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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Thiamine Thiamine Thiamine
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
Yes, with thiamine deficiency the body burns fat stores and will also break down muscle to provide energy as well. The World Health Organization (WHO) states that a thiamine deficiency diagnosis can be made if a patient is given 300 mg of thiamine hydrochloride (thiamine HCl) a day for a week and notices improvement. Blood tests for vitamin deficiencies... -
@Ginger38, DH is pressure sensitive. I could go to the store and get DH blisters on the palms of my hands from pushing a buggy around. I've had DH under elastic every where you mentioned plus some. Try wearing natural fibers (cotton, linen, etc) that wick moisture away from the body. The heat and friction will be lessened. I doubt...
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allergy tests
knitty kitty replied to JohnSue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac Disease results in malnutrition because those flattened villi can't absorb nutrients, hence the weight loss. Dairy products can cause inflammation and damage to the villi just as wheat, barley and rye. Testing for vitamin and mineral deficiencies are part of proper follow up care for Celiac patients. Talk with the doctor about supplementing... -
@CoachJohnOK, Please stay and keep posting your questions. You don't need a diagnosis to learn about Celiac Disease. There's a lot to learn. Ask the VA hospital for a copy of their endoscopy report be sent to your doctor. The issues they found but couldn't explain need to be reviewed by a pathologist familiar with Celiac Disease. Perhaps your...
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Does more gluten = higher ttg?
knitty kitty replied to deanna1ynne's topic in Coping with Celiac Disease
I found an article that explains well how gluten causes inflammation.... Attack of the Gluten https://www.acs.org/content/acs/en/education/resources/highschool/chemmatters/past-issues/archive-2011-2012/gluten.html And an article on the difference in wheat flour and gluten content... https://healthyeating.sfgate.com/gluten-content... -
Newly diagnosed with blood tests, afraid to eat
knitty kitty replied to PammaDawn's topic in Coping with Celiac Disease
@PammaDawn, It's a big adjustment in how one thinks about food, absolutely! It can be scary, but you'll catch on quickly. I liked one pot meals when I was learning. Meat and veggies baked in the oven or stewed in a crock pot were my basics. Pretty boring, but easy, nutritious and gut friendly. Do check out the recipe section on our forum... -
Newly diagnosed with blood tests, afraid to eat
knitty kitty replied to PammaDawn's topic in Coping with Celiac Disease
Welcome to the forum! I found the AutoImmune Protocol diet by Dr. Sarah Ballantyne (a Celiac mom herself) very helpful. It's very conducive to healing. I found having a pot of stew of grass fed meat and fresh veggies very easy and handy to have on a back burner. Eating small frequent meals will help with digestion and keeping your energy up. ... -
Neurologic Problems with celiac disease
knitty kitty replied to becca2357's topic in Related Issues & Disorders
Welcome to the forum! When do these sensations happen? I ask because I have similar weirdness when my blood glucose level drops suddenly. This happens sometimes when I might be sitting watching a movie for a while and abruptly get up and start moving around. It takes a few moments while my body adjusts to the higher energy demands, during which time... -
Combination of results and issues
knitty kitty replied to Tara90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I vote for finding new doctors then. -
Combination of results and issues
knitty kitty replied to Tara90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Would DNA testing for the most common Celiac genes be possible for you? If you've got the genes and positive serology, the doctors might be willing to take another look with an endoscopy, although some doctors will make a diagnosis of Celiac Disease with just the genes and positive blood tests. The damage to the small intestine is often microscopic... -
Cutting down on foods that are high in iodine will help keep your DH from flaring so badly. Instead of iodized salt, try pink Himalayan salt Avoid crustaceans, shellfish, seafood and kelp (nori). They are all high in iodine. Avoid dairy and eggs, too. These are high in iodine as well. Niacin, Vitamin B3, will help calm down your flares...
