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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Once I went on the AIP diet, I felt so much better within days. Removing inflammatory foods was like going on a vacation for my poor intestines! I had suffered with Celiac symptoms for as long as I can remember, but because the whole family (it's genetic!) had similar symptoms, they were brushed off as "normal." By midlife, I had developed a cascade...
  2. knitty kitty
    Once I got the stumbling blocks out of the way and started the Autoimmune Paleo Diet, I felt better within weeks. It's hard to compare because some people don't have active Celiac Disease very long before it's identified. Others have spent years with active undiagnosed Celiac Disease draining their health for decades. I'm one of those oldies...
  3. knitty kitty
    You're very welcome. I'm well blessed and thankful I can share what I've learned on my Celiac journey. Keep us posted on your progress!
  4. knitty kitty
    The Autoimmune Paleo Diet is stricter than the Paleo diet. I look at the difference between the Autoimmune Paleo Diet and a Paleo diet similar to the difference between a Gluten Free diet for Celiacs and the fashion trend of a gluten free diet. Just like some people adopt a gluten free diet because they want to drop a few pounds or their friends...
  5. knitty kitty
    You're not alone in this. We've all been beginners at some point. And it can be confusing and overwhelming, but we're here for you. I'm so thankful for Scott's forum.
  6. knitty kitty
    Your doctor will have to test your iron levels to determine if you're absorbing iron. I took an enterically coated iron supplement that didn't turn my poop green like previously taken iron supplements. So, maybe it's working. I also took copper. There's a delicate balance between copper and iron. But taking copper on alternating days with...
  7. knitty kitty
    You could get the rash tested for dermatitis herpetiformis which only occurs with Celiac Disease. If your rash is DH, then you have Celiac. False negatives from improperly taken biopsy samples are possible. Or genetic testing can spot if you've got any of the most common, known genes for Celiac. The caveat here is not all Celiac genes are known...
  8. knitty kitty
    Gluten containing products are required by law to be enriched with minimal amounts of B vitamins and minerals to replace those lost during processing. Since you have switched to a gluten free diet, you have lost that source of vitamins. Poor digestion and absorption can cause nutritional deficiencies quickly. Deficiencies in Thiamine, niacin, pyridoxine...
  9. knitty kitty
    Oy! The colonoscopy prep will wash out some of the bacteria in your intestines. So you went from looking six months gone to only four. Small Intestinal Bacterial Overgrowth (SIBO) is often associated with bloating. It's more likely your intestinal bacteria are partying and raising a ruckus when you consume fructose and sucrose than you having a fructose...
  10. knitty kitty
    Read this article.... Lactose (milk sugar) and casein (milk protein) can both cause problems. Like the study says, casein can keep your tTg levels high. No dairy at all would be best.
  11. knitty kitty
  12. knitty kitty
    MadMom, Try the Autoimmune Paleo Protocol diet. Dr. Sarah Ballantyne, a Celiac herself, has written a wonderful book.... https://www.thepaleomom.com/books/the-paleo-approach/ This book has lots of helpful information. Even if gluten free, the inflammation of Celiac lingers. It explains what's happening to your body during inflammation and...
  13. knitty kitty
    I take Lysine for my herpetic virus friends. I've had shingles in the past and it's not fun. And I have had problems with cold sores, especially after getting glutened. I also get Bell's Palsy, one side of my face becomes paralyzed when the virus becomes active. So I take 1000 mg of lysine daily and during herpetic flares, I double or triple the dose...
  14. knitty kitty
    Charks, I understand how disconcerting not having your body function properly. I've experienced the same. How much thiamine are you taking? I had to take 300mg before I really started feeling better. Niacin, riboflavin, and B6 pyridoxine help, too. The B vitamins are water soluble. You might try taking the B complex twice a...
  15. knitty kitty
    JenniK, Thiamine deficiency will cause vertigo and panic attacks/anxiety. Thiamine deficiency will cause tachycardia. Thiamine deficiency is seen in alcoholism, but it also occurs in malabsorption diseases like Celiac Disease. Doctors don't recognize the symptoms of thiamine deficiency outside of alcoholism. Please discuss thiamine deficiency with...
  16. knitty kitty
    Nancy D, Try high dose thiamine. Clostridium bacteria make thiaminases, enzymes that destroy thiamine (Vitamin B1). High dose Thiamine can help get rid of these undesirable pests. See this article... Infant botulism: is there an association with thiamine deficiency? https://pubmed.ncbi.nlm.nih.gov/25311602/ Thiamine is water...
  17. knitty kitty
    I have a hypersensitivity to iodine based contrast dyes. They make me very ill. Yes, it feels just like a gluten effect because it upsets your stomach and intestines and they react the only way they can. You need to call your doctor's attention to the fact you are reacting to the iodine. Iodine can rev up your thyroid causing overproduction...
  18. knitty kitty
    SSRI's can cause continuing villi damage. If the body is given the building blocks it needs, the body will heal itself. You are sick because you are vitamin deficient. You are not sick because you are pharmaceutical deficient. This attitude of "take a pill" is akin to "it's all in your head". You get depressed because...
  19. knitty kitty
    charks, There are EIGHT B vitamins. They all work together. Supplementing just one of the eight B vitamins won't cut it. Vitamin B12 needs B6 pyridoxine and folate B9 to work properly. Excess levels of B12 on your tests shows me (not a doctor) that B12 is not being properly utilized. B6 pyridoxine needs help from riboflavin B2. Niacin...
  20. knitty kitty
    Thiamine needs magnesium to activate and work properly. Increasing magnesium consumption or correcting magnesium deficiency can allow thiamine to work properly.
  21. knitty kitty
    Have you checked with any colleges or universities? Celiac students might prefer a gluten free house to gluten filled dorms...
  22. knitty kitty
    Don't rule out a connection to Celiac Disease just yet. Celiac Disease causes malabsorption which results in malnutrition, aka vitamin and mineral deficiencies. I suffered severe nutritional deficiencies because the damage to my intestines prevented me from absorbing all the things I needed to make a healthy body. My doctors were clueless about...
  23. knitty kitty
    Rachel, You have symptoms of thiamine deficiency: Weight loss, muscle weakness, loss of appetite, nausea, anxiety, altered mental state. Doctors believe thiamine deficiency can not occur outside of alcoholism. That is not true! Thiamine deficiency can occur in malabsorption conditions like Celiac Disease. Thiamine is used...
  24. knitty kitty
    Costochondritis is the inflammation of the cartilage where your ribs connect together with your breast bone. This link explains more...And the treatment is high dose thiamine..... elimination of the problem was seen in three days.... https://www.google.com/url?q=https://austinpublishinggroup.com/nutritional-disorders/fulltext/download.php...
  25. knitty kitty
    MadMom, Costochondritis is the inflammation of the cartilage where your ribs connect together. Frequently occurs on left side, but right side, too, sometimes. This link explains more...And the treatment is high dose thiamine..... elimination of the problem was seen in three days.... https://www.google.com/url?q=https://austinpublishinggroup...
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