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knitty kitty

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Everything posted by knitty kitty

  1. knitty kitty
    @terrymouse, I agree that you may be suffering from nutritional deficiencies already. Get tested for nutritional deficiencies before supplementing, otherwise the vitamins you're taking can mask a deficiency. Symptoms that you have are similar to what I experienced with malabsorption of Celiac Disease. I would lose my appetite; if I did eat,...
  2. knitty kitty
    @Alibu, There may not be textbook intestinal damage in the early stage of Celiac Disease!!! Keep in mind that the endoscope used can only reach about a foot past the stomach, while the small intestines are twenty-two feet long! Damage can be patchy or out of reach of the scope. Early celiac disease may not show damage at all. Don't compare...
  3. knitty kitty
    @Shining My Light, While you're trying to decide on your next steps on your journey, I suggest you have a DNA test to look for Celiac genes. Your genes don't change, so you do not have to be eating gluten for it. If you have even one Celiac gene, it's more likely to be celiac disease, than NCGS. TTg antibodies do not occur in NCGS. There are...
  4. knitty kitty
    Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac. What did your doctor recommend? What about your Vitamin D? It helps regulate the immune system.
  5. knitty kitty
    Blood tests are affected by what you've had to eat in the previous day or two and any vitamin supplements you've taken in the past month or two. If you have been taking vitamins before the time of the blood test, the vitamins supplements could mask a deficiency. So get the tests before supplementing, or allow eight to twelve weeks for the supplements to...
  6. knitty kitty
    I understand your exasperation. My doctors were totally clueless. Me? I couldn't believe it was so simple. I had studied nutrition before earning a degree in Microbiology because I was curious about what the vitamins were doing inside the body. It's about giving the body the nutrients it needs to heal. Read my blog for more of my journey... Do...
  7. knitty kitty
    It's not rocket science, like @Scott Adams says! My best advice is not to take Thiamine Mononitrate because the body doesn't absorb it well (only 30% is absorbed, less than that can be utilized). Thiamine Mononitrate is used in many multivitamin supplements because it's cheap and shelf stable, meaning it won't break down in storage on a store shelf...
  8. knitty kitty
    @ehb, welcome to the forum! Yes, figuring out the gluten free diet and recovery can be really frustrating at the start. There are things that you can change now which are more restrictive for a while, but they promote healing, and, in future, you'll be able to relax those restrictions. I found the Autoimmune Protocol Diet most helpful. It...
  9. knitty kitty
    Welcome to the Tribe! Take the Celiac diagnosis and run with it! P.S. Yes, adopting a gluten free diet is a big mental adjustment. Many go through the five stages of grief. Many are relieved to have a definitive diagnosis instead of being a walking medical mystery. The forum here can help with lots of articles and years of experience to get you...
  10. knitty kitty
    @SMK7, Have you had a genetic test to see if you carry any of the known genes required for Celiac Disease to develop? If you don't carry any known Celiac genes, then you would have Non-Celiac Gluten Sensitivity. Having the celiac disease genes doesn't mean one will definitely develop celiac disease. The genes need repeated exposure to...
  11. knitty kitty
    @maylynn, No, I took over the counter thiamine supplements, thiamine hydrochloride, Benfotiamine, and TTFD (tetrahydrofurfuryl disulfide). My doctors were not very knowledgeable about nutrition and vitamins, and they missed my symptoms being connected to vitamin deficiencies. I studied nutrition before earning a degree in Microbiology because...
  12. knitty kitty
    Welcome to the forum, @maylynn, I had similar symptoms. I was anemic, lost a lot of weight, felt full after three bites. I was deficient in vitamins and minerals, especially Thiamine B1. Thiamine converts our food to energy so our body can function properly. While deficient in thiamine, the appetite can disappear (not enough thiamine to digest...
  13. knitty kitty
    @Levi, How are you doing? Sorry I missed your posts. How's your thyroid? Did your Vitamin D stabilize? Do you have long hauler syndrome after Covid? Consider switching to Vitamin D 3, the natural form of Vitamin D. Vitamin D 2 is the synthetic form of Vitamin D which the body can have difficulty changing to an active form. Also, Thiamine...
  14. knitty kitty
    Oh, @MagsM, Sorry you had that happen with Niacin. 500mg is the maximum amount of Niacin one should take. Niacin works hand in hand with Thiamine, so a big influx like that can imbalance thiamine if not supplemented at the same time. All the B vitamins work together in concert. Niacin in doses at 500 mg or above have been used by doctors to lower...
  15. knitty kitty
    Bump up your thiamine dose! You can take more if you don't feel anything after the first one. Must needs getting to that 500mg. We need more thiamine when we're fighting an infection. Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
  16. knitty kitty
    Welcome to the forum, @MagsM, I had Meniere's. Meniere's is caused by deficiencies in Thiamine, Niacin, and Vitamin D. Celiac Disease causes malabsorption which affects all the essential vitamins and minerals. The B vitamins work in concert together like an orchestra. Having a Folate deficiency suggests other B vitamin deficiencies as well. Folate...
  17. knitty kitty
    How did you feel today?
  18. knitty kitty
    https://hormonesmatter.com/autistic-spectrum-disorder-asd-mitochondria-nutrients/ https://hormonesmatter.com/contemplating-cyclic-vomiting-syndrome/#google_vignette https://hormonesmatter.com/cyclic-vomiting-syndrome-mitochondrial-dysfunction/
  19. knitty kitty
    A multivitamin is great. Multivitamins contain lots of trace minerals we need. My only hesitation is that many use thiamine mononitrate which is not easily absorbed nor utilized by the human body. Thiamine mononitrate is used because it's cheap and shelf stable. You can add in a thiamine hydrochloride or a Benfotiamine supplement in addition to the multivitamin...
  20. knitty kitty
    We tend to crave foods that our bodies know contain the nutrients it needs. Her "meat kick" sounds like she's listening to her body's nutritional needs! Yes, do talk to her doctor and nutritionist about supplementing with a B Complex. Well done!
  21. knitty kitty
    @AllyJR, Similar to my family having a variety of health problems related to undiagnosed Celiac Disease. Not only does one inherit the autoimmune disease genes, we also learn poor eating habits from our families. Look into the Autoimmune Protocol Diet which reduces inflammation and promotes healing. This diet cuts out foods that can be inflammatory...
  22. knitty kitty
    Seems like you've been exploring all the possibilities. Good job! Fructose Malabsorption might cause intestinal discomfort. You might cut back on fruit for a bit. Gastroparesis can cause squeezing contractions randomly. Thiamine and the B vitamins would help. Has your daughter been checked for vitamin deficiencies? Is she taking any vitamin...
  23. knitty kitty
    Hurrah for an official diagnosis! You may want to put the whole family on gluten free, as a preventative measure for the ones not testing positive right now. Remember, exposure to gluten triggers the Celiac genes your kids have inherited from you. Keeping them gluten free now, even though they don't test positive right now, can delay triggering Celiac...
  24. knitty kitty
    @annirosex, Get your Vitamin D level checked. Low Vitamin D can mess up menstrual cycles. Vitamin D at healthy levels (80-100) acts as a hormone and regulates your immune system. Thiamine Vitamin B 1 is needed to activate Vitamin D, so adding thiamine in the form Benfotiamine would be beneficial.
  25. knitty kitty
    Good job! Brave astronaut! The other B vitamins can be stored in the body longer than thiamine. You won't mess them up.
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