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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Let us know how it goes! All my best!
  2. knitty kitty
    Thiamine is safe and nontoxic even in high doses. It can't hurt to try.
  3. knitty kitty
    Dysphagia is the term for swallowing problems. It can be caused by Thiamine deficiency. Thiamine is Vitamin B1. Celiac Disease is a disease that causes malabsorption of vitamins and minerals. Wernicke's-Korsakoff syndrome is a severe form of Thiamine deficiency, often associated with alcoholism, but seen in malabsorption. "Severe dysphagia...
  4. knitty kitty
    Jenny, Your daughter's symptoms sound like mine when I was experiencing Gastrointestinal Beriberi. Gastrointestinal Beriberi is a result of a deficiency of thiamine (Vitamin B1). Thiamine is required to provide energy to the body. Thiamine is water soluble. Thiamine can only be stored for a few weeks. Thiamine deficiency can occur in as little...
  5. knitty kitty
    Scott, The initial low vitamin state may come about because of several factors. High calorie malnutrition: A diet high in carbohydrates and not enough nutrients from other dietary sources can lead to vitamin insufficiencies. The Standard American Diet is high in carbohydrates and fats, both of which require thiamine to change them into energy...
  6. knitty kitty
    @Alan12345, Your symptoms are not caused by gluten contamination. Tobacco is a member of the Nightshade family of plants. Nightshades such as eggplants, tomatoes, potatoes, and peppers contain alkaloids which encourage leaky gut syndrome. Not that you're eating cigarettes.... Tobacco acts as an antihistamine. Antihistamines are used...
  7. knitty kitty
    Some interesting reading... Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6739701/
  8. knitty kitty
    Yes,you do have to learn to be your own advocate. But there's lots of knowledge and experience here to help and encourage you.
  9. knitty kitty
    That pain in the left side sounds similar to where I get pain with diverticulitis. I agree with @trents and @Christiana. You need to go back to the doctor. You also need to point out to your doctor your history of alcohol. You may have gastrointestinal beriberi caused by a deficiency in thiamine. Alcohol prevents the absorption of thiamine...
  10. knitty kitty
    Vitamin D2 does not have as great a bioavailability as D3. I'm allergic to fish and shellfish, so I couldn't take Vitamin D3 sourced from fish, like cod liver oil. Some Vitamin D3 is derived from lanolin in wool, not good if you're allergic to wool. The Vitamin D3 I like is this one... https://www.naturewise.com/products/vitamin-d3-1000-iu-supplements ...
  11. knitty kitty
    Yes, the amino acid L-Lysine. I started supplementing with Lysine because I frequently got cold sores. I used to take Lysine just when I had a cold sore outbreak, but I researched more on Lysine and found it keeps the cold sore virus at bay and also helps with anxiety and depression if taken regularly. Passion flower extract was a big help. It is...
  12. knitty kitty
    Ask for the erythrocyte transketolase test for thiamine deficiency. It's more accurate than a blood test.
  13. knitty kitty
    Forgot this.... https://www.merckmanuals.com/home/disorders-of-nutrition/vitamins/thiamin-deficiency
  14. knitty kitty
    Other vitamins are needed to make blood cells. You need B12, and also Riboflavin B2 and Folate B9 and Pyridoxine B6. Celiac Disease causes malabsorption which can result in subclinical or clinical vitamin deficiencies. You might want to ask your doctor about adding a B Complex with all eight B vitamins to your diet.
  15. knitty kitty
    I'm glad your blood work came back without deficiencies, however I must point out that B12, iron and Vitamin D can be stored for long periods of time. Magnesium is stored in bones for long periods, too. There are Eight different vitamins in the group of B vitamins. Thiamine, riboflavin, niacin, pyridoxine, and folate are not stored in the body for...
  16. knitty kitty
    @selectivefocus, You said "Celiac also increases issues with the pancreas and enzyme production. My enzymes were super low when my allergist tested, and my celiac 9 year old had the same issue." Thiamine is needed to make many of those enzymes. Every cell in your body and brain needs thiamine. Thiamine is used in large amounts in the pancreas...
  17. knitty kitty
    I experienced dysphagia (difficulty swallowing) as a symptom of Thiamine deficiency. Doctors don't recognize thiamine deficiency outside of alcoholism. Severe dysphagia as the presenting symptom of Wernicke-Korsakoff syndrome in a non-alcoholic man https://pubmed.ncbi.nlm.nih.gov/18379741/ And... A difficult diagnosis to swallow https...
  18. knitty kitty
    Ask your doctor to consider "Gastrointestinal Beriberi" as the correct diagnosis. Examples of cases.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6040496/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6978589/ I lost sixty pounds in a month because of gastrointestinal beriberi...
  19. knitty kitty
    It's magnesium deficiency! "7 Signs and Symptoms of Magnesium Deficiency" https://www.healthline.com/nutrition/magnesium-deficiency-symptoms Muscle twitches and cramps as well as heart palpitations and anxiety are all symptoms of magnesium deficiency. I have experienced this myself. I've been in the emergency room throwing PCVs, anxiety...
  20. knitty kitty
    No, iodine by itself can trigger DH to flare. Gluten does not have to be present. It's the gluten antibodies your body has made, already in your system, that aggregate into the DH lesions. These gluten antibodies continue to be produced and linger in your system for eighteen months to two years after an exposure to gluten. DH is also pressure sensitive...
  21. knitty kitty
    DH will flare up if you eat iodine. Iodine is high in your Greek yogurt and other dairy products, eggs, shellfish, fish, seaweed, sea salt, and iodized salt. I experienced DH, too. Avoiding iodine in the diet and medicines (like IV contrast dyes) will help immensely. I also take niacin (vitamin B3) and the amino acid tryptophan which helps...
  22. knitty kitty
    @J Morgan, Thiamine needs magnesium to work properly. I remember you said your magnesium was checked as being fine, but adding a magnesium supplement wouldn't hurt. Magnesium citrate and magnesium glycinate are the most easily absorbed (and least likely to have a laxative effect). Keep us posted on your progress.
  23. knitty kitty
    Links to Dr. Lonsdale's published on PubMed scientific articles are linked in his articles. Nonetheless, apologies.
  24. knitty kitty
    This article explains how vaccination can be a precipitating cause of health problems because..... well, read the article... https://www.hormonesmatter.com/vaccination-stressor/
  25. knitty kitty
    Covid patients have been found to suffer from Thiamine deficiency. There are many studies showing high dose Thiamine will help with the after effects of Covid. Please read.... https://www.google.com/search?q=covid+thiamine+deficiency&source=hp&oq=Covid+and+thiamine&gs_l=mobile-heirloom-hp.1.1.0j0i22i30j0i390l3.2133.7916.0.103...
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