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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Malcolm, Yep, mucus alone between meals or after a meal. Incontinence of mucus on some occasions. Yuck! Yep, explosive gas...had to check to make sure the toilet hadn't cracked beneath me. Ahem... Can you get a DNA test? Some companies do DNA testing thru the mail. It's been my experience that doctors will blow you off if they don...
  2. knitty kitty
    Having a ravenous appetite (or conversely having none at all) is a symptom of Thiamine insufficiency. It's our bodies' way of trying to correct the deficiency, by turning up the appetite. Thiamine is needed to turn all those sugary sweets into energy. Give him 100 - 200 mg thiamine at every meal and snack! Thiamine is in meat. Get your dad...
  3. knitty kitty
    Me! I'm a big fan of Vitamin D level up in the 80's! My reaction to gluten is much less severe when gluten contaminated. I just plain old feel better, too!
  4. knitty kitty
    Here are some articles about thiamine you might find applicable.... "11 Signs and Symptoms of Thiamine (Vitamin B1) Deficiency" https://www.healthline.com/nutrition/thiamine-deficiency-symptoms And.. "Rare Presentation of Thiamine Deficiency as Gastrointestinal Syndrome" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4175961/ And...
  5. knitty kitty
    @Lexi307, Welcome to our forum! Nausea can be an early symptom of Thiamine insufficiency. Thiamine is Vitamin B1. Since changing to a gluten free diet, you may not be getting enough Thiamine in your diet. Have you been referred to a dietician or nutritionist as part of follow up care for Celiac Disease? A nutritionist can give you advice...
  6. knitty kitty
    Mast Cell degranulation has been connected to thiamine deficiency! A scientific study.... "Increased mast cell degranulation within thalamus in early pre-lesion stages of an experimental model of Wernicke's encephalopathy" https://pubmed.ncbi.nlm.nih.gov/10411347/ And an article by Dr. Derrick Lonsdale, leader in thiamine deficiency studies...
  7. knitty kitty
    @Malc1155, Welcome to the forum! I've had that yucky mucus, too, usually after eating a fatty meal. I agree with @GodsGal. Keeping a food/mood/poo'd dairy will help pinpoint problematic foods. The gallbladder secretes bile to help digest fats. Sometimes the gallbladder doesn't secrete enough bile. The gallbladder is located in the upper...
  8. knitty kitty
    What type of gluten free diet is your daughter consuming? I had excellent results on the AutoImmune Protocol diet. It is basically a meat and veggies diet. It excludes legumes (beans), nuts and seeds, and grains, even gluten free "safe" grains, and nightshades (potatoes, tomatoes, peppers and eggplants), dairy and eggs. "AIP (Autoimmune Protocol...
  9. knitty kitty
    I'm posting this article here for future readers who may have questions about the connection between Celiac and other Autoimmune diseases. "Celiac Disease and Autoimmune-Associated Conditions" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3741914/#sec3title
  10. knitty kitty
    Have you read about the side effects of dicyclomine? I did not like the side effects. I felt like a zombie. Gabapentin might be a better choice. Not a doctor, not medical advice, just my personal experience. https://www.drugs.com/tips/dicyclomine-patient-tips Vitamin deficiencies can develop on the Gluten Free Diet. GERD...
  11. knitty kitty
    I was curious and found some articles about IC being connected to Mast Cell Activation Syndrome. Mast cells are responsible for allergic reactions. Mast Cell Activation Syndrome (MCAS) https://www.aaaai.org/conditions-treatments/related-conditions/mcas Mast cell activation syndrome https://www.ncbi.nlm.nih.gov/pmc/articles/PMC...
  12. knitty kitty
    Keep in mind that both Vitamin D and B12 can be stored in the liver for long periods of time. By the time these two vitamins show as deficient, other deficiencies may exist as well. It's rare to have a deficiency in just one or two vitamins. The eight B vitamins all work together. They are water soluble. B12 is the only one that can be stored for...
