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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by knitty kitty
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Lower left back pain
knitty kitty replied to Beverley Ann Johnson's topic in Related Issues & Disorders
Beverly, Have you been checked for SIBO? Intestinal bacteria can ferment and feed on carbohydrates that aren't digested thoroughly which can result in lots of gas, bloating and pain. I've had this, and the pain was constant. Adopting a low or no carbohydrate diet like the Autoimmune Protocol Diet can help starve out these bad SIBO bacteria... -
@KKMom, Welcome to the forum! So sorry you feel poorly. It's good that you are seeing a dietician soon. Gluten can act as an opioid. Once gluten free, you can feel really run through the wringer. While you're healing, you may benefit from eating easy to digest foods, soups and stews. You might find dairy causes problems. Some of us...
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Lower left back pain
knitty kitty replied to Beverley Ann Johnson's topic in Related Issues & Disorders
Hello! I get lower left back pain in some instances of constipation or bad gas, but also when I have a flare up of diverticulitis. A daily prune or two can help if it's constipation from the quinoa. If you think it's worse and the pain doesn't leave with a bowel movement, consult your doctor. A colonoscopy might be useful in spotting diverticulosis... -
@sae0693, Ptosis can be a symptom of Thiamine deficiency, as well as fatigue, depression and anxiety. I've experienced all this myself. The bloating can be caused by Small Intestinal Bacterial Overgrowth. Thiamine usually keeps these carbohydrate-loving bacteria in check, but without plenty of Thiamine, the nasty buggers spread into the small...
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I've learned that one is supposed to take six to eight weeks off vitamin supplements before testing for deficiencies. Most B vitamins can be stored for that long, however, in thiamine deficiency, your thiamine stores can be depleted in as little as nine days. So, no wonder @Wheatwacked starts to feel sick without them by day 10. Blood tests can reflect...
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Hey, Red! I found Vitamin D, magnesium, and a B Complex supplement and some extra Thiamine (Vitamin B1) in the form of Allithiamine very helpful. (Inositol needs the eight essential B vitamins in the B complex to work properly. Celiac Disease damages the part of the small intestine where the B vitamins are usually absorbed...so supplementing...
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@Jennnnnn, Definitely, yes, there's a grieving process that many of us go through. You're not alone. We're here to support each other. I went on the Autoimmune Protocol diet, a Paleo diet, (it has a vegetarian version), that's been proven to promote healing in the intestines. The AIP diet was developed by a Celiac doctor with Celiac children...
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@Jennnnnn, Welcome to the forum! I've found an interesting article for you. Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I suffered from panic attacks when glutened. I had vitamin and mineral deficiencies that contributed to my mental...
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I think my daughter has celiac
knitty kitty replied to Aries213's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum! Some Celiacs are serionegative. Some have diabetes or anemia which affects their antibody production. Since your daughter is already having symptoms, assuming her Celiac genes are active is a safe assumption. Has your daughter been checked for vitamin and mineral deficiencies? Checking for nutritional deficiencies is part... -
Salicylates, My Heart Pounding Anxiety
knitty kitty replied to BobbyKat LittleCub's topic in Food Intolerance & Leaky Gut
I found this interesting article... Correlations of the components of tea tree oil with its antibacterial effects and skin irritation https://www.sciencedirect.com/science/article/pii/S1021949813000082 Seems like tea tree oil is pretty harsh. Facial redness with Celiac Disease could be a sign of vitamin deficiencies or Dermatitis Herpetiformis... -
Thiamine Thiamine Thiamine
knitty kitty replied to knitty kitty's topic in Related Issues & Disorders
Because Allithiamine and Benfotiamine are fat soluble, they get into the cells differently than thiamine HCL, so you might find a lower dose of these works for you. I really had to be a guinea pig and try different amounts. I have Type Two Diabetes, (diabetics are low in thiamine), so currently I take Benfotiamine, 250 mg per capsule with thiamine... -
Lily, Can you give us examples of the assignments you were given? What's your major? Why are you taking this class?
