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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    The Vegan gluten free B Complex only has 25 mg of Thiamine. Thiamine dose needs to be 300 mg minimum. "Be well: A potential role for vitamin B in COVID-19" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/ And... Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score...
  2. knitty kitty
    If a person is low in thiamine and is given a large amount of glucose (one of the ingredients listed as an ingredient in this drink), the person can experience "refeeding syndrome." In Refeeding Syndrome, electrolytes are thrown out of balance and thiamine is quickly depleted. It's a serious medical condition. Thiamine is needed to process the...
  3. knitty kitty
    Honey, when people say stuff like that to me, I ask them if they will hold my hair back while I throw up for the next seventeen hours. Their eyes get real big and they wave the waitress over to replace my salad for one without croutons. Yeah, I hate it when they say "no gluten free options on the menu? Oh, you can just have a salad." They...
  4. knitty kitty
    @Onegiantcrunchie, Sure can! I asked Alexa to find a restaurant that offered gluten free Chinese food......The nearest one is one hundred nine miles away.... I hate cold take out food... If eaten there, by the time I got home I'd be hungry again.... lol Local restaurant options include gluten-contaminated "gluten free" pizza (the company itself...
  5. knitty kitty
    I have severe reactions to wine because I have a sensitivity to Sulfites and will break out with rosacea. Hypersensitivity to Sulfites can be life threatening. As Count Dracula says, "I never drink....wine." 😼
  6. knitty kitty
    @Diamonds, I take calcium citrate-malate from Adaptogen Research. It's a form of calcium that the body can utilize better. I also take Vitamin K2, boron, and Vitamin D with my calcium because these all help with bone maintenance. Calcium in green leafy vegetables like kale, collard greens, mustard greens, and turnip greens provide great sources...
  7. knitty kitty
    @LC, Thiamine supplementation has been found to help Covd patients (especially those on respirators) in hospital and long haulers. Fighting any infection uses up our stores of thiamine. Thiamine is one of eight B vitamins that our bodies need to function properly. Taking Vitamin C, a B Complex along with extra thiamine (300 - 1000mg) has...
  8. knitty kitty
    Try the book "The AutoImmune Protocol" by Sarah Ballantyne. She's a doctor with Celiac and has Celiac kids. She developed the diet, which has been scientifically proven to promote healing in Celiacs. You're actually ahead of the game, knowing you have Celiac Disease. You will be knowledgeable and well practiced in the gluten free diet by the time...
  9. knitty kitty
    @lilturge, Welcome! Please keep in mind that Celiac Disease results in malnutrition because the area of the small intestine where damage is done prevents us from absorbing nutrients properly. Thiamine is a B vitamin that helps us digest and turn carbohydrates, fats, and protein into usable energy for the body. When thiamine is low...
  10. knitty kitty
    Welcome to the forum, @Onemoreceliac! It's a simple thing to brush your teeth after eating. Your boyfriend is not respecting your Celiac Disease, a medical condition that demands a gluten free diet. Your boyfriend is not being respectful to you by his unsupportive behaviour. Hard as it is, Celiac can help you weed out people who don't have...
  11. knitty kitty
    Yes, I believe it's two weeks of gluten before an endoscopy and six to eight weeks before blood antibody tests. Doctors do blood tests first and if positive, they do an endoscopy for confirmation. Blood tests can have false negatives, so an endoscopy might be done to see what else is going on. An endoscopy looks for damage to the small intestine...
  12. knitty kitty
    Beans would be counted as irritating, yes, because they contain Lectins which are hard to digest. The AutoImmune Protocol Diet is helpful in healing the intestines. It eliminates grains, legumes (beans), and dairy. Fresh veggies and grass fed beef mostly. Most doctors use endoscopy as the gold standard for Celiac diagnosis. Some can not do...
  13. knitty kitty
    Yes. Gluten damages the villi in the small intestine starting the immune response. The immune response can carry on for days or weeks. I've heard in simplest terms an exposure to gluten is like getting a carpet burn in your intestines and you wouldn't want to pour more irritating things on top of a carpet burn. So no spicy things, no alcohol...
