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Rhobhan

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  1. I am in the eighth week of an extended reaction to gluten exposure—extreme weight loss due to diarrhea, drop in blood pressure causing dizziness. The gastroenterologist ordered an endoscopy which showed, naturally, active celiac disease but also evidence of gastritis. He has put me on a daily dose of Pantroprazole to treat what he says was excess stomach a...
  2. I live in the Midwest where there seems to be a dearth of knowledge about celiac disease. Perhaps you live in a large city where medical staff are more educated about celiac. i have been glutened countless times over the years by restaurants who claimed to have taken steps that proper cooking procedures were taken. In the bowels of a large hospital kitchen...
  3. I am facing a potential surgery which may require several days recovery in the hospital. I am more terrified of being glutened by hospital food than of the surgery itself! I know I should ask to consult with the chief hospital dietitian, but I see cross contamination as the major problem. Has anyone else had any experience in the hospital, and what...
  4. I’m in my sixth week of an accidental glutening, with no let up in sight. I’ve lost about a 1/2 pound per day due to the chronic diarrhea, and in addition, I have no appetite and nearly all foods are unappealing and unappetizing. Bone broth is soothing, I have found, however. The gastroenterologist has me on an anti-nausea drug which helps a b...
  5. My wife confessed that I have a smell after being glutened. I am batting six weeks’ worth of bad fallout after being glutened: diarrhea, nausea, weight loss etc. i shower daily and practice good hygiene, but she says I have this smell—a “bathroom odor.” I’m humiliated to say the least and don’t know what to do. Anyone else have this proble...
  6. Although I have been to three different gastroenterologists within a 100 mile area in my 13 year struggle with celiac disease, I have found none of them to be what I would consider an expert in the disease, but rather following the same playbook: ordering the same rounds of debilitating tests, referrals to dieticians etc. No one seems to offer much...
  7. I have taken Floragen 3 (now called Floragen Digestion) for 5 years with no problems. It is refrigerated, available as a capsule, and only availabel at pharmacies.
  8. I was diagnosed with celiac in 2007. For eight years I did well, gaining back weight and feeling decent. I spent from spring of 2015 until December of that year suffering from perhaps a multiple gluten in that had occurred while traveling. I experienced chronic diarrhea, fatigue and my weight dropped to a point lower than when I was first diagnosed...
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