. My incision did not heal properly. The muscles underneath atrophied. The blood supply and nerves did not grow back. I am left with a cold, numb area. I have a scar worthy of a horror movie. Our...
  16. knitty kitty
    It's important to keep in mind that some spices used to flavor those chips can provoke "Celiac-like" symptoms. The proteins in corn (zein), dairy (casein), yeast, rice, and chicken meat resemble segments of gluten, and can stimulate a reaction the same as gluten does. Tortilla yeast and autolyzed yeast extract cause problems. These are used...
  17. knitty kitty
    Your 200 mg Benfotiamine sounds fine. The best thing I found for the bloating is to follow the Autoimmune Protocol Diet (AIP diet). The AIP diet has you remove carbohydrates from the diet. If you remove carbohydrates, the intestinal bacteria that feed on carbohydrates and produce gas as an end product will be starved out. More beneficial bacteria...
  18. knitty kitty
    There's some of us that are seronegative. Anemia, Diabetes or Thiamine deficiency each can cause false negatives on antibody tests. Did you have DNA testing done ?
  19. knitty kitty
    Magnesium supplements can help with the constipation. Magnesium softens the stool. Magnesium is often one of the minerals that can be deficient in people with Celiac Disease. Start with 100 mg of Benfotiamine with meals. I take a 250 mg Benfotiamine with two meals. Everyone is different and has different nutritional needs. Find what works...
  20. knitty kitty
    @KDrutz, Celiac Disease is genetic. All first degree relatives should be tested when someone is diagnosed. It is possible that you have "silent Celiac" without obvious gastrointestinal symptoms. High histamine levels (part of the autoimmune response) while consuming a gluten containing products can cause symptoms similar to allergies, so it...
  21. knitty kitty
    Hello, @Ashleysue, Have your doctors checked you for nutritional deficiencies beyond Vitamin D? Celiac Disease causes malabsorption of all the nutrients, vitamins and minerals, that our bodies need to function properly. With such severe damage as Marsh 3 C, there's no doubt you've developed nutritional deficiencies. Vitamin D can be stored in...
  22. knitty kitty
    @Ginger38, Magnesium citrate or Magnesium Glycinate chelates can help with the constipation. Benfotiamine will help with Gastroparesis, edema, reflux, brain fog and fatigue. Benfotiamine won't lower your blood glucose, but it will help your body use insulin. I take Bilberry supplements from Nature's Way to lower blood glucose levels. I take...
  23. knitty kitty
    Welcome to the forum, @Diane London, I found cutting out sugar and processed foods very helpful. I followed the Autoimmune Protocol Diet (AIP diet). Meat, veggies and fruits are naturally gluten free. Processed gluten free facsimile foods are not nutritionally sound. They are filled with excess sugars, excess fibers and fillers and are devoid of...
  24. knitty kitty
    @itarachiu, Try supplementing with Riboflavin B2 which can fight Candida. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9927497/
  25. knitty kitty
    I understand. It's a bumpy ride to diagnosis. What other diseases are diagnosed by harming oneself? What happened to "First do no harm" -- the Hippocratic oath? Genetic testing and improvement on a gluten free diet is how I was diagnosed. I couldn't finish a gluten challenge because going back to gluten after being gluten free for quite awhile...
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