knitty kitty
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Posts posted by knitty kitty
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Welcome to the forum, @Sweetsoonergirl!
You may feel better if you supplement with vitamins and minerals. The gluten free diet can be low in the B vitamins and minerals like magnesium that our bodies and minds need to function. Anxiety is improved with a higher B Complex vitamin intake and Vitamin D intake.
B vitamins are required by law to be added to gluten based foods, but there's no such requirements for gluten free processed foods.
Taking a B Complex and high dose Thiamine really helped alleviate my anxiety and OCD concerns. Read my blog for more information.
Subclinical deficiencies in the B vitamins affect the brain, causing anxiety, depression, and irritability. Because the B vitamins are water soluble and nontoxic, supplementing and looking for improvement is an easy test. Blood tests for vitamin deficiencies are not accurate.
References:
Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8398893/
Dietary intake of B vitamins and their association with depression, anxiety, and stress symptoms: A cross-sectional, population-based survey
https://pubmed.ncbi.nlm.nih.gov/33848753/
Hiding in Plain Sight: Modern Thiamine Deficiency
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
Thiamine deficiency disorders: a clinical perspective
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/
Hope this helps!
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Welcome to the forum, @Spitcard!
A biopsy is considered the "gold standard" of diagnosis.
In early stages of celiac disease and in young people, DGP IgG antibodies are often the first antibodies to be produced.
Anemia, diabetes, and Thiamine deficiency can affect the production of tTg IgA anti gluten antibodies.
Celiac Disease is genetic. You can have a DNA test to look for known Celiac genes. You must have at least one genetic marker to develop Celiac Disease.
I know it's a big adjustment getting your head around celiac disease and living gluten free. You've found a great community for support!
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I've had tinnitus, but I found correcting my low Vitamin D improved it.
Serum Vitamin D Concentration Is Lower in Patients with Tinnitus: A Meta-Analysis of Observational Studies
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10047354/
The eight essential B vitamins and Vitamin D are effective in lowering stress, anxiety and depression.
Efficacy of B-vitamins and vitamin D therapy in improving depressive and anxiety disorders: a systematic review of randomized controlled trials
https://pubmed.ncbi.nlm.nih.gov/35156551/
Dietary intake of B vitamins and their association with depression, anxiety, and stress symptoms: A cross-sectional, population-based survey
https://pubmed.ncbi.nlm.nih.gov/33848753/
B Vitamins, work‐related stress and emotional mental disorders: a cross‐sectional study among nurses in Indonesia
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9190671/
Because celiac disease causes malabsorption and the gluten free diet can be low in B vitamins, boosting your ability to absorb nutrients by taking supplements is beneficial.
Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8398893/
Hope this helps!
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Congratulations on your improvements!
Dysautonomia and POTS are caused by Thiamine insufficiency. Blood tests for Thiamine deficiency are not an accurate measurement of how well Thiamine is being utilized inside cells and organs. An Erythrocyte Transketolase test is a better measure.
I've had POTS and Dysautonomia myself. I took high dose Thiamine and my symptoms improved dramatically.
Thiamine deficiency disorders are under diagnosed. Celiac Disease causes malabsorption of the B vitamins like Thiamine. Thiamine provides energy for mitochondria inside cells to function. Without sufficient thiamine, the mitochondria don't function well. If the mitochondria aren't working well, there is less uptake of thiamine from the blood stream, so blood levels appear normal. It's a functional deficiency.
The World Health Organization says to give Thiamine in high doses for several days and look for improvement. Since Thiamine is water soluble, nontoxic, safe in high doses, and easily excreted, there's no harm, no foul for trying.
High dose Thiamine really made a big difference for me. My symptoms improved within hours.
References:
Dysautonomia, A Heuristic Approach to a Revised Model for Etiology of Disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2644268/
Nutritional Implications of Patients with Dysautonomia and Hypermobility Syndromes
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8435108/
Thiamine deficiency disorders: a clinical perspective
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/
Hiding in Plain Sight: Modern Thiamine Deficiency
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
And...
Thiamine and benfotiamine: Focus on their therapeutic potential
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10682628/
And...
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Welcome to the forum @shawnthehaze!
