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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@Lyns5201, Yes, I've had gastritis. Endoscopy revealed small irritated spots in my stomach. My spots healed. I found that taking 1000 mg of Tryptophan helps me. Tryptophan heals the stomach lining and intestines. Our bodies can turn Tryptophan into other chemicals, serotonin and melatonin that also heal the digestive tract. Tryptophan...
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@deanna1ynne, What great questions to ask! 1. Going gluten free without having the genes for Celiac will not harm a person's health, as long as adequate nutritional needs are met. A person who adopts a gluten free diet before their Celiac genes are activated will not be harmed by a nutritionally adequate gluten free diet. Celiac Disease...
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@MitziTremblay, Welcome to the forum! While the dip may be gluten free, dairy and yeast can cause a reaction because they contain protein structures similar to gluten that the Celiac anti-gluten antibodies attack... Similar to the story of the three blind men and the elephant in which one blind man who was led to the elephant's trunk and said...
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Dizziness .... Still??
knitty kitty replied to Estere08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Supplementing before testing for deficiencies will skew the results. For example, supplementing with Folate (Vitamin B9) can mask or hide a deficiency in Cobalamine (Vitamin B12). Since dizziness can be a symptom of B12 deficiency, supplementing before testing would hide this. Talk with your doctor before beginning supplementation. Some doctors... -
Thiamine Thiamine Thiamine
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
Yet another experience post... Having a genetic test for the most common genes that cause Celiac Disease would be what I would choose if in your place. Granted, not every gene for Celiac Disease is known and simply having a gene for Celiac Disease does not mean the gene has been turned on. However, improved health on a gluten free diet and having... -
@penguin11, Having a genetic test for the most common genes that cause Celiac Disease would be what I would choose if in your place. Granted, not every gene for Celiac Disease is known and simply having a gene for Celiac Disease does not mean the gene has been turned on. However, improved health on a gluten free diet and having one or more of...
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@penguin11, Most vegetables are not good sources of B vitamins except for leafy green vegetables like kale, turnip greens, collard greens, beet greens and even broccoli. The best food sources of B vitamins are liver, red meat, pork and fish like salmon. Red meat and liver are excellent sources of iron. Remember, you need all eight B vitamins...
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Interpreting test results
knitty kitty replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@deanna1ynne, You may find these articles and research studies interesting on the connection between vitamins and autism. Relationship between Vitamin Deficiencies and Co-Occurring Symptoms in Autism Spectrum Disorder https://pubmed.ncbi.nlm.nih.gov/32443822/ And... Treatment of autism spectrum children with thiamine tetrahydrofurfuryl... -
Dizziness .... Still??
knitty kitty replied to Estere08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Estere08, Discuss all supplements with your doctor before starting them! Your doctor should test you for deficiencies before starting supplementing, otherwise the tests won't be accurate. The tests will measure the supplements taken. Blood tests for some B vitamins don't accurately reflect deficiencies because most vitamins are used inside... -
Dizziness .... Still??
knitty kitty replied to Estere08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents. One must be very careful and learn where gluten hides and what other foods can cause continuing inflammation (like dairy). I followed the AutoImmune Protocol diet developed by a doctor with Celiac for herself and her family. I found this diet helped me feel better quickly and identify problematic foods more quickly. I found... -
Glow in the Dark Candy
knitty kitty replied to knitty kitty's topic in Gluten-Free Recipes & Cooking Tips
Found some more foods that glow in the dark.... more fun for Halloween! https://sciencenotes.org/food-glows-black-light/ -
Dizziness .... Still??
knitty kitty replied to Estere08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! I've suffered from dizziness. I found several things contributed to my dizziness. Dairy... not only am I lactose intolerant, I cannot tolerate casein. Lactose is the sugar in milk products. Lactose intolerance is common in newly diagnosed Celiac patients. The enzyme (lactase) that digests lactose isn't being produced... -
B-complex vs B-12
knitty kitty replied to Moccajoe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac doesn't directly affect the gallbladder, but thiamine (Vitamin B1) can affect the gallbladder. The gallbladder needs thiamine to make bile and secrete it at meal times. Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies. My symptoms were digestive problems, gallbladder problems, diarrhea, and... -
teen Enough evidence without a scope?
knitty kitty replied to Slj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! Your daughter has symptoms of thiamine deficiency. The sluggish digestive system, tingling in feet (peripheral neuropathy), tender calves and emotional lability are often overlooked symptoms of thiamine deficiency. People who have Hashimoto's thyroiditis and people who have diabetes require more thiamine. Even more so if...- 9 replies
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- ema positive
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B-complex vs B-12
knitty kitty replied to Moccajoe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Please, please, everyone, read this article!!! B Vitamins and the Brain: Mechanisms, Dose and Efficacy—A Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4772032/ Many studies have been done on the supplementation of singular vitamins, frequently B12, or combinations of vitamins like B12 with folate(B9) and maybe including pyridoxine(B... -
B-complex vs B-12
knitty kitty replied to Moccajoe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@Sabaarya, Are you taking your B Complex with meals? Try taking it halfway through your meal and see if that helps you avoid the stomach upset. I suggest taking supplements for three months. -
B-complex vs B-12
knitty kitty replied to Moccajoe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Cobalamine (B12) requires folate (B9) and pyridoxine (B6) to work properly. Pyridoxine works with thiamine (B1). Thiamine works with niacin (B3). Thiamine and pyridoxine like to work with riboflavin (B2). They are all interdependent for proper functioning. By only supplementing B12, a deficiency in folate or pyridoxine could occur. Similarly... -
Healing and Cheating??
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/ -
Healing and Cheating??
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Ginger38 and @icelandgirl, There is evidence that a deficiency of Thiamine (Vitamin B1) can be part of the triggering mechanism of Celiac Disease. Celiac Disease presenting after an illness, pregnancy, or traumatic experience is known. These are also the same things known to use up lots of thiamine. If a person is low on thiamine to begin with... -
@Lyns5201, So sorry to hear what a rough time you're having. Let's keep in mind that Celiac Disease damages the small intestine making absorption of vitamins and minerals difficult. Vitamin deficiencies can impact our health in many ways. Our bodies use vitamins to make other chemicals and enzymes that help our bodies function properly and heal...
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@Annieoh, I'm very glad you are feeling better. You're very lucky to live in California. I'm curious if airborne wheat in the marshmallow factory was the problem. Keep us posted on your progress! Best wishes for a speedy recovery!
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Healing and Cheating??
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Oldturdle, Thank you. Yes, I have a degree in microbiology. I've studied extensively vitamins and nutrition as well. -
Healing and Cheating??
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac people who become more and more sensitive and their symptoms become worse with less gluten required to trigger symptoms may be well before that two year gluten free mark. This frequently occurs when patients trying to get a diagnosis go gluten free before all their diagnostic tests are completed. They have to resume consuming gluten in order... -
Healing and Cheating??
knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Ginger38, The villi in our digestive tract can start growing back in as little as two weeks, but the damage to the underlying tissues can take much much longer to heal. Even after many years on the gluten free diet, microscopic damage in the underlying tissues can still be seen. About cheating, we've all fallen short....But...every time we...