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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. Welcome to the forum, @MO1984, I have dermatitis herpetiformis, too. I've learned that glutamate can make dermatitis herpetiformis worse. Some foods like mushrooms can contain high levels of glutamate. Coffee and caffeine cause increased production of glutamate. Glutamate is a helpful excitatory neurotransmitter that our bodies can make. It...
  2. What is considered "Normal" Vitamin D can range from 30 to 100 ng/ml. Celiac people are better off with levels between 73 and 100 ng/ml. Is yours in that range? What form of Thiamine was in your B vitamins? If it was thiamine mononitrate, which is not well absorbed nor biologically active, you would do well to take another form, like Benfotiamine...
  3. Magnesium is stored in your bones, just like calcium. When you need more magnesium, the body can pull it out of the bones, so low blood magnesium levels might not be reflected. Thiamine and magnesium work together... a deficiency in either one can affect how the other functions. Thiamine is needed to regulate calcium ions. "Because the endoplasmic...
  4. @Allias, Do you have low magnesium levels? "The serum levels of parathyroid hormone and magnesium depend on each other in a complex manner. The secretion of parathyroid hormone by the parathyroid is physiologically controlled by the serum calcium level, but magnesium can exert similar effects. While low levels of magnesium stimulate parathyroid...
  5. Welcome to the forum, @Allias, For the growth and maintenance of bones, more vitamins and minerals are needed than those you are taking. Bones need calcium, as well as magnesium and iron, but also trace elements like zinc, copper, selenium, manganese, and boron. Bones need vitamins like Vitamin D and Folate (not synthetic Folic Acid which...
  6. @Neat1, I so glad you're going to try Thiamine! Do let us know how it goes. Benfotiamine is the form of Thiamine that may be very helpful to you. Benfotiamine has been shown to promote healing in the intestines. Be sure to take a B Complex because all eight B's work together. Try to get a minimum of 300 mg a day of Benfotiamine. Higher doses...
  7. @cjjones5969, Unintended weight loss is a symptom of Thiamine deficiency. Gluten free processed foods are not required to be enriched with vitamins like gluten containing flours and products made with them. Switching to a gluten free diet can precipitate vitamin deficiencies. Celiac Disease damages the small intestine where vitamins like Thiamine...
  8. Welcome to the forum, @cjjones5969 Are you eating much processed gluten free facsimile foods? Keep in mind that gluten free processed foods, like gluten free breads, pasta and cookies, are not required to be enriched with vitamins and minerals. Flours containing gluten are required to be enriched with vitamins and minerals lost in processing...
  9. @BadHobit, You don't need to eat gluten to have a DNA test for Celiac Disease genes. You need to let your doctors know how severe your reaction to gluten is. It's endangering your health. I could not finish a gluten challenge after having been gluten free for a while beforehand. My doctors diagnosed me by positive genes for celiac disease and...
  10. Welcome to the forum, @BadHobit Were you tested for H. Pylori infection? Sometimes this infection can cause stomach irritation and even ulcers. H. Pylori infection can trigger Celiac Disease. H.Pylori infection is frequently found in celiac disease. Ask for DNA testing to see if you have any of the genes seen in Celiac Disease. Having the genes...
  11. Hello, @glucel, I lost sixty pounds in six weeks. It was shocking. Fat loss as well as muscle wasting. Thiamine is needed to turn carbohydrates, fats, and protein into energy. With insufficient Thiamine, the body uses a shortcut to save thiamine. The body stores carbohydrates as fat, and later burns the stored fat for energy, a process which...
  12. Hello, @glucel, Unintended weight loss is symptomatic of Thiamine deficiency. Our bodies use more Thiamine when we are ill and stressed. Switching to a gluten free diet can also result in a lower intake of Thiamine. Interesting Reading: Coronary Artery Bypass Graft (CABG) surgery depletes plasma thiamine levels https://www.ncbi.nlm...
  13. Hello, @Neat1, Yes, neck and shoulder pain can be symptoms of Gerd, which is fairly common in Celiac Disease. Ask for a DNA test, too. Celiac Disease is genetic. If you've got celiac disease genes, further testing is warranted. Some people have Celiac genes, but don't have active Celiac Disease. If you've got symptoms, your genes are probably...
  14. Not really. Blood tests for vitamin deficiencies are not accurate. You can have "normal" blood levels and have vitamin deficiency symptoms before blood levels change. The brain sends messages to the body to release into the bloodstream any extra vitamins stored within cells of tissues and organs so that important organs like the brain and heart can...
  15. Welcome to the forum, @Sarah Grace, I had symptoms like yours. I thought at first it was hypoglycemia, but having type two diabetes, my blood glucose meter didn't register a low. If anything, my blood glucose levels were slightly high, but quickly returned to normal with me stirring around after waking. I was certain dehydration, having similar...
  16. Hello, @Kate1990, I reacted to calcium citrate because it's made from oyster shells and I react to seafood. I chose calcium malate and chelated calcium. Be sure to take a magnesium supplement as well, but several hours away from calcium. Magnesium and calcium compete for absorption. We need calcium for bones, but magnesium and potassium keep...
  17. Check the label and tell us what kind of B12 is in your gummies. If it's Cyanocobalamin, switch to a methylated (active) form of B12. Some of us need to take the active form of B12 because our bodies have problems turning other forms of B12 into the active methylated form due to MTHFR genetic variations. Take a B Complex supplement, too...
  18. @Zoe26, Has he been checked for vitamin deficiencies? Is he pulling up to standing position? Does he crawl? I ask because delayed development can be associated with nutritional deficiencies. Having a hoarse low voice is symptomatic of Thiamine deficiency in children and adults. Complete loss of voice is possible, too. ...
  19. I found this article very interesting... Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7109277/ Not a doctor.
  20. @Zoe26, Does your son have a hoarse voice?
  21. Yes, a company that has dedicated lines where gluten is never processed on it is optimal.
  22. This is the label from my store brand "tater bites" : "Potatoes, Vegetable Oil (Contains One or More of the Following Oils: Canola, Soybean, Cottonseed, Sunflower, Corn). Contains 2% or Less of Modified Corn Starch, Dehydrated Onion, Dextrose, Salt, Sodium Acid Pyrophosphate (To Promote Color Retention). Allergen Info Free from Does Not Contain...
  23. Hi, @Eldene, Make sure you're getting sufficient Omega Three fats which will help with satiety. Omega Threes vegetarian sources are Chia seeds, flaxseed, and walnuts. What are the ingredients in your protein smoothie? What do you normally include in your "plant-based healthy meals, with enough protein"?
  24. @Wormsy22, B12 and Folate can be high if there's a deficiency in Pyridoxine B6 and Thiamine B1. Do consider a gluten challenge with 10 grams (4-6 slices of bread or equivalents) for several weeks before having complete blood tests for antigluten antibodies as @trents and @Scott Adams mentioned. Do ask for DNA screening to check for Celiac...
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