Deficiency in Thiamine (and magnesium) results in constipation and Gastroparesis (the intestines don't squish food through well). Intestinal bacteria have time to ferment those foods and gas results. Try the Benfotiamine and magnesium and a B Complex.
Remember gluten based foods contain added vitamins and minerals to replace the vitamins lost in processing. Since you have stopped eating gluten products you are no longer consuming the vitamins and minerals added to gluten products. Gluten free processed facsimile foods are NOT required to be enriched with added vitamins and minerals. Time to buy your own vitamins and minerals.
Thiamine and the other B vitamins are compounds our bodies cannot make and must get from food or supplementation. Without these B vitamins, we cannot make life sustaining enzymes. Our bodies cannot store the B Complex vitamins for long so we must get them from our food every day.
Doctors are not as knowledgeable about nutrition as we would like. Out of seven years in medical school, doctors receive twenty hours of nutritional education, and taught nutritional deficiencies don't happen in well fed societies. They rarely recognize deficiency symptoms. They are taught to prescribe pharmaceuticals.
The B vitamins are safe and nontoxic even at higher doses. If not needed, they are readily excreted in urine. The World Health Organization says that the best test for vitamin deficiencies is to take them and look for improvement.
Hope this helps!
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@Rosecottage, welcome to the forum!
I had extremely low Vitamin D, had developed uterine hyperplasia (endometriosis), was prescribed progesterone, had Gastroparesis (foods turn to cement and don't move), had so much trouble with gas I felt my intestines were making balloon animals, had goopy swollen eyes and face from histamine intolerance and Small Intestinal Bacterial Overgrowth, and aches and pains everywhere.
Celiac Disease affects our ability to absorb all nutrients, vitamins and minerals. It's rare to have a deficiency in just one vitamin. It's important to correct deficiencies as quickly as possible to prevent permanent damage.
Vitamin D is one of the four fat soluble vitamins (A, D, E, and K). At higher levels (80-110), Vitamin D works like a hormone, progesterone, and makes cells more sensitive to progesterone.
I took high doses of Vitamin D 3 to correct my deficiency. See the article below. Your 1000 iu a day isn't sufficient to correct the deficiency.
An open-label, randomized, 10 weeks prospective study on the efficacy of vitamin D (daily low dose and weekly high dose) in vitamin D deficient patients
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6618212/
I followed a low histamine Paleo diet (the Autoimmune Protocol Diet). This Paleo diet starves off the SIBO bacteria and lowers histamine levels. I felt better within a few days. My intestines had time to rest and heal. After three weeks, I started adding foods back into my diet.
I took over-the-counter vitamins and minerals to correct my deficiencies and boost my absorption ability. In addition to the four fat soluble vitamins, I took a B Complex that contains all eight essential B vitamins, Vitamin C and minerals like magnesium (needed to work with Thiamine).
Studies are now showing that higher levels of the eight essential B vitamins have health benefits.
The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/
And...
B Vitamins: Functions and Uses in Medicine
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9662251/
I also took high dose Thiamine Vitamin B1. The form of Thiamine called Benfotiamine has been shown to promote intestinal healing, improve Gastroparesis and gut motility, and influence bacterial growth in the intestines. Thiamine and Benfotiamine have antibacterial properties against those pesky SIBO bacteria. Thiamine and Benfotiamine also have pain relieving properties.
Thiamine and benfotiamine: Focus on their therapeutic potential
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10682628/
And...
Hiding in Plain Sight: Modern Thiamine Deficiency
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
Diets high in carbohydrates and fats can lead to SIBO (in which bacteria ferment your intake, producing gas as a byproduct) and absorption of nutrients is further reduced. SIBO can also lead to Leaky Gut Syndrome resulting in high histamine levels and inflammation. Thiamine helps lower histamine levels.
Histamine Intolerance Originates in the Gut
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8069563/
Hope this helps!
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I agree with you.
Diabetics can choose to eat sugar but the after effects of high blood glucose levels are quite different than the downstream consequences of a Celiac eating gluten. I have both Type Two Diabetes and Celiac.
If this person fell into a diabetic coma every time he over ate sugar, his opinion might be a bit different.
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Diverticulitis?
