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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @Natalie youds, "Blister rash hands and feet" Could you describe your rash a little more? Have you compared your rash to pictures of DH? Is the rash on the top of your hands and feet or on your plans and soles of your feet? Does the rash get worse when exposed to the sun?
  2. knitty kitty
    Get some magnesium citrate or magnesium glycinate to go with your extra thiamine and B Complex. Magnesium helps relax muscles, so those nerve twitches should go away. And magnesium works with thiamine. Athletic people need more thiamine. Like @Blue_Sky said, Theanine in green, oolong and black tea can help relax nerves. I like oolong tea when I...
  3. knitty kitty
    @HectorConvector, Have you heard of the Low Histamine Diet? https://theceliacmd.com/the-low-histamine-diet-what-is-it-and-does-it-work/ I went on the Autoimmune Paleo diet and removed high histamine foods. Nuts (and peanuts) and some fish are high in histamine. Some vegetables like nightshades (tomatoes, potatoes, eggplant and peppers...
  4. knitty kitty
    I have had bad neuropathy when my thiamine and niacin were low. Vitamin C deficiency can cause neuropathy, too. Have you thought about supplementing with a B Complex? Do you include Omega threes in your diet? Healthy fats like in salmon, olive oil, flaxseed oil? Vitamin E? Omega threes are used to make the myelin sheath around nerves...
  5. knitty kitty
    @chocoholic, Have you had any investigation into pernicious anemia? Folic acid supplementation prevents one sign of B12 deficiency, extremely large red blood cells (megaloblasts). Pernicious anemia occurs when the intrinsic factor needed to absorb B12 is not being produced by parietal cells in the stomach because they are being attacked by...
  6. knitty kitty
    "Micronutrients Dietary Supplementation Advices for Celiac Patients on Long-Term Gluten-Free Diet with Good Compliance: A Review" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/ Deficiency of some of the B vitamins (B12, thiamine, niacin, and B6) can cause neuropathy symptoms.
  7. knitty kitty
    "Other than this though, I have felt no improvement with my lethargy and exhaustion, headaches/migraines, major sleep issues, depression, kinked hair texture, super dry skin and general feeling ill." @chocoholic, I'm curious as to why you are taking only folic acid. Folic acid supplementation is known to mask B12 deficiency. B...
  8. knitty kitty
    @HectorConvector, What is included in your diet? Any medications you are currently using? Have you been checked for vitamin and mineral deficiencies?
  9. knitty kitty
    You may be interested in this article about Autoimmune Hives. https://www.healthline.com/health/skin/autoimmune-hives
  10. knitty kitty
    They are not as small as my B12 capsules, nor are they as large as my magnesium supplements. Here's the Lipothiamine that is a very small slippery tablet.... https://www.pureformulas.com/lipothiamine-60-tablets-by-ecological-formulas.html
  11. knitty kitty
    You should have your doctor check you for B12 deficiency again and its intrinsic factor. Your MCV is high, that means your red blood cells are getting bigger like they do with megaloblastic anemia. And your B12 level is on the low end. Some people can experience B12 deficiency symptoms while their B12 level is still within "normal" limits. All those...
  12. knitty kitty
    "tetrahydrofurfuryl disulfide" is the special form of Thiamine that I take. This form of thiamine is called Allithiamine. Thiamine in this form can get into cells more easily. This is what I use.... https://www.pureformulas.com/allithiamine-fat-soluble-b1ttfd-50-mg-capsule-250-capsules-by-ecological-formulas.html?accountid=53000524&CAWELAID...
  13. knitty kitty
    There's a chemical in tomatoes called scopolamine. It affects your brain function, especially if you are deficient in thiamine. "Rats exposed to acute pyrithiamine-induced thiamine deficiency are more sensitive to the amnestic effects of scopolamine and MK-801: examination of working memory, response selection, and reinforcement contingencies" https...
