knitty kitty
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Here's the case studies and articles... "Gastrointestinal beriberi: a forme fruste of Wernicke’s encephalopathy?" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6040496/ And... "Elevated Lactate Secondary to Gastrointestinal Beriberi" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ And a variety of thiamine a...
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Welcome to the forum! I'm agreeing with @trents, you only need one gene for Celiac Disease. As I understand it, (knowledgeable others correct me if I am not correct), HLA DQ 2.2 heterozygous reacts to a smaller subset of gluten proteins than HLA DQ 2.5, but it still reacts to gluten. In your googling, did you find this article to explain...
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@Emiandgabesmom, Welcome to the forum! Would your doctor do a DNA test to see if you have any of the most common genes for Celiac? A positive test for a Celiac gene and improvement on a gluten free diet is sometimes accepted as a basis for diagnosis. Few doctors have experienced Celiac Disease firsthand and don't understand the extent...
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Benfotiamine, Allithiamine and thiamine HCl are available through stores on line, like at Amazon. I take several smaller doses throughout the day and with meals for a cumulative high dose total over the course of the day. Blood tests for the B vitamins are not always accurate. Blood tests for thiamine often reflect how much thiamine you've consumed...
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I have a problem with nightshade vegetables: potatoes, tomatoes, eggplant and peppers. Seems there's chemicals in nightshades that contribute to leaky gut syndrome in a cumulative way. Here's more.... Potato glycoalkaloids adversely affect intestinal permeability and aggravate inflammatory bowel disease https://pubmed.ncbi.nlm.nih.gov...
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Thought this case study might be of interest.... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7306676/
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@DemonKnight said.... "If any substantial saturated fats or high sugar content gets in there, it causes a reaction of some sort and shuts down my bowel habits completely the next day." If you have problems digesting sugars and fats, consider supplementing with thiamine. Thiamine deficiency can cause weight loss, Gastroparesis, and constipation...
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@dolson, I'm sorry to hear you're still having such problems. Benfotiamine, a form of thiamine, has been shown to help with diabetes. https://pubmed.ncbi.nlm.nih.gov/23379830/ And high dose thiamine (500 mg) helps with Gastroparesis.
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Newly Diagnosed
knitty kitty replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Omeprazole causes B12 deficiency. -
Thiamine comes in different forms. Thiamine HCl is what I started taking at first. I started taking 100 mgs with each meal. Three hundred mgs a day was working, but I had read studies saying some people get better results at 500 mg. So, Celiac Guinea Pig that I am, I added more. I guess I was one of those people. Vast improvements! Later...
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Yes, thiamine is safe, even in high doses. There's no toxicity. I take a B Complex plus extra thiamine, Allithiamine. As someone who works out, you have a higher metabolic need for thiamine. Thiamine is necessary to provide energy for those muscles to work. Metabolic need for thiamine increases when you're an athlete, work out of doors and...
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I use Naturewise Organic Flaxseed oil.
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Fish oil caps are a problem for me, too. I switched to flax seed oil caps for the omega threes and separate vitamin D and vitamin A supplements. Skip fish for now and try it again in three to six months. This is the fun Celiac Guinea Pig part where you test foods, record the reaction in your food/mood/poo'd journal and try them again in a few months...
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I'm pleased to hear that you are making progress! You get to become a Celiac Guinea Pig now and experiment with chicken and fish and what YOUR system will tolerate. The book is available on Amazon.co.UK and on some used book seller sites (abebooks) and ebay. I hope you can find a copy. Keep us posted on your progress!
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Welcome to the forum! Happy to have you here! Wow! I agree with @trents! You need to pay more attention to what your daughter J is eating! Try keeping a food/mood/poo'd journal. Doing this will pinpoint problematic foods and possible glutenizing😸. The food journal will also allow you to see if your daughter is overeating carbohydrates. ...
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Newly Diagnosed
knitty kitty replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My suggestion would be to hold off on taking a probiotic for a while. Changing your diet to a Paleo diet like the Autoimmune Protocol will starve out the bacteria feeding on carbohydrates allowing beneficial bacteria to repopulate by themselves. Yes, take your multivitamin and also your B Complex both everyday. The B Complex vitamins are water soluble... -
Prescription drugs such as Omeprazole, Zantac, and Flonase will suppress your body's production of antibodies. When you test for Celiac Disease after taking any of these medications, you will get false negatives. Omeprazole is known to cause B12 deficiency. Omeprazole inhibits absorption of B12. Since you know you have one Celiac gene, and you...
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Newly Diagnosed
knitty kitty replied to BrianG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Having a mild case of Celiac is akin to being a little bit pregnant. You have Celiac. You have mild symptoms, but you are already experiencing malabsorption and vitamin and mineral deficiencies which are serious. Did you know wheat contains opioid compounds? Dairy does, too. You have opioid receptors in your brain and in your digestive tract... -
Look into the Autoimmune Paleo Diet.... this is the book I found most helpful, easy to read, lots of illustrations, charts, etc. for visual learners.... https://www.thepaleomom.com/books/the-paleo-approach/ Think easy to digest foods...soups or stews that's been simmering until very soft and mushy. Keep a food/mood/poo'd journal to...
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Different levels?
knitty kitty replied to RaeOze's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Would getting a genetic test be an option for you? Celiac is a genetic disease. If you have one of the common markers for Celiac Disease, you could assume the Celiac genes are turned on due to your reaction to gluten consumption. Removing gluten from your diet for three months gave your immune system time to calm down. Your body quit making... -
I had fatigue and shortness of breath like you describe when I was deficient in thiamine Vitamin B1. The shortness of breath is called sailors' asthma. Your body needs thiamine to "burn" oxygen and provide energy for your body to function. No thiamine, no energy, hence the fatigue and feeling like you can't get enough air (air hunger). The classic...
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Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies. The damage to the small intestine, villi blunting, diarrhea and constipation all affect your body's ability to absorb sufficient nutrients. Removal of gluten containing foods from the diet means the removal of a major source of vitamins. Wheat...
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When I have had trouble staying asleep or getting to sleep, I increase intake of certain vitamins that the body needs to make serotonin and melatonin. Tryptophan, pyridoxine (B6), and folate are needed to make serotonin. Tryptophan is needed to make melatonin, as well. Magnesium helps with relaxation, too. Vitamin D and sunshine are important, too...
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I'm so glad you found the toe wriggling a relief! Yes, thiamine needs to be increased to 300mg a day. I took 100mg of Thiamine HCl with each meal. I later added Benfotiamine to help with my Type Two Diabetes, and allithiamine (fat based so it crosses the blood brain barrier) to help with brain fog. Thiamine transporters that let thiamine...
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The fat soluble vitamins are A, D, E and K. The water soluble vitamins are the eight B vitamins and Vitamin C. If you have frequent diarrhea or constipation, the water soluble vitamins can be lost quickly. Most of the B vitamins and Vitamin C are absorbed in the small intestine. The small intestine gets damaged in Celiac Disease, so vitamins are...
