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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Good to know! -
@Sabaarya, You really need to take them every day. B vitamins are water soluble, so we can't store them for very long. Taking them every day will help replenish what small amount we can store and our bodies will work better having plenty instead of barely enough. No, I would not recommend a Multivitamin. Only about 10% of the vitamins and minerals...
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Do you eat high glycemic foods? https://www.hsph.harvard.edu/nutritionsource/carbohydrates/carbohydrates-and-blood-sugar/ I found eating high glycemic foods made my blood glucose levels spike quickly and then drop quickly. And I will get the sweaty palms while my blood glucose levels are going up and down, even though they are within "normal... -
Getting tested
knitty kitty replied to Maria33255's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Maria! Are you having Dermatitis Herpetiformis outbreaks or could you be having Hives? Dermatitis Herpetiformis outbreaks usually occur after exposure to gluten. Iodine (as in iodized salt, eggs, dairy, and seafood) can make DH flare. Have you kept a food journal to see if there's an association with something in your diet? Do you eat processed... -
@Sabaarya, I'm so glad to hear your symptoms are improving! I know how you feel! I had plantar fasciitis, too! You may want to make sure you're including Omega Three fats in your diet. I take flaxseed oil supplements for Omega 3's. The nerves are covered with protective sheaths made up of fats like Omega 3's. These protective...
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Thiamine Thiamine Thiamine
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
You'll want to take 300-500 mg of thiamine Hydrochloride with each meal or about every three to four hours. The sticky sweat and flushing is what I get when blood glucose is high and there's not enough thiamine to burn glucose off for energy. I'm Type Two diabetic. I started off taking thiamine hydrochloride (thiamine HCl). It's probably the cheapest... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Hector, You'll want to take 300-500 mg of thiamine Hydrochloride with each meal or about every three to four hours. The sticky sweat and flushing is what I get when blood glucose is high and there's not enough thiamine to burn glucose off for energy. I'm Type Two diabetic. I started off taking thiamine hydrochloride (thiamine HCl). It's... -
Is Kraft Parmesan Cheese Gluten-Free?
knitty kitty commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
In a quirky way, I'm glad I have Celiac because now I'm more aware of what I'm putting in my body. And pine trees are not something I want to put in there, no matter what Euell Gibbons says...“Ever eat a pine tree? Many parts are edible.”- 16 comments
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Is Kraft Parmesan Cheese Gluten-Free?
knitty kitty commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
It's ground up pine trees.... PRODUCTION OF CELLULOSE FIBRES FROM DIFFERENT RESOURCES AND IN DIFFERENT DIMENSIONS AND PHYSICAL PROPERTIES https://novumproject.eu/index.php/2021/03/08/production-of-cellulose-fibres/ "...cellulose fibers can be used in a lot of other industries such as food, pharma and filtration. They work as fillers, binders...- 16 comments
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@TT0202, A racing heart and panic attacks when you stand up and move around sounds like Postural Orthostatic Tachycardia Syndrome (POTS) and is symptomatic of thiamine deficiency. I understand completely. My mother and father both routinely dismissed my symptoms. Your parents probably did not want you to go to the beach so you would be...
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Hector, I re-read your past posts. You mentioned you had been drinking alcohol heavily in September and due to liver damage, your doctor took you off duloxetine. You also said your blood glucose levels were normal. Did your doctor measure your A1C? Did you measure your blood glucose levels during the time when you were drinking alcohol? Alcohol... -
@celioops, Hi! So glad you're enjoying improved health with hippie foods! 🐱 I'm an old hippie myself! The condiments (mayo, ketchup, pickled veggies) you're craving contain vinegar, making them acidic. Sometimes we crave acidic foods if our stomach acid is low. Low stomach acid is a symptom of Thiamine insufficiency. Thiamine is Vitamin B1. ...
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Here's some reading material for you.... Gastrointestinal Symptoms and Lactic Acidosis in a Chronic Marijuana User https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8221923/ And... Elevated Lactate Secondary to Gastrointestinal Beriberi https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ And... What Is Thiamine Deficiency?...