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So tired of being scared.Please help:((
knitty kitty replied to Sabaarya's topic in Coping with Celiac Disease
Try adding some Magnesium to help with the function of Vitamin D! Magnesium Supplementation in Vitamin D Deficiency https://pubmed.ncbi.nlm.nih.gov/28471760/ -
@CharlesBronson, You need to check the amount of carbohydrates you ate at each of those meals where your glucose levels stayed elevated beyond two hours. Adjusting the amount of carbohydrates at meals may help you keep your glucose levels down. And watch out for sugary drinks between meals. I kept a food/mood/poo'd journal to track my carbohydrates...
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I had to do some calculations because my meter is in mg/dl. I found these articles.... Diabetes.... https://www.mayoclinic.org/diseases-conditions/type-2-diabetes/diagnosis-treatment/drc-20351199 And... Prediabetes.... https://www.mayoclinic.org/diseases-conditions/prediabetes/diagnosis-treatment/drc-20355284 Perhaps...
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@CharlesBronson, Have you been tested for Diabetes? Diabetes is another of those autoimmune diseases that can occur with Celiac Disease. Frequent urination is one symptom of diabetes, so is excessive thirst. The body tries to flush out excess glucose through the kidneys when there's not enough insulin for glucose to get into the cells. Unfortunately...
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IBS & Possibly Undiagnosed Celiac Disease
knitty kitty replied to cricketboots's topic in Related Issues & Disorders
Yes, @cricketboots, there's definitely a link between Celiac, mental health issues and also nutritional deficiencies. "The Role of Vitamins and Minerals in Psychiatry" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/#!po=10.0000 The vitamins and minerals discussed in this article are the very ones found to be deficient or insufficient... -
@Yvonne (Vonnie) Mostat, RN, Have you had your B12 level checked since you started having these symptoms? I ask because I've had the staggering and neuropathy after surgery, and medical and dental procedures where anesthesia was used. Nitrous oxide used in surgery with anesthesia can deplete Vitamin B12! The nitrogen binds irreversibly...
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Does more gluten = higher ttg?
knitty kitty replied to deanna1ynne's topic in Coping with Celiac Disease
"Predicting vital wheat gluten quality using the gluten aggregation test and the microscale extension test" https://pubmed.ncbi.nlm.nih.gov/33367286/ Looks like there's some variety in vital wheat gluten. Perhaps regular wheat flour would be more provocative of a reaction and higher ttg readings. -
Covid virus/vaccine triggering celiac
knitty kitty replied to Tintern21's topic in Related Issues & Disorders
There is some evidence that certain stressors such as vaccination, infection, emotional stress, and injury can precipitate a deficiency in thiamine. Diets high in empty calorie carbohydrates and fats contribute to Thiamine insufficiency. When a stressor comes, more Thiamine is needed, but if there's a shortage, Thiamine deficiency symptoms become apparent...- 30 replies
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So tired of being scared.Please help:((
knitty kitty replied to Sabaarya's topic in Coping with Celiac Disease
@Sabaarya, Continue taking your B Complex supplement. Ask your health provider to discuss the benefits of supplementing B vitamins, especially as regards these following studies. Taking Vitamin B6 (pyridoxine), folate, tryptophan and magnesium are the supplements I take (in addition to a B Complex) when I'm anxious. High homocysteine levels... -
So tired of being scared.Please help:((
knitty kitty replied to Sabaarya's topic in Coping with Celiac Disease
It is a peer reviewed study. But everyone has to decide for themselves what they want to believe. https://onlinelibrary.wiley.com/doi/full/10.1111/apt.13988 "Medication use and persistent villus atrophy Non-steroidal anti-inflammatory drug and PPI use was highly prevalent, with over a quarter of the sample listing medications within each of... -
Joanna, I took over the counter thiamine in the form Thiamine HCl (hydrochloride). Each tablet is 100 mg. https://www.nowfoods.com/products/supplements/vitamin-b-1-100-mg-tablets I took one 100mg tablet with each meal and snacks. I also took a daily B Complex vitamin that already had thiamine in it. Thiamine is safe to take even in large...