  14. knitty kitty
    I found this study that describes common vitamin deficiencies found in autoimmune thyroiditis. The fat soluble vitamins, Vitamin D, Vitamin E, and Vitamin A, were found to be low, as well as deficiencies in the water soluble B vitamins Thiamine (Vitamin B1), Pyridoxine (Vitamin B6), and B12 (Cobalamine). Remember that the damage to the small...
  15. knitty kitty
    Ginger, Your diagnostic journey sounds like mine. Dismissed with Diabetes and mental health issues for so long, I gave up on doctors. Thiamine deficiency can affect antibody production, so I didn't produce enough antibodies by the time I was tested. But my DNA test shows I have two genes for Celiac Disease. I hope you can get the thiamine...
  16. knitty kitty
    All eight B vitamins and Vitamin C are water soluble. Any excess is excreted in urine. The Recommended Daily Allowance (RDA) was set up eighty years ago at the beginning of World War Two. Many of the men joining the army were so malnourished (during the Great Depression and the Dust Bowl years many people didn't have enough to eat), scientists set...
  17. knitty kitty
    Yes, thiamine levels in the body can vary every day. It depends how much thiamine you ate that day. Maybe one day you eat liver, full of B vitamins and minerals. Your body has a bigger supply of vitamins to work with and you feel better. The foggy brain lifts. The palpitations stop. The neuropathy improves. Blood glucose levels are good. But...
  18. knitty kitty
    @Ginger38, I was diagnosed with insulin resistance, prediabetes, and eventually Type Two Diabetes. I was prescribed Metformin. Metformin is supposed to make our body more sensitive to insulin and by doing so, our body's blood sugar level is lowered. Metformin is a bad drug, in my experience. Metformin uses the same transporters to get...
  19. knitty kitty
    I was diagnosed with insulin resistance, prediabetes, and eventually Type Two Diabetes. I was prescribed Metformin. Metformin is supposed to make our body more sensitive to insulin and by doing so, our body's blood sugar level is lowered. Metformin is a bad drug, in my experience. Metformin uses the same transporters to get into cells as thiamine...
  20. knitty kitty
    @MsssSqueaks, I know of one moderator who used to post that only tested positive on the DPG test. The DPG is frequently positive in children and is acceptable as a confirmation of celiac disease. I may be mistaken, but she had anemia, too. I'm familiar with B12 deficiency occurring after anesthesia. The nitrogen in the anesthesia (nitrous oxide...
  21. knitty kitty
    I'm surprised you didn't know, Scott. "Aspirin-induced gastritis and gastrointestinal bleeding" https://pubmed.ncbi.nlm.nih.gov/6499/ "Acute hemorrhagic gastritis occurs in from 50% to 70% of all patients taking aspirin, is not directly related to dose size, and can be severe enough to cause death in a few cases. No tolerance appears to ever...
  22. knitty kitty
    @MsssSqueaks, Pepto-Bismol contains aspirin, aka salicylates, which causes inflammation and damages gastric mucosal cells. You should reconsider its use. Is your doctor aware you are using it?
  23. knitty kitty
    High dose Thiamine improved my NAFLD and sluggish thyroid... "High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition" https://pubmed.ncbi.nlm.nih.gov/33608323/ And... "Thiamine and Hashimoto's thyroiditis: a report of three cases" https://pubmed.ncbi.nlm.nih.gov/24351023/
  24. knitty kitty
    Have you Googled the side effects of Carafate? constipation, diarrhea, nausea, vomiting, upset stomach, stomach pain, indigestion, gas, dry mouth, sleep problems (insomnia), dizziness, drowsiness, spinning sensation, headache, back pain Aren't these symptoms similar to what you have been experiencing...
  25. knitty kitty
    @Ginger38, I was obese and was always hungry. I had Thiamine deficiency and Small Intestinal Bacterial Overgrowth. The bacteria of SIBO can send chemical messages to the brain requesting more carbohydrates that they feed on. (Creepy, right?) Thiamine is needed to turn carbohydrates into energy. It's easy to eat more carbohydrates than...
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