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celiac disease has to be ruled out before a diagnosis of NCGS can be made.
If there are no genes for celiac disease, it's NCGS. If there are genes for Celiac, it's Celiac.
"Non-celiac gluten sensitivity (NCGS) or commonly known as gluten sensitivity is defined as “a clinical syndrome caused by the gluten ingestion resulting in intestinal and/or extraintestinal symptoms that alleviate once the gluten-containing food is removed from the diet, NCGS is a diagnosis of exclusion after excluding celiac disease and wheat allergy” [1]."
Diagnostic Dilemma, Possible Non-celiac Gluten Sensitivity: Consideration in Approach and Management
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9236635/
And...
"NCGS is characterized by the triggering of intestinal and/or extraintestinal symptoms after the consumption of products made with gluten-containing cereals, but both celiac disease and WA must be properly ruled out as the symptoms overlap among the clinical entities and there is a lack of sensible and specific biomarkers for NCGS diagnosis."
Non-Celiac Gluten Sensitivity: An Update
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8224613/
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I also have had hypothyroidism, fibromyalgia, OCD, PTSD, and osteoporosis, Wernicke's Encephalopathy, and type two diabetes. I'm a Microbiologist. My health has improved by taking high dose Thiamine, and supplementing essential vitamins and minerals.
Vitamins and minerals are essential for life. These should come from the food we eat, but celiac disease damages the intestines and we cannot absorb sufficient nutrients from foods when we need them most to heal. Supplementing with vitamins and minerals boosts your ability to absorb these essential nutrients.
STROKE
Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7230706/
Reduced thiamine is a predictor for cognitive impairment of cerebral infarction
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7507112/
HYPOTHYROIDISM
Thiamine and Hashimoto's thyroiditis: a report of three cases
https://pubmed.ncbi.nlm.nih.gov/24351023/
Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients
https://pubmed.ncbi.nlm.nih.gov/37278003/
FIBROMYALGIA
High-dose thiamine improves the symptoms of fibromyalgia
https://pubmed.ncbi.nlm.nih.gov/23696141/
ANKYLOSING SPONDYLITIS
Ankylosing spondylitis disease activity and serum vitamin D levels: A systematic review and meta-analysis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9678609/
Low Vitamin D Levels Predict Mortality in Ankylosing Spondylitis Patients: A Nationwide Population-Based Cohort Study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7285142/
OSTEOPOROSIS
Non-coenzyme role of vitamin B1 in RANKL-induced osteoclastogenesis and ovariectomy induced osteoporosis
https://pubmed.ncbi.nlm.nih.gov/32100911/
Nutrient Patterns and Risk of Osteopenia in Postmenopausal Women
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10096860/
OCD
Obsessive-Compulsive Symptoms as a Manifestation of Homocystinuria
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8007370/
PTSD
Neuroinflammation is a susceptibility factor in developing a PTSD-like phenotype
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10090279/
THIAMINE
Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/
Thiamine deficiency disorders: a clinical perspective
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/
God bless you, too. God and @Scott Adams allow me to share this knowledge with you. I've had to find the answers to why I was so sick because my doctors did not recognize nutritional deficiencies.
Please discuss supplementation with your Nutritionist and doctors. Correcting nutritional deficiencies is part of proper follow up care for us.
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I'm Type Two Diabetes also. Diabetics lose Thiamine quickly because the kidneys don't reabsorb it. So, most diabetics are thiamine insufficient.
Thiamine is needed for antibody production. If there's not sufficient Thiamine, the tTg IgA antibody producing cells in the intestines cannot develop and cannot produce antibodies in mass quantities. TTg IgG antibodies are made by different antibody producing cells in the blood which don't require as much Thiamine, so sometimes IgG antibodies are all that's produced.
Benfotiamine, a form of Thiamine that gets into cells easily, has been shown to be beneficial in diabetes.
Thiamine interacts with the seven other B vitamins, so a B Complex is essential as well. Thiamine needs magnesium to function properly, so a magnesium supplement should also be taken. Taking just one or two B vitamins won't do. All eight essential B Complex vitamins need to be taken together. B Complex vitamins are water soluble. Any excess is easily excreted in urine. When we have deficiencies, we need to take more than the recommended daily dose of vitamins. We need to take a daily dose plus more to compensate for poor absorption and to restock the vitamin stores inside cells. Keep in mind, the RDA is the MINIMUM amount needed to prevent disease, not the optimal amount. It's important to correct deficiencies or insufficiencies as quickly as possible so no permanent damage will be caused.