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@TT0202, Those vitamins do NOT contain any Thiamine (Vitamin B1) at all!!!! Get a thiamine supplement that is just thiamine. Take a minimum of 300 mg. If you do have thiamine deficiency, you should see improvements within hours. The way doctors diagnose Thiamine deficiency is to give 300-500 mg of thiamine and look for improvement. Because...
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Are you vegetarian? Some Celiacs have difficulty with soy and processed gluten free facsimile foods. Have you tried the Autoimmune Protocol diet? It's Paleo, but there is a vegetarian version. (The Paleo Approach by Dr. Sarah Ballantyne has been scientifically proven to reduce inflammation and heal the intestines.) Eating a diet high...
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If your GI won't squeeze you in sooner with your severe symptoms, you always have the option of going to the Emergency Room. Print out this thread to take with you since it describes your symptoms (and contains advice from seasoned Celiac Disease sufferers and we know what we're talking about!) Thiamine and B12 deficiencies can be life-threatening...
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Thiamine Thiamine Thiamine
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
More research articles.... Elevated Lactate Secondary to Gastrointestinal Beriberi https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ And... 9 Signs and Symptoms of Vitamin B12 Deficiency https://www.healthline.com/nutrition/vitamin-b12-deficiency-symptoms And... https://www.nhs.uk/conditions/vitamin-b12-or-folate-deficiency... -
@TT0202, Welcome to the forum! Sorry you're feeling so poorly. I understand what you're going through. My family thought the same about me, too. I struggled for years trying to get to the cause of my similar symptoms. But there's hope! Celiac Disease causes malabsorption resulting in vitamin and mineral deficiencies. Doctors are not as knowledgeable...
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@ceciceco, Welcome to the forum! I would suggest excluding the Miso soup. Miso is made from soybeans that have been fermented by a mold, Aspergillus, which might be grown on wheat or barley. Some Celiacs develop sensitivity to soybeans and molds. Have you tried the Low Fodmap diet? The AutoImmune Protocol Diet has been scientifically...
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Can TMJ cause salivary gland pain?
knitty kitty replied to cristiana's topic in Related Issues & Disorders
Hopefully these will be beneficial... Thiamine status in end-stage chronic kidney disease patients: a single-center study https://pubmed.ncbi.nlm.nih.gov/30182293/ Functional thiamine deficiency in end-stage renal disease: malnutrition despite ample nutrients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5518601/ Thiamine tetrahydrofurfuryl... -
@Quanika Carter, Welcome to the forum and congratulations! Get checked for vitamin deficiencies before you start supplementing vitamins and minerals. Once you start supplementing, blood tests for vitamin deficiencies will pick up the supplements you have been taking and that will mask any deficiencies you actually have. Your doctor will...
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Can TMJ cause salivary gland pain?
knitty kitty replied to cristiana's topic in Related Issues & Disorders
@cristiana, Yes, it could be inflammation from the virus you came down with as well. Increase your Vitamin C and add zinc. I have also experienced B12 deficiency after getting any type of anesthesia, local or general, whether inhaled or injected. There are nitrogen compounds in injected anesthesia or inhaled as nitrous oxide. The nitrogen... -
@jackelynamills, Yes, Vitamin D can make that big a difference! Thank you for your wonderful reply about your results! It's brought me to tears. Hearing results like yours gives meaning to the fifty plus years I struggled alone on my journey to a Celiac diagnosis. Thank you!
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Can TMJ cause salivary gland pain?
knitty kitty replied to cristiana's topic in Related Issues & Disorders
@cristiana, I had a filling once that sat too high and misaligned my bite. Didn't notice until after the numbing wore off. Sore jaw developed. Went back to the dentist and had the filling adjusted. No more problems. My dentist often commented over the years that I produced a lot of spit. Only later doing research for Celiac Disease, I found...