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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    When I've had ataxia, I've been very uncoordinated and awkward trying to do everyday tasks, too, but I've found that doing something involving muscle movement memory is much more successful. Dancing would involve muscle movement memory, as would knitting. I knit really plain socks when I have ataxia, instead of the delicate lace knitting I love...
  2. knitty kitty
    @Lou24, I went through very similar symptoms, being misdiagnosed and told it was all in my head for most of my life. It's not all in our head. It's what's NOT in doctors' heads. Doctors don't think of vitamin deficiencies as causes of symptoms like we have. Doctors are trained to prescribe pharmaceuticals in medical institutions funded by pharmaceutical...
  3. knitty kitty
    @victoriayatesxo, What are the ingredients of your multivitamin and iron supplements? What do you include in your strict gluten free diet?
  4. knitty kitty
    The MTHFR genes mean they need the methylation forms of certain vitamins like methylcobalamine and methylfolate.
  5. knitty kitty
    Copper deficiency? Idiopathic Copper Deficiency Induced Myeloneuropathy https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8528345/ And... Burning Foot Syndrome” due to Acute Copper Deficiency Myeloneuropathy after Bariatric Surgery https://n.neurology.org/content/92/15_Supplement/P2.6-062 P. S. Take some Vitamin C. I hope you f...
  6. knitty kitty
    That's really interesting! I've recently been reading about anemia unresponsive to iron supplementation therapy actually may be copper deficiency. Thiamine needs Magnesium to work properly, a co-factor. Having Magnesium deficiency can affect how well the body can utilize Thiamine. Thiamine is needed to make different types of blood cells. ...
  7. knitty kitty
    Hello, @Rogol72, What a nice topic to discuss! Yes, there's a link between mast cells, histamine intolerance and thiamine deficiency. Using your smoked fish episode as a starting point.... Smoked foods contain sodium sulfite which triggers mast cell degranulation. Sodium Sulfite-Induced Mast Cell Pyroptosis and Degranulation https...
  8. knitty kitty
    Constipation is a symptom of Thiamine Vitamin B1 deficiency. Magnesium will help because it works with thiamine, but thiamine is needed also. This article explains how thiamine deficiency effects the part of the brain that controls automatic body functions like pooping. https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency...
  9. knitty kitty
    Ataxia is a symptom of Thiamine Vitamin B1 deficiency. Paresthesia and neuropathy are more symptoms. Magnesium and thiamine work together, too. Thiamine works with the other seven essential B vitamins. Taking a B Complex, Vitamin D and magnesium are great ways to ensure our bodies get plenty of the building blocks needed for health.
  10. knitty kitty
    @victoriayatesxo, Welcome to the forum! Have you been checked for all types of anemia? Anemia can cause fatigue and somnolence. I've slept through ambulances, fire trucks, tornado sirens, etc. when I've been anemic. The medication you mentioned is prescribed to people with ADHD and people with ADHD can benefit from taking extra thiamine...
  11. knitty kitty
    Microbial transglutaminase is used in ice cream as a texture enhancer. It is technically an enzyme and part of the production process and as such is not required to be listed as an ingredient on the label. Microbial transglutaminase is used in baked goods, yogurt, ice cream, and processed foods, in both gluten free and nongluten-free foods.
  12. knitty kitty
    @Mombles, Welcome to the forum! The poop situation may be a result of fats not being properly digested. Usually the gall bladder releases bile that contains enzymes that break down fats. When it doesn't have enough Vitamin B1 Thiamine, the gall bladder doesn't make and secrete bile properly. Remember, Celiac Disease damages the small intestine...
  13. knitty kitty
    Sirenna, Yes, they can all be related to Celiac Disease. Reflux oesophagitis in adult coeliac disease: beneficial effect of a gluten free diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1773586/ (Includes information on hiatal hernias) And... An Update on Eosinophilic Esophagitis: Etiological Factors, Coexisting Diseases...
  14. knitty kitty
    Welcome to the forum, @Sirenna! Yes, sometimes getting a diagnosis can be frustrating and time consuming. Seems most doctors have outdated concepts of Celiac Disease. If you Google "African Americans with Celiac Disease nih", results show several studies from the National Institute of Health. Like this one.... Celiac Disease and the...
  15. knitty kitty
    Chronic diarrhea can be a symptom of vitamin deficiencies. Vitamin B12 deficiency can cause diarrhea and even brain health changes before a deficiency can be detected in a blood test. https://www.nhlbi.nih.gov/health/anemia/vitamin-b12-deficiency-anemia And... Diarrhea and novel dietary factors emerge as predictors of serum vitamin B...
  16. knitty kitty
    That article says of the infant "Her mother attempted to reintroduce cow milk on the 59th and 64th day, but this was immediately followed by allergic manifestations which supported the diagnosis of cow milk allergy." Cow Milk allergy is an allergic reaction to the protein casein in milk. NOT because the milk had lactic acid, but because of the...
  17. knitty kitty
    Here's an article or two that might help.... DIET IN DERMATOLOGY: PRESENT PERSPECTIVES https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2965901/ And... https://www.hmpgloballearningnetwork.com/site/podiatry/when-vitamin-and-nutritional-deficiencies-cause-skin-and-nail-changes And.... Hidden Hunger: A Pellagra Case Report https...
  18. knitty kitty
    I'm curious about your UBO's on your MRI. Dr. H.'s article talks about ataxia and MRI changes, but doesn't mention thiamine deficiency. Thiamine deficiency can cause bright spots on MRIs. Just curious if your bright spots might be caused by thiamine deficiency as well. Vestibular signs of thiamine deficiency during the early phase of suspected...
  19. knitty kitty
    Ehlers-Danlos syndrome?
  20. knitty kitty
    The inability to put on weight is a symptom of thiamine insufficiency. Interestingly, packing on excess fat can also be a symptom of thiamine insufficiency. Turning carbohydrates into fat when thiamine is low is the body's way of saving thiamine. The body burns fat as it's energy source when it's trying to be thrifty with low thiamine levels, too. Peripheral...
  21. knitty kitty
    Yes. Exercise uses a lot of Thiamine to provide energy for all that muscle movement. When thiamine starts to run short, the body switches from aerobic means of burning energy to an anaerobic means that leaves lactic acid behind. This lactic acid build up is known as "the burn" as in the catch phrase "feel the burn". Normally, resting after exercise allows...
  22. knitty kitty
    @HectorConvector, The AutoImmune Protocol diet would really help in pinpointing which foods are problematic and what is upsetting your system. The AIP diet includes meat and fish and vegetables. The AIP diet excludes all grains, corn, rice, eggs, dairy, legumes, beans, nuts, seeds, some fruit, and nightshade vegetables (potatoes, tomatoes, peppers...
  23. knitty kitty
    @HectorConvector, Are you eating fresh fish or canned fish? Canned fish as well as smoked fish and all kinds of crustaceans have high levels of histamine. You might try fresh or frozen fish. Do cut out the dairy. Did the Apple pie have High Fructose Corn Syrup? Fructose malabsorption can cause problems. Make sure you are getting...
  24. knitty kitty
    Supplementing with the eight essential B vitamins can help stop gluten cravings. Wheat products are required by law to be enriched with vitamins and minerals lost in processing. In other words, wheat products have vitamins added to them. Celiac Disease damages the small intestine where the B vitamins are normally absorbed. We often do not get...
  25. knitty kitty
    @Charlia Daisey, Does your daughter have low Vitamin D? The Relationship between Vitamin D Status and the Menstrual Cycle in Young Women: A Preliminary Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6265788/
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