Instead of one 50000 unit pill a day of Vitamin D, take several 10000 unit pills several times a day. My Vitamin D level was in the single digits. I ate Vitamin D supplements like m&m's, craved them. Really weird, yes, but my body knew what it needed. Once my level was up, the craving disappeared. Vitamin D helps regulate the immune system and calms inflammation.
I did the same with the B Complex vitamins. I took smaller doses of B Complex vitamins several times a day, usually with meals.
Look into a low histamine Paleo diet like the Autoimmune Protocol Diet (AIP diet) which has been shown to promote healing in the gastrointestinal tract. It will also starve out those SIBO bacteria and get rid of the bloating.
Keep us posted on your progress!
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It's more likely Celiac Disease. People with Non Celiac Gluten Sensitivity do not have genes for Celiac Disease.
Thiamine B12 deficiency, anemia and Diabetes can affect antibody production causing false negatives. Some Celiacs are seronegative.
Were you eating sufficient gluten in your diet prior to antibody testing? Some people cut back on gluten prior to testing not realizing that their antibody levels drop if they do cut back on gluten which gives equivocal results. You may want to do a repeat gluten challenge, eating sufficient gluten to get a strong antibody response.
According to recent research, updates to the gluten challenge are being implemented.
Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer.
While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.
Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods. Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.
References:
https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/
And...
Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader
"In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine) following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al. While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced."Eosinophilic Esophagitis has been linked to a diet high in sugar and carbohydrates. A high carbohydrate diet can result in Thiamine deficiency and SIBO (small intestinal bacterial overgrowth). Thiamine helps keep intestinal bacteria in check. Excessive carbs and sugar in the diet require additional Thiamine in order to turn these into fuel for the body. We can run short on Thiamine in just a few days. Excessive carbs and sugar can pass undigested into the intestines where bacteria feed on them and release gas as a byproduct and causing bloating! Thiamine deficiency can also cause diarrhea and constipation both.
Are you taking any vitamins now? What has been done about your B vitamin deficiencies?
Keep us posted on your progress!
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Welcome to the forum, @Rachel SA!
It's more likely Celiac Disease if you know you have that one celiac disease gene. People with Non Celiac Gluten Sensitivity do not have Celiac genes.
Chronic inflammation can be a sign of early celiac disease.
Not consuming sufficient gluten ahead of testing can give ambiguous results on blood tests and biopsy. (*see below)
Anemia, diabetes and Thiamine deficiency can affect anti gluten antibody production. Some people with Celiac are seronegative but have Celiac Disease just the same.
Osteoporosis may be linked to autoimmune diseases.
https://www.healthline.com/health/is-osteoporosis-an-autoimmune-disease
Hope this helps!
*Guidelines for Gluten Challenge:
According to recent research, updates to the gluten challenge are being implemented.
Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer.
While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.
Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods. Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.
References:
https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/
And...
Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader
"In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine) following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al. While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced."
Keep us posted on your progress! -
Be sure to eat a sufficient amount of gluten between now and your endoscopy.
According to recent research, updates to the gluten challenge are being implemented.
Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer.
While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.
Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods. Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.
References:
https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/
And...
Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader
"In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine) following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al. While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced."
Keep us posted on your progress! -
I like Life Extension Benfotiamine. What was the brand and form of Thiamine you took that didn't work? Did you take a B Complex with it? Did you take Magnesium? Thiamine needs magnesium to function properly. Sometimes doses higher than 500 mg daily is required, depending on the form of Thiamine.
Keep in mind that all eight essential B vitamins are water soluble. Some herbal teas are diuretic (they make you per more), which means you are losing your water soluble B vitamins. Some herbal teas contain chemicals that break thiamine apart so it cannot be used by the body.
A good rule of thumb is to drink a glass of water ( about 8oz. ) every time you go to the bathroom.
So glad you're feeling better!
