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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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I recently stumbled across this book..... http://doctorkatend.com/vitamin-k2-and-the-calcium-paradox/ This book explains the difference between Vitamin K1 which is involved in blood clotting and Vitamin K2 which is required in bone formation. So not only do we need Vitamin D and Vitamin A, we need Vitamin K2 and calcium to make our bones...
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We're really getting off track here, @yuluyouyue. Perhaps we should start another post with this topic. Grocery deserts are places where fresh veggies and fruits are not available at local stores. In some big cities, convenience stores selling processed (mostly junk food like chips and sodas) are abundant, but proper grocery stores selling fresh...
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Question about WK Dicke's Studies
knitty kitty replied to lanlanonearth's topic in Introduce Yourself / Share Stuff
@lanlanonearth, Have you looked at these? http://www.google.com/search?q=W+K+Dicke+nih&oq=W+K+Dicke+nih&aqs=heirloom-srp.. And... https://en.m.wikipedia.org/wiki/Operations_Manna_and_Chowhound http://operationmanna.secondworldwar.nl/john-papenhuyzen.php http://www.godutch.com/newspaper/index.php?id=282 -
The AutoImmune Protocol diet (AIP diet) advocates for cutting the highly processed foods from the diet while the intestines are healing. The AIP diet suggests fresh meat and fresh veggies and some fresh fruits. No dairy, no eggs, no nuts, no seeds, no grains, no legumes. All these can be hard on a tender healing digestive tract. Then gradually...
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@Clairet3, You may want to call the doctor's office and ask how quickly your son could be scheduled for having the procedure done. Being put on the doctor's cancellation list is another option. Emphasize the severity of gluten reintroduction symptoms if he is allowed to wait weeks or months. A minimal amount of gluten (two slices of wheat bread...
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DH? treating for scabies after 1mo
knitty kitty replied to drobs's topic in Dermatitis Herpetiformis
Yes, those spots and the fact that they appear symmetrically on your body make me highly suspicious of DH. Glad you're not eating shellfish! Iodized salt gets me breaking out, so I switched to Himalayan Pink salt. Do ask your doctor about your Vitamin B12 (Cobalamine) level. B12 acts as a natural antihistamine and the vegan diet is notoriously... -
@Clairet3, Welcome to the forum! How long has your son been off gluten??? I'm on the fence about having a small child undergo an endoscopy. Numbers being so high don't correspond necessarily to the amount of damage in the small intestine, yet having a baseline is a valuable asset for future reference in reference to healing time and nutritional...
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DH? treating for scabies after 1mo
knitty kitty replied to drobs's topic in Dermatitis Herpetiformis
@drobs, Welcome to the forum! Thanks for joining! A DH flare can get worse when we consume lots of iodine. Iodine is in dairy products, eggs, and shellfish (crustaceans like shrimps and crabs, and mollusks like oysters). Even iodized salt can contribute to a DH flare. Just wondering if you recently consumed any of these foods. Also curious... -
@AlohaMaMa, I suffered from painful neuropathy in my legs before we figured out the Celiac thing. There were days when I had foot drop and pain so severe I could barely walk. It turned out I was deficient in vitamins and minerals. Celiac Disease causes malabsorption which results in malnutrition. My doctors weren't familiar with nutritional deficiency...
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@Kellie44, I sympathize with your daughter. I have cracked a molar while eating a hamburger. It's a horrible experience. I can't really answer your question, but.... I recently discovered this book.... https://www.harpercollins.com/products/vitamin-k2-and-the-calcium-paradox-kate-rheaume-bleue?variant=32217980993570 It's about how...
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Newly Diagnosed Help!
knitty kitty replied to Jen8584's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Found these articles on what helps recovery from Covid.... "The prophylaxis and treatment potential of supplements for COVID-19" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7462519/ And... "Be well: A potential role for vitamin B in COVID-19" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/ And... https://www.hormonesmatter... -
Joe, I have great respect for you for being a hospice nurse! I had a hysterectomy before being diagnosed as Celiac, too. And I have osteoporosis already, too. I gave up dairy a long time ago (casein allergy and lactose intolerance), also before Celiac diagnosis. Obviously I didn't absorb enough calcium, either. Over time I've had a broken...