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@marcel g Your Vitamin B12 test may have shown up normal because B12 is in your multivitamin or your recently added B Complex. Blood tests are not accurate measurement of vitamins within the cells where they are used. Blood tests can reflect vitamins consumed from vitamin supplements or the diet in the previous twenty-four to forty-eight hours...
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Research about Thiamine, Celiac and personal experiences
knitty kitty posted a blog entry in Thiamine Thiamine Thiamine
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Celiac Irritability/Rage
knitty kitty replied to ELizardBreath's topic in Related Issues & Disorders
@ELizardBreath, You might find helpful information at Dr. Derrick Lonsdale's site. Dr. Lonsdale has done lots of research on Thiamine deficiency and also Autism. His research has certainly helped me. https://www.hormonesmatter.com/high-folate-vitamin-b12-low-thiamine-autism/ Irritability and nausea are symptoms of thiamine deficiency. ... -
Yah, @trents, I'm flabbergasted, too. @lilyvance21, You bought an essay???!!!??? You are shortchanging yourself on your education. In my day, turning in work that was done by someone else was grounds for expulsion. Learn how to learn. You would be much better off learning HOW to do research and how to write papers.
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Gluten Challenge Question
knitty kitty replied to JamesF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Found another article.... Neurologic and Psychiatric Manifestations of Celiac Disease and Gluten Sensitivity https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I took high dose Thiamine (Vitamin B1), (more than 500 mg of thiamine HCl a day), so that my brain would function properly. I had improvement within hours of thiamine... -
@Gerard S, You said "My body goes into a shock like state, trembling and freezing cold..." And... "Uncontrolable shaking, freezing cold sweats, no control over my body movements and certainly no control of my motions." My blood glucose levels can plummet after exposure to gluten causing those symptoms. I was wondering if you might have low blood...
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Gluten Challenge Question
knitty kitty replied to JamesF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@JamesF, You could do a genetic test for the most common Celiac genes. You don't need to be eating gluten for a genetic test. Although having the genes doesn't necessarily mean that the Celiac genes are active, but given your reaction to gluten consumption, I would say the genes are active. Some doctors will accept a positive genetic test and a positive... -
Identifying Rash and Treatment Option
knitty kitty replied to HansG's topic in Dermatitis Herpetiformis
Hello, I was wondering if you had been tested for diabetes. I found this interesting article.... Association of Granuloma Annulare With Type 2 Diabetes, Hyperlipidemia, Autoimmune Disorders, and Hematologic Malignant Neoplasms https://pubmed.ncbi.nlm.nih.gov/34106218/ And this one.... Response of generalized granuloma annulare... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@HectorConvector, Are you taking any L-glutamate supplements or shakes or anything with MSG in it? Here's a thread that explains how L-glutamate may trigger a reaction like gluten does. -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
@HectorConvector, Have you been checked for Lyme Disease? Lyme Disease has been known to cause nerve damage and worsening symptoms when carbohydrates are consumed. The AutoImmune Protocol Diet is recommended for symptom relief. Recent Progress in Lyme Disease and Remaining Challenges https://www.frontiersin.org/articles/10.3389/fmed.202... -
Thyroid problems, effects of celiac, or something else?
knitty kitty replied to Lou24's topic in Related Issues & Disorders
Jays, I thought you might be interested in these articles. They show that gout and rheumatoid arthritis can be improved with Thiamine supplementation. Long-Term Treatment by Vitamin B1 and Reduction of Serum Proinflammatory Cytokines, Hyperalgesia, and Paw Edema in Adjuvant-Induced Arthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5... -
Optivia weight loss diet
knitty kitty replied to Miska's topic in Gluten-Free Foods, Products, Shopping & Medications
You should show this article to your husband and son. https://www.healthline.com/nutrition/optavia-diet?c=207111119#downsides "Specifically, these products contain large amounts of food additives, sugar substitutes, and processed vegetable oils, which may harm your gut health and contribute to chronic inflammation. Carrageenan, a common thickener...