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It's common for Celiac people to be misdiagnosed with IBS (like me), postponing a correct diagnosis for years. Yes, do get further testing, an endoscopy, and a DNA test for Celiac genes.
Also ask for an Erythrocyte Transketolase test to check for Thiamine deficiency. Thiamine deficiency symptoms include persistent nausea, and abdominal pain. Thiamine deficiency can also cause gallbladder dysfunction, causing pain in upper right quadrant. Deficiencies in other B vitamins like Niacin can cause low stomach acid which most doctors mistakenly treat with antacids, further lowering the absorption of Niacin and other essential nutrients. Keep in mind proton pump inhibitors, frequently used for acid reflux, cause inflammation and damage to the small intestine on top of the damage caused by Celiac Disease.
Keep us posted on your progress!
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Ask for an Erythrocyte Transketolase test for Thiamine deficiency. Migraines have been linked to Thiamine deficiency. Thiamine deficiency symptoms include diarrhea and abdominal pain (Gastrointestinal Beriberi).
Celiac Disease causes poor absorption of essential vitamins, like Thiamine and the other B vitamins. The Gluten free diet is low in Thiamine and other B vitamins, especially if gluten free processed foods are consumed.
Gluten containing products are required to be enriched with vitamins, but gluten free processed foods are not required to have vitamins added to them.
Malabsorption can have been occurring, causing you to be low in Thiamine, then on the gluten free diet, the low thiamine could have gotten worse resulting in symptoms of Gastrointestinal Beriberi.
Talk to your doctor about correcting nutritional deficiencies as part of proper care for Celiac people.
Also consider getting a DNA test to see if you have any of the known genes for Celiac Disease.
Keep us posted on your progress!
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Get your zinc level checked, too. Copper can accumulate if there's a deficiency in zinc. Copper and zinc balance each other.
Great that your tTg IgA levels are reducing! Good job!
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Ask for a DNA test to see if you have any of the known genes for Celiac Disease.
Those symptoms, the pathology report, and the blood tests say positive to me, too.
Keep us posted on your progress!
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Welcome to the forum, @Braver101,
You may need to have your thyroid medication dose adjusted. Excessive sweating can occur in hyperthyroidism.
Excessive sweating consumes lots of Thiamine Vitamin B1. Thiamine turns carbohydrates and fats into energy for the body. Thiamine depletion can happen quickly, within three days to two weeks. Celiac Disease can interfere with the absorption of essential vitamins like thiamine and the other B vitamins, so you may already have low vitamin stores. The Gluten Free diet can be deficient in vitamins like thiamine and the other B vitamins because processed gluten free facsimile foods are not enriched with added vitamins like gluten based foods. If one eats lots to gluten free processed foods full of fats and carbohydrates, additional Thiamine is needed.
Dysautonomia, a Thiamine deficiency disorder, can interfere with the part of the brain that controls temperature regulation, resulting in excessive sweating, too. Dysautonomia can cause the thyroid to swing high or low resulting in a thyroid storm, thyrotoxicosis.
High blood glucose levels can cause excessive sweating, too. Most diabetics have low Thiamine.
Your doctor dealing with your thyroid needs to check your thyroid medication dose. Ask for an Erythrocyte Transketolase test as well. This tests for Thiamine activity and is a better measure of Thiamine deficiency than blood levels. You can have a deficiency in B vitamins and still have "normal" blood levels.
Keep us posted on your progress!
References:
An Uncommon Presentation of Hyperthyroidism Can Culminate in Devastating Neurological Consequences: A Case Report
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9509528/
Gluten-free diet intervention reduces thiamine intake in two weeks, increases glycaemic response and decreases body weight in four weeks, with no long term nutritional deficiencies (because they went off the gluten-free diet after four weeks, not Celiacs)
https://pubmed.ncbi.nlm.nih.gov/34583628/
Dysautonomia, A Heuristic Approach to a Revised Model for Etiology of Disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2644268/
Thiamine deficiency disorders: a clinical perspective
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I like to keep my Vitamin D levels between 75 - 100 nmol/L year round. At this level, Vitamin D can work and do other things than keeping bones healthy, like build cartilage. What are your "normal" ranges?
