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ThisGalsGlutenFree

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Everything posted by ThisGalsGlutenFree

  1. ThisGalsGlutenFree
    Thank you for your reply! We’ll shop around and try to find a good discount. I hope that your daughter (and my son) is in the clear!
  2. ThisGalsGlutenFree
    Hi! I was diagnosed with celiac disease in 2014 on the basis of a positive tTG-IgG test. My doctor ordered only tTG-IgA and tTG-IgG tests for me; I tested negative on the IgA test, but didn't have a total serum IgA test, so I don't know if I'm deficient. I didn't have a biopsy, but my life changed dramatically for the better after adopting the gluten-free...
  3. ThisGalsGlutenFree
    Cyclinglady, I like the idea of sending my test results in as proof that not everyone with celiac has an IgA response. This is a great first step to getting the correct testing for my parents. Supermaltese, thanks for responding about your solution; IF I ever get my dad to go in and he tests negative, that gives us another avenue to pursue. And frieze...
  4. ThisGalsGlutenFree
    I finally got my mom to go for celiac disease blood testing because of my own diagnosis. I gave her the following panel, and told her to be specific with her doctor, and request these tests: Tissue Transglutaminase IgA & IgG Endomysial Antibody IgA Deaminated Gliadin Peptide IgA & IgG Immunoglobulin A, Quantitative Her gastroenterologist...
  5. ThisGalsGlutenFree
    Has anyone who experiences the DH rash had a CT scan with contrast? My doctor ordered one for me, and when I realized that the contrast is iodine based, I headed straight here to ask around. I was not properly diagnosed with DH rash after my celiac diagnosis, but my doctor strongly suspected that's the kind of rash I had, since it occurred around the time...
  6. ThisGalsGlutenFree
    cyclinglady, I appreciate your reply. I was beginning to doubt what I know because of their doctors' responses. Thank you for this link and education sheet. I think this will help a lot. I'll pass on the insurance heads-up to my family as well. Thanks again!
  7. ThisGalsGlutenFree
    I need some advice...I was diagnosed with celiac disease last year, and because it's hereditary, I've been pushing my parents and my brother to be screened as well. I know that having the genes for celiac does not automatically mean that you have active disease, but I also know that a person could have active disease without even knowing it (silent celiac...
  8. ThisGalsGlutenFree
    Thank you, Colleen!
  9. ThisGalsGlutenFree
    lpellegr, I haven't ventured into gluten free bread baking yet, but I recently bought some run-of-the mill stainless steel pans for gluten-free bread recipes. Haven't used them yet though...can you tell me how/why gluten-free bread pans are different? Will gluten-free bread baked in a regular pan fail? I'd love to borrow from your experience. Thanks!
  10. ThisGalsGlutenFree
    Thanks, mitchgam and squirimingitch for your replies. There is such a steep learning curve with celiac and dh, Unfortunately, I can identify with the rebound effect. What I didn't say in my original post, because I thought that it was unrelated, is that I started a short course of prednisone for another issue a few days before the dh flared. The rash has...
  11. ThisGalsGlutenFree
    I have what may be a DH rash, but I began a gluten-free diet before my doctor recommended having a biopsy to confirm the diagnosis. My doctor’s recommendation for a biopsy was based on, in her words, a ‘low-positive’ tTG IgG result (My IgA result was negative, but total IgA was not tested). The rash has been so terrible and disruptive that I couldn't bea...
  12. ThisGalsGlutenFree
    The tTG IgA and tTG IgG were the only celiac tests ordered. Since finding this forum, I see that there are several other tests that could or should have been ordered. I've been eating gluten free for over two weeks now, so any other blood tests (and DH diagnosis?) would be skewed. I'm terrified of a challenge period to test again because the rash has been...
  13. ThisGalsGlutenFree
    Please forgive my ignorance in including the ANA result; it was on the same page of the lab report as the celiac tests, so I wondered if I should include it. Thanks to each of you for your comments. I think I may be a bit in denial about having celiac disease.
  14. ThisGalsGlutenFree
    Thanks to both of you for your replies! SMRI, my doctor did not order a total IgA. She ordered tTG IgA & IgG, ANA, CBC & platelets, and a comprehensive metabolic panel. I believe that the CBC was run because she suspected that my weeping rash was a staph infection (it was not). I remember that when my doctor called with results, she said that I had...
  15. ThisGalsGlutenFree
    I recently had a blood test because my doctor suspects that I have celiac disease. The results, in her words, suggest that I carry the antibody for celiac disease: The ANA screen is negative (no titer performed), the tTG-IgA is negative (<1.2U/mL), but the tTG-IgG is positive (10.5 U/mL). My doctor did not recommend further testing, such as a biopsy...
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