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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@marcel g Your Vitamin B12 test may have shown up normal because B12 is in your multivitamin or your recently added B Complex. Blood tests are not accurate measurement of vitamins within the cells where they are used. Blood tests can reflect vitamins consumed from vitamin supplements or the diet in the previous twenty-four to forty-eight hours...
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Research about Thiamine, Celiac and personal experiences
knitty kitty posted a blog entry in Thiamine Thiamine Thiamine
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Celiac Irritability/Rage
knitty kitty replied to ELizardBreath's topic in Related Issues & Disorders
@ELizardBreath, You might find helpful information at Dr. Derrick Lonsdale's site. Dr. Lonsdale has done lots of research on Thiamine deficiency and also Autism. His research has certainly helped me. https://www.hormonesmatter.com/high-folate-vitamin-b12-low-thiamine-autism/ Irritability and nausea are symptoms of thiamine deficiency. ... -
Yah, @trents, I'm flabbergasted, too. @lilyvance21, You bought an essay???!!!??? You are shortchanging yourself on your education. In my day, turning in work that was done by someone else was grounds for expulsion. Learn how to learn. You would be much better off learning HOW to do research and how to write papers.
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Gluten Challenge Question
knitty kitty replied to JamesF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Found another article.... Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I took high dose Thiamine (Vitamin B1), (more than 500 mg of thiamine HCl a day), so that my brain would function properly. I had improvement within hours of thiamine... -
@Gerard S, You said "My body goes into a shock like state, trembling and freezing cold..." And... "Uncontrolable shaking, freezing cold sweats, no control over my body movements and certainly no control of my motions." My blood glucose levels can plummet after exposure to gluten causing those symptoms. I was wondering if you might have low blood...
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Gluten Challenge Question
knitty kitty replied to JamesF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@JamesF, You could do a genetic test for the most common Celiac genes. You don't need to be eating gluten for a genetic test. Although having the genes doesn't necessarily mean that the Celiac genes are active, but given your reaction to gluten consumption, I would say the genes are active. Some doctors will accept a positive genetic test and a positive... -
Identifying Rash and Treatment Option
knitty kitty replied to HansG's topic in Dermatitis Herpetiformis
Hello, I was wondering if you had been tested for diabetes. I found this interesting article.... Association of Granuloma Annulare With Type 2 Diabetes, Hyperlipidemia, Autoimmune Disorders, and Hematologic Malignant Neoplasms https://pubmed.ncbi.nlm.nih.gov/34106218/ And this one.... Response of generalized granuloma annulare... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@HectorConvector, Are you taking any L-glutamate supplements or shakes or anything with MSG in it? Here's a thread that explains how L-glutamate may trigger a reaction like gluten does. -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@HectorConvector, Have you been checked for Lyme Disease? Lyme Disease has been known to cause nerve damage and worsening symptoms when carbohydrates are consumed. The AutoImmune Protocol Diet is recommended for symptom relief. Recent Progress in Lyme Disease and Remaining Challenges https://www.frontiersin.org/articles/10.3389/fmed.202... -
Thyroid problems, effects of celiac, or something else?
knitty kitty replied to Lou24's topic in Related Issues & Disorders
Jays, I thought you might be interested in these articles. They show that gout and rheumatoid arthritis can be improved with Thiamine supplementation. Long-Term Treatment by Vitamin B1 and Reduction of Serum Proinflammatory Cytokines, Hyperalgesia, and Paw Edema in Adjuvant-Induced Arthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5... -
Optivia weight loss diet
knitty kitty replied to Miska's topic in Gluten-Free Foods, Products, Shopping & Medications
You should show this article to your husband and son. https://www.healthline.com/nutrition/optavia-diet?c=207111119#downsides "Specifically, these products contain large amounts of food additives, sugar substitutes, and processed vegetable oils, which may harm your gut health and contribute to chronic inflammation. Carrageenan, a common thickener... -
Your art and relationship to art on gluten
knitty kitty replied to Spherical Bird's topic in Introduce Yourself / Share Stuff
When I've had ataxia, I've been very uncoordinated and awkward trying to do everyday tasks, too, but I've found that doing something involving muscle movement memory is much more successful. Dancing would involve muscle movement memory, as would knitting. I knit really plain socks when I have ataxia, instead of the delicate lace knitting I love... -
Thyroid problems, effects of celiac, or something else?
knitty kitty replied to Lou24's topic in Related Issues & Disorders
@Lou24, I went through very similar symptoms, being misdiagnosed and told it was all in my head for most of my life. It's not all in our head. It's what's NOT in doctors' heads. Doctors don't think of vitamin deficiencies as causes of symptoms like we have. Doctors are trained to prescribe pharmaceuticals in medical institutions funded by pharmaceutical... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Copper deficiency? Idiopathic Copper Deficiency Induced Myeloneuropathy https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8528345/ And... Burning Foot Syndrome” due to Acute Copper Deficiency Myeloneuropathy after Bariatric Surgery https://n.neurology.org/content/92/15_Supplement/P2.6-062 P. S. Take some Vitamin C. I hope you f... -
That's really interesting! I've recently been reading about anemia unresponsive to iron supplementation therapy actually may be copper deficiency. Thiamine needs Magnesium to work properly, a co-factor. Having Magnesium deficiency can affect how well the body can utilize Thiamine. Thiamine is needed to make different types of blood cells. ...
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Hello, @Rogol72, What a nice topic to discuss! Yes, there's a link between mast cells, histamine intolerance and thiamine deficiency. Using your smoked fish episode as a starting point.... Smoked foods contain sodium sulfite which triggers mast cell degranulation. Sodium Sulfite-Induced Mast Cell Pyroptosis and Degranulation https...
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I’m Done and Feel Like Giving up
knitty kitty replied to Ginger38's topic in Coping with Celiac Disease
Constipation is a symptom of Thiamine Vitamin B1 deficiency. Magnesium will help because it works with thiamine, but thiamine is needed also. This article explains how thiamine deficiency effects the part of the brain that controls automatic body functions like pooping. https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency... -
Ataxia is a symptom of Thiamine Vitamin B1 deficiency. Paresthesia and neuropathy are more symptoms. Magnesium and thiamine work together, too. Thiamine works with the other seven essential B vitamins. Taking a B Complex, Vitamin D and magnesium are great ways to ensure our bodies get plenty of the building blocks needed for health.
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@victoriayatesxo, Welcome to the forum! Have you been checked for all types of anemia? Anemia can cause fatigue and somnolence. I've slept through ambulances, fire trucks, tornado sirens, etc. when I've been anemic. The medication you mentioned is prescribed to people with ADHD and people with ADHD can benefit from taking extra thiamine...
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Microbial transglutaminase is used in ice cream as a texture enhancer. It is technically an enzyme and part of the production process and as such is not required to be listed as an ingredient on the label. Microbial transglutaminase is used in baked goods, yogurt, ice cream, and processed foods, in both gluten free and nongluten-free foods.
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Poop advice!
knitty kitty replied to Mombles's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Mombles, Welcome to the forum! The poop situation may be a result of fats not being properly digested. Usually the gall bladder releases bile that contains enzymes that break down fats. When it doesn't have enough Vitamin B1 Thiamine, the gall bladder doesn't make and secrete bile properly. Remember, Celiac Disease damages the small intestine... -
Getting diagnosis
knitty kitty replied to Sirenna's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sirenna, Yes, they can all be related to Celiac Disease. Reflux oesophagitis in adult coeliac disease: beneficial effect of a gluten free diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1773586/ (Includes information on hiatal hernias) And... An Update on Eosinophilic Esophagitis: Etiological Factors, Coexisting Diseases...