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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @AmericanaMama Please get checked for vitamin deficiencies! Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies which can cause peripheral neuropathy. I became very deficient in vitamins before a Celiac diagnosis. I had the peripheral neuropathy up into my thighs, arms, and face. I...
  2. knitty kitty
    @CeliaCupCake, Have you been checked for vitamin and mineral deficiencies? Having diarrhea for an extended period of time means you are not absorbing nutrients and vitamins well. The eight B vitamins are water soluble and lost quickly in diarrhea, constipation and vomiting. Deficiencies in thiamine, niacin, or B12 can cause continuing digestive...
  3. knitty kitty
    And another.... "The Role of Vitamins and Minerals in Psychiatry" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/#!po=2.30769
  4. knitty kitty
    Thought this article would be of interest.... "Could High-Dose Thiamine Reduce Mortality from COVID-19?" https://www.hormonesmatter.com/thiamine-for-covid19/
  5. knitty kitty
    "Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/ "A number of studies have shown an inverse association between thiamine levels and symptoms of depression in adults."
  6. knitty kitty
    @pokey449 High dose thiamine supplementation is needed to reverse thiamine deficiency. High dose Thiamine is 500 mg or more (some take 1000 mg or more) a day for weeks to months. I started with 100 mg three times a day and added 50 to 100 mg until I was up to 1000 mg a day. I took 50 - 100 mg every three hours. Smaller doses throughout...
  7. knitty kitty
    @pokey449, I take Benfotiamine and Allithiamine....... over the counter vitamins. https://www.lifeextension.com/vitamins-supplements/item00925/mega-benfotiamine?gclid=EAIaIQobChMI4p2A8eWB8AIVaTizAB2I0wEWEAQYASABEgJhMfD_BwE And.... https://www.lifeextension.com/search#q=Allithiamine&t=coveo4A2453FD Imho, doctors...
  8. knitty kitty
    @pokey449, Here's an article that explains how the vagus nerve controls your digestive tract. Without enough thiamine, things don't work right. Thiamine is needed to make and secrete CCK, digestive enzymes, and insulin, among other things. https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/ And...
  9. knitty kitty
    @pokey449, There's a connection between gallbladder problems, SIBO, continuing gastrointestinal problems band thiamine insufficiency. It's called Gastrointestinal Beriberi. Ask your doctor. Since blood tests aren't accurate, the best test for thiamine deficiency is a rapid response to thiamine supplementation (500mg/day) for several weeks. ...
  10. knitty kitty
    "Be well: A potential role for vitamin B in COVID-19" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7428453/ Oy! TAKE YOUR VITAMINS!
  11. knitty kitty
    @Emiandgabesmom, Celiac is genetic. Emi and Gabe need to be tested as well. Blood tests are not accurate for vitamin deficiencies. While blood levels may show normal levels, tissues and organs are deficient, giving their vitamin stores to the blood to supply the brain. Nsaids can cause continuing damage to your digestive system. Thiamine...
  12. knitty kitty
    Perhaps this will be of interest to you.... "Understanding nutrition, depression and mental illnesses" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2738337/#!po=63.7500
  13. knitty kitty
    Niacin (Vitamin B3) helps with DH, but you have to take the kind that flushes (250mg/day). Avoiding foods high in iodine (shellfish, seaweed, iodized salt) reduces flavours.
  14. knitty kitty
    I praise G* d for Celiac because it's a disease that doesn't require pharmaceuticals or surgery to correct. We simply need a good diet. Here's my (other) favorite site... information from Dr. Marrs and Dr. Lonsdale made a huge impact on my life. https://www.hormonesmatter.com/contemplating-cyclic-vomiting-syndrome/ Keep us posted!
  15. knitty kitty
    I suggest you look into thiamine supplementation. Kidney disease is connected to not having enough thiamine (Vitamin B1). Talk to your doctor about supplementing. Google "thiamine and kidney disease" https://pubmed.ncbi.nlm.nih.gov/30182293/
  16. knitty kitty
    @lindseyg930, Welcome to the forum! Yes, even though your daughter is very young, I think an endoscopy is warranted in this case. Definitely to check for Celiac Disease, but also for other problems. One poster's daughter had a twist in her intestines that would not have been found without an endoscopy which once untwisted she improved dramatically...
  17. knitty kitty
    Thiamine and Niacin help peripheral neuropathy!!! All the B vitamins work together. Add high dose (+500 mg) thiamine and 250 mg of niacin (and some riboflavin and biotin). Those methylated forms of Cobalamine and folate and P5P are available separately online and much cheaper. Thiamine and niacin are needed to provide energy and enzymes...
  18. knitty kitty
    @Collette38, I had trouble absorbing Vitamin A from oil filled capsules. Fish allergy prevents me from taking cod liver oil which is a good source of both Vitamin A and D. Celiacs have trouble absorbing fats. I found capsules of the dry form of Vitamin A online and was able to absorb it better that way. I like keeping my Vitamin D in the 70...
  19. knitty kitty
    Welcome to the forum,@Sambozzi, Have you discussed taking a genetic test with your doctor? Testing positive for some of the most common genes related to Celiac and improved health on a gluten free diet is frequently accepted as a diagnosis for Celiac.
  20. knitty kitty
    Thought this might be of interest..... "Micronutrients Dietary Supplementation Advices for Celiac Patients on Long-Term Gluten-Free Diet with Good Compliance: A Review" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/
  21. knitty kitty
    @trents is correct. The B vitamins are water soluble and must be replenished every day because they can't be stored long. Insufficiency of thiamine can occur in as little as nine days. Vitamin A is a fat soluble vitamin that can be stored in your liver. It can take years to deplete your vitamin A stores. Too much vitamin A can be bad...
  22. knitty kitty
    Noticed another boo boo. A blood test for anti-Tissue transglutaminase antibodies is used to diagnose Celiac Disease. Sorry.
  23. knitty kitty
    Thanks, @trents, Tissue transglutaminase is produced during inflammation, but also becomes part of the inflammation process. The function of tissue transglutaminase in celiac disease https://pubmed.ncbi.nlm.nih.gov/22326684/ "Tissue transglutaminase (tTG) is a calcium dependent ubiquitous enzyme which catalyses posttranslational...
  24. knitty kitty
    Food manufacturers frequently use "meat glue" to stick together processed meats so that they will hold their shape. It is used in chicken nuggets, sausage, luncheon meats. "Meat glue" is often used in yogurt, ice cream, baked goods and the like to improve texture. It is used in gluten free facsimile foods, like cookies, to improve texture. "Meat glue...
  25. knitty kitty
    I agree with @CMCM that getting a genetic test should be a big part of the diagnostic process for Celiac Disease. Granted, not everyone who has the genes for Celiac Disease actually gets Celiac, but for those that are having symptoms and seeking medical assistance, those should be tested. A positive result for one of the most common Celiac genes with...
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