  13. knitty kitty
    I begged my doctor to test for Vitamin D deficiency. He only agreed after ascertaining that my insurance would cover the cost. My Vitamin D level turned out to be so low it surprised my doctor. I remember him saying "Dead people had higher Vitamin D!" He promptly prescribed synthetic Vitamin D2 which didn't work as well as natural D3. When I begged...
  14. knitty kitty
    I found some research that explains that the thiamine transporter gene is turned off during thiamine deficiency and that genes for autoimmune diseases on the same chromosome begin to turn on. Autoimmune diseases such as Celiac, MS, Crohn's, Diabetes (Type I and II).... It's in the Thiamine, Thiamine, Thiamine post.... What I found most disturbing...
  15. knitty kitty
    @MiriCatLady, Yes, I think they are linked. Emotional stress can cause a higher demand for energy. The brain uses as much energy thinking as doing physical labor. Without enough thiamine (Vitamin B1) to provide that energy derived from our food, depression, anxiety and PTSD and a host of autoimmune diseases can occur. I suggest you start...
  16. knitty kitty
    Here's something to help answer one of your questions... Neurological manifestations, diagnosis, and treatment of celiac disease: A comprehensive review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3829244/
  17. knitty kitty
    Yes, my DH got worse with exposure to the sun. DH is pressure sensitive. Have you tried sleeping on the other side of your head? I would get DH blisters on the palms of my hands after pushing the grocery carriage through the store. And I would get DH blisters under any elastic in my clothing (bra, undies, waistbands, etc.). Also I had...
  18. knitty kitty
    @ChessFox, I am so happy that you are seeing benefits from thiamine! Thank you for sharing your results with us on the forum! You may need to add a Vitamin C supplement. Vitamin C is a histamine destroyer. I take Nature's Way brand Sambucus Elderberry Gummies (has flavonoids that help Vitamin C) and a Vitamin C supplement (500mg). Another...
  19. knitty kitty
    @ScrAlex, We're glad to have you here now! And very glad you beat Covid! I find Oolong tea helpful when I get anxious or upset tummy. I like Twinings brand. I order it online from that big a store. 🐱
  20. knitty kitty
    @FitnessMom, Does your rash get worse when exposed to the sun? Welcome to the forum!
  21. knitty kitty
    Welcome to our forum! This thread is rather old. The original posters might not answer. I'm assuming you've been diagnosed with Celiac Disease. Please remember that Celiac Disease causes malabsorption because of the damage to the villi in the small intestine. The damaged villi can't absorb all the vitamins and minerals that you need. This can...
  22. knitty kitty
    @Djd27, Has your B12 level been checked recently? How about your Vitamin D level? Low B12 and low Vitamin D can affect your thyroid. Vegetarian diets are notorious for being low in certain vitamins and minerals. Here's some articles to provide more information.... Vitamin B12 deficiency common in primary hypothyroidism https://pubmed...
  23. knitty kitty
    @Jackie Garrett, You might find some benefit if you read up on Mast Cell Activation Syndrome. Our food contains histamine. Our bodies can make histamines. And the bacteria in our guts can make histamines! Vitamin C, Thiamine (B1) and Pyridoxine (B6) can help our bodies get rid of excessive histamine. Vitamin deficiencies can be present whether...
  24. knitty kitty
    @ChessFox, B12 is a special B vitamin. All the B vitamins are water soluble, but B12 can be stored in the liver for long periods of time. The other B vitamins are not stored this way. You may have replenished the store of B12 in your liver since you've been taking it several months now. Higher doses which caused your itchy skin and headaches...
  25. knitty kitty
    Thank you, @ChessFox. Much as I would like to say that all the damage from thiamine deficiency is reversible, I can't. Thiamine deficiency symptoms often aren't recognised as such until the symptoms get severe and the risk of permanent damage is at its highest. In my case, I have acalculia (I can't do math) and my memory is fuzzy about events...
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