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There's a difference between regular flour, cake flour and bread flour. The difference is in the amount of gluten that will link with other gluten molecules. Bread flour has the most gluten linking resulting in those big bubbles or hollow spaces that capture the gas produced by yeast when rising and baking, resulting in chewy bread or pizza crusts...
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Hi, joe! You didn't say.... 1000 mg of what...? If it's thiamine, yes, do get the shots. You can still take the OTC thiamine on the other days. Are you having menstrual problems? Why the steroid and estrogen hormone? Information about magnesium... https://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/ And thiamine...
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@Jackie Garrett, Thiamine helps our bodies get rid of histamine. Thiamine can prevent our mast cells from degranulation and prevent more histamine from entering our systems. There is a world wide depletion of Thiamine in the plants and even in the animals we eat. Scientists have been studying die-offs of fish and the birds that feed on them...
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Hurrah! Isn't it astounding how quickly Thiamine works???!!! Thiamine will help to take the B12 out of your blood stream and into liver storage and into its proper functions. B12 needs thiamine and riboflavin, pyridoxine and folate (B2 and B6 and B9) to do all its functions. That's why it's important to take a B Complex supplement with the...
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Moccajoe, I'm so glad you found the articles informative! I started feeling changes within a few minutes, but several weeks passed before I really felt "back to normal", but I was severely deficient. How long it takes for you to feel better depends on how deficient you are. Everyone is different, but in the case reports I've read, patients...
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@Buddie33, Welcome to the forum! Please read my previous post! Thiamine has been shown to help Parkinson's disease, too. Good dietary sources of thiamine are liver and meat. Veggies, fruits and dairy are poor sources of thiamine. Thiamine is needed to digest proteins, fats, and carbohydrates. If you don't have enough Thiamine...
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Welcome to the forum! The symptoms you mentioned -weakness, fatigue, shortness of breath, memory problems, tingling in extremities, and tachycardia - all are symptoms of Thiamine insufficiency. Even the UTI can be a symptom of Thiamine deficiency. Severe Infections are Common in Thiamine Deficiency and May be Related to Cognitive Outcomes...
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Am I really bipolar or just celiac?
knitty kitty replied to Frenzy's topic in Related Issues & Disorders
@Frenzy, Welcome to the forum! I agree with @trents. Deficiencies in certain vitamins can cause alterations in brain function. Deficiency in Vitamin D can cause depression. I know from experience. I was extremely deficient in Vitamin D. I took D3 and the black cloud over me started to lift rather quickly. Deficiencies in other... -
Gas with yellow jelly
knitty kitty replied to Malc1155's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Malcolm, Yep, mucus alone between meals or after a meal. Incontinence of mucus on some occasions. Yuck! Yep, explosive gas...had to check to make sure the toilet hadn't cracked beneath me. Ahem... Can you get a DNA test? Some companies do DNA testing thru the mail. It's been my experience that doctors will blow you off if they don... -
82 year old father with celiacs.
knitty kitty replied to Joel Wells's topic in Coping with Celiac Disease
Having a ravenous appetite (or conversely having none at all) is a symptom of Thiamine insufficiency. It's our bodies' way of trying to correct the deficiency, by turning up the appetite. Thiamine is needed to turn all those sugary sweets into energy. Give him 100 - 200 mg thiamine at every meal and snack! Thiamine is in meat. Get your dad... -
Me! I'm a big fan of Vitamin D level up in the 80's! My reaction to gluten is much less severe when gluten contaminated. I just plain old feel better, too!
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Help for extreme fatigue and stomach pain.
knitty kitty replied to Lynn Glueck's topic in Related Issues & Disorders
Here are some articles about thiamine you might find applicable.... "11 Signs and Symptoms of Thiamine (Vitamin B1) Deficiency" https://www.healthline.com/nutrition/thiamine-deficiency-symptoms And.. "Rare Presentation of Thiamine Deficiency as Gastrointestinal Syndrome" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4175961/ And... -
Nausea
knitty kitty replied to Lexi307's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@Lexi307, Welcome to our forum! Nausea can be an early symptom of Thiamine insufficiency. Thiamine is Vitamin B1. Since changing to a gluten free diet, you may not be getting enough Thiamine in your diet. Have you been referred to a dietician or nutritionist as part of follow up care for Celiac Disease? A nutritionist can give you advice...