I disagree about not needing to supplement. It takes longer than a month or two of supplementing to correct deficiencies. Considering that the gluten free diet can be nutritionally inadequate, supplementation is a must. We need to remember that the RDA guidelines for vitamins were set as minimum requirements to prevent disease (not optimal health) back when processed foods were not part of the diet. Diets high in fats and carbohydrates demand more essential vitamins like Thiamine and Niacin to convert them into energy for growth and repair of our bodies.
For example, Deficiency in Thiamine Vitamin B1 is linked to Erythrocytosis.
Spasming muscles are linked to Thiamine and magnesium deficiencies. Thiamine, Pyridoxine, and Cobalamine relieve pain.
I've found proper posture, chin-tucking and "mewing" all extremely helpful in coping with my TMJ. I do mewing to strengthen neck and jaw muscles and prevent mouth-breathing. Mewing really helps relieve my TMJ pain.
Hope this helps!
References:
Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8398893/
Micronutrient deficiencies are frequent in adult patients with and without celiac disease on a gluten-free diet, regardless of duration and adherence to the diet
https://pubmed.ncbi.nlm.nih.gov/36096056/
The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/
Thiamine deficiency disorders: a clinical perspective
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/
Erythrocytosis in thiamine deficient rats
https://pubmed.ncbi.nlm.nih.gov/7334740/
Hiding in Plain Sight: Modern Thiamine Deficiency
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
And...
https://www.webmd.com/oral-health/what-is-mewing
And...
https://mewing.coach/blog/chin-tucking
Serum nutrient deficiencies in the patient with complex temporomandibular joint problems
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2446412/
Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review
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I've experienced TMJ on and off throughout my life. I've found that keeping my Vitamin D level up helps, as well as increasing Omega Threes are important in decreasing inflammation. Several of the B Complex vitamins help to relieve the associated pain.
Supplementing these vitamins and nutrients are important in Celiac Disease because we have malabsorption. Unless we supply our bodies with sufficient nutrients, our health suffers.
Here's some studies you may find helpful.
Circulating omega-6 and omega-3 polyunsaturated fatty acids in painful temporomandibular disorder and low back pain
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9561056/
https://pubmed.ncbi.nlm.nih.gov/32122630/
https://pubmed.ncbi.nlm.nih.gov/34915341/
Vitamin D3 Metabolism and Its Role in Temporomandibular Joint Osteoarthritis and Autoimmune Thyroid Diseases
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9964750/
Association of Serum Vitamin D Level with Temporomandibular Disorder Incidence: A Retrospective, Multi-Center Cohort Study Using Six Hospital Databases
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10343618/
Vitamin D and Temporomandibular Disorders: What Do We Know So Far?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8070666/
Effectiveness of Vitamin D along with Splint therapy in the Vit D deficient patients with Temporomandibular disorder-A Randomized, double-blind, placebo-controlled clinical trial
https://pubmed.ncbi.nlm.nih.gov/36510949/
Biochemical changes associated with temporomandibular disorders
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6381509/
Serum nutrient deficiencies in the patient with complex temporomandibular joint problems
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2446412/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8474295/
Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review
https://pubmed.ncbi.nlm.nih.gov/35156556/
Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7764703/
Thiamine deficiency disorders: a clinical perspective
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/
Hope you can find relief with Thiamine, Pyridoxine, Cobalamine, Omega Threes and Vitamin D.
Keep us posted on your progress!
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Welcome to the forum, @LimpToeTheTimeless
Bone growth plates close in the late teens to early twenties, so it's doubtful you'll grow much taller, but you may start to bulk up in muscle. Remember to boost your absorption of vitamins and minerals needed to build muscle by eating a nutritionally dense diet and supplementing with essential vitamins and minerals, especially Thiamine B1, to counteract the malabsorption caused by Celiac Disease.
Keep us posted on your progress!
References:
The effects of endurance training and thiamine supplementation on anti-fatigue during exercise
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/
A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial
Puffy/swollen Eyelids
in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Posted
@jmichelle,
Puffy eyes can be a result of high histamine. Histamine is released as part of the autoimmune response to gluten. Taking B Complex vitamins and Vitamin C will help get rid of the histamine.
Hope this helps!