  14. knitty kitty
    @Sam101, I experienced dramatic weight loss before my Celiac diagnosis. I lost sixty pounds in six weeks. I was finally diagnosed by a genetic test. I have two Celiac genes. I couldn't do the gluten challenge for a blood test because I would get so ill and had malnutrition which affected blood tests for Celiac. Celiac Disease damages the...
  15. knitty kitty
    Here are some interesting studies that you may find helpful.... "The role of thiamine in cancer: possible genetic and cellular signaling mechanisms" https://pubmed.ncbi.nlm.nih.gov/23893925/ "A very high dose of thiamine produces a growth-inhibitory effect in cancer." And... "High Dose Vitamin B1 Reduces Proliferation in Cancer Cell...
  16. knitty kitty
    @Ava B, Acid reflux (GERD) is another symptom of Thiamine insufficiency. Vitamin D deficiency is prevalent in children who lag behind on growth charts. https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-1840-4
  17. knitty kitty
    @Ava B, I recommend the book by Dr. Sarah Ballantyne, the Autoimmune Protocol Diet. She is Celiac with Celiac kids and designed the diet which has been scientifically proven to promote healing. The AutoImmune Protocol diet is what I followed and experienced rapid healing. The AIP diet removes dairy, grains, and legumes. Nightshades are also...
  18. knitty kitty
    @Ribbygirl6, I had menstrual irregularities before my Celiac diagnosis. I believe that being deficient in Vitamin D played a BIG part. Vitamin D deficiency affects your hormone levels. You must get your Vitamin D levels up by supplementing. Optimal level is above 75 nmol/l. Here's more information.... "Association between serum...
  19. knitty kitty
    The article I posted does mention Intrinsic Factor deficiency. Pernicious anemia occurs because the parietal cells don't produce Intrinsic Factor, hence Intrinsic Factor deficiency. Glad you found an article specifically stating oral B12 replacement works for pernicious anemia. Keep up the good research!
  20. knitty kitty
    Joanna, I'm so glad to hear you are taking thiamine and B Complex. My symptoms would fluctuate based on how active I was and if I was stressed. You use more Thiamine during activity and stress. If I felt not up to par, I would take more thiamine. I had to find the right amount for me. I took 1000 mg a day of Thiamine HCl at times. As my body...
  21. knitty kitty
    There's that big online store that starts with an A where I get mine. Thiamine HCl (thiamine hydrochloride) is very basic thiamine. NOW brand is what I started with... https://www.nowfoods.com/products/supplements/vitamin-b-1-100-mg-tablets I also take Benfotiamine, a fat soluble form of thiamine that promotes intestinal healing... https...
  22. knitty kitty
    You may want to discuss with your doctor the benefits of supplementing with a B Complex vitamin and high dose Thiamine. Thiamine is needed for digestion, to turn proteins, fats and carbohydrates into energy for the body to function. Symptoms of Thiamine insufficiency include fatigue and migraines. POTS (postural orthostatic tachycardia syndrome...
  23. knitty kitty
    @trents, I'm sorry to step in, but oral high doses of B12 can be used to correct V B12 deficiency. By taking high doses, the B12 can get into the cells by passive diffusion. (Passive diffusion is where something moves from an area of high concentration like outside a cell to an area of lower concentration like inside a cell.) ...
  24. knitty kitty
    B12 is just one of the group of eight B vitamins. You need to get Sue a B Complex supplement that includes all eight B vitamins. Just taking one B vitamin can throw the others out of whack. Get a B Complex with all eight B vitamins. Vitamin C and Vitamin D will help, too! Hope Sue feels better!
  25. knitty kitty
    Hi, @lehum, Keep in mind that Celiac Disease damages the areas in our intestines where vitamins and minerals are usually absorbed resulting in malnutrition. Taking additional B vitamins may be warranted. (Talk to your doctor.) That pins and needles feeling , neuropathy, can be a symptom of several of the B vitamins' deficiencies. Nerves need...
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