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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @Sirenna! Yes, sometimes getting a diagnosis can be frustrating and time consuming. Seems most doctors have outdated concepts of Celiac Disease. If you Google "African Americans with Celiac Disease nih", results show several studies from the National Institute of Health. Like this one.... Celiac Disease and the...
  2. knitty kitty
    Chronic diarrhea can be a symptom of vitamin deficiencies. Vitamin B12 deficiency can cause diarrhea and even brain health changes before a deficiency can be detected in a blood test. https://www.nhlbi.nih.gov/health/anemia/vitamin-b12-deficiency-anemia And... Diarrhea and novel dietary factors emerge as predictors of serum vitamin B...
  3. knitty kitty
    That article says of the infant "Her mother attempted to reintroduce cow milk on the 59th and 64th day, but this was immediately followed by allergic manifestations which supported the diagnosis of cow milk allergy." Cow Milk allergy is an allergic reaction to the protein casein in milk. NOT because the milk had lactic acid, but because of the...
  4. knitty kitty
    Here's an article or two that might help.... DIET IN DERMATOLOGY: PRESENT PERSPECTIVES https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2965901/ And... https://www.hmpgloballearningnetwork.com/site/podiatry/when-vitamin-and-nutritional-deficiencies-cause-skin-and-nail-changes And.... Hidden Hunger: A Pellagra Case Report https...
  5. knitty kitty
    I'm curious about your UBO's on your MRI. Dr. H.'s article talks about ataxia and MRI changes, but doesn't mention thiamine deficiency. Thiamine deficiency can cause bright spots on MRIs. Just curious if your bright spots might be caused by thiamine deficiency as well. Vestibular signs of thiamine deficiency during the early phase of suspected...
  6. knitty kitty
    Ehlers-Danlos syndrome?
  7. knitty kitty
    The inability to put on weight is a symptom of thiamine insufficiency. Interestingly, packing on excess fat can also be a symptom of thiamine insufficiency. Turning carbohydrates into fat when thiamine is low is the body's way of saving thiamine. The body burns fat as it's energy source when it's trying to be thrifty with low thiamine levels, too. Peripheral...
  8. knitty kitty
    Yes. Exercise uses a lot of Thiamine to provide energy for all that muscle movement. When thiamine starts to run short, the body switches from aerobic means of burning energy to an anaerobic means that leaves lactic acid behind. This lactic acid build up is known as "the burn" as in the catch phrase "feel the burn". Normally, resting after exercise allows...
  9. knitty kitty
    @HectorConvector, The AutoImmune Protocol diet would really help in pinpointing which foods are problematic and what is upsetting your system. The AIP diet includes meat and fish and vegetables. The AIP diet excludes all grains, corn, rice, eggs, dairy, legumes, beans, nuts, seeds, some fruit, and nightshade vegetables (potatoes, tomatoes, peppers...
  10. knitty kitty
    @HectorConvector, Are you eating fresh fish or canned fish? Canned fish as well as smoked fish and all kinds of crustaceans have high levels of histamine. You might try fresh or frozen fish. Do cut out the dairy. Did the Apple pie have High Fructose Corn Syrup? Fructose malabsorption can cause problems. Make sure you are getting...
  11. knitty kitty
    Supplementing with the eight essential B vitamins can help stop gluten cravings. Wheat products are required by law to be enriched with vitamins and minerals lost in processing. In other words, wheat products have vitamins added to them. Celiac Disease damages the small intestine where the B vitamins are normally absorbed. We often do not get...
  12. knitty kitty
    @Charlia Daisey, Does your daughter have low Vitamin D? The Relationship between Vitamin D Status and the Menstrual Cycle in Young Women: A Preliminary Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6265788/
  13. knitty kitty
    Interesting articles about Thiamine Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/#idm140604396876032title Shoshin Beriberi in Critically-Ill patients: case series https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4443551/ ...
  14. knitty kitty
    I thought this study was very interesting... It finds that Vitamins B1 (Thiamine) and B12 (Cobalamine) play an important part in alleviating dry eyes. Effects of Oral Vitamin B1 and Mecobalamin on Dry Eye Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7508221/ And Omega Three fats can help, too... Omega-3 Essential Fatty Acids...
  15. knitty kitty
    There's a connection between low B12 and autoimmune Hives... Low B12 levels in chronic idiopathic urticaria https://pubmed.ncbi.nlm.nih.gov/15736714/ You might want to consider taking a B Complex supplement
  16. knitty kitty
    @Stevo, You might try the Autoimmune Protocol diet, a Paleo diet scientifically shown to help healing in the digestive tract. Cruciferous vegetables are notorious for producing lots of gas because they contain high levels of sulfur which is turned into sulfur gas by intestinal bacteria. (Hence that rotten egg smell.) Try eliminating cruciferous...
  17. knitty kitty
    Hi, Maureen! There are eight B vitamins, of which B12 is just one. The eight essential B vitamins all work together interdependently. You may find taking a B Complex that includes all eight B vitamins would be more beneficial than just the B12 shots. "Effect of thiamin deficiency on pancreatic acinar cell function" https://pubmed.ncbi.nlm...
  18. knitty kitty
    Are you aware that "Align" probiotics contain sodium caseinate, a form of casein, a protein in dairy products, to which your wife may be reacting? Casein has been shown to promote continuing inflammation in the digestive tract. Here's an informative article.... https://www.healthline.com/nutrition/sodium-caseinate Perhaps stopping the...
  19. knitty kitty
    @Squiishtopher, @heidirae, and @Starrmomma, Supplementing with the eight essential B vitamins can help stop gluten cravings. Wheat products are required by law to be enriched with vitamins and minerals lost in processing. In other words, wheat products have vitamins added to them. Celiac Disease damages the small intestine where the B vitamins...
  20. knitty kitty
    Jackie, That quote IS from research being done in this area. It's from this scientific study. Click on the link to read the full article. https://pubmed.ncbi.nlm.nih.gov/22081694/ Histamine is made as a result of fermentation so consuming fermented foods can raise histamine levels and bacteria in our gut can produce histamine as lactose...
  21. knitty kitty
    The AutoImmune Protocol Diet was developed by a doctor with Celiac Disease for herself and her Celiac children and others who have autoimmune diseases. The AIP diet has been scientifically proven to promote healing in the body. https://www.thepaleomom.com/start-here/the-autoimmune-protocol/ This diet has really helped me recover. I was astounded...
  22. knitty kitty
    Onions belong to the Allum family of plants. Allum plants like onion, garlic, shallots, etc. contain lots of Thiamine in the form allithiamine. Allithiamine is a fat based form of thiamine that gets into cells easily. https://www.science.org/doi/10.1126/science.118.3064.325?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub...
  23. knitty kitty
    I've found these articles to be most helpful. If we give our bodies what they need, they can effectively fight off infection. Be well: A potential role for vitamin B in COVID-19 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/ "As antibodies, and importantly T-cells, are required to eliminate the SARS-CoV-2 virus, thiamine...
  24. knitty kitty
    Hello! What are you including in your diet? Are you taking any medications that might contain gluten as a filler? Do you eat processed gluten free facsimile foods? Have you been checked for vitamin and mineral deficiencies? Have you tried the Autoimmune Protocol diet?
  25. knitty kitty
    See if the new doctor will do a genetic test. Explain how severe your reaction to gluten is. I was the same way, could not eat gluten long enough, and vitamin deficiencies and diabetes caused wonky blood test results. One doctor ordered the genetic test to get rid of me. But it proved I have two genes for Celiac. So hang in there! Have you...
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