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Auldtwa

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Auldtwa

  1. Auldtwa
    Another strange failure of the FDA just happened to me. Like many, if I DO ingest gluten I experience massive projectile vomiting. This can be life threatening when it messes with my insulin/food balance. So my doctor has prescribed for years two anti nausea drugs. I don't, thank goodness, have to use them often. This time, my doctor apparently, when...
  2. Auldtwa
    Thanks. I've been taking B12; I may well start with more of the B variations.
  3. Auldtwa
    Did the study include the effect of the celiac gene on oxalate sensitivity? This leads to creation of kidney stones, over and over--one of my kidneys is atrophied from "silent" stones and no longer functioning. I also have Type 2 diabetes and celiac disease. These all have a genetic component. They have the "silent" part in common, too, until late in...
  4. Auldtwa
    Will that mean, well, WHEAT may be OK? I ask because I have recently had to go on a low oxalate diet (this involves preventing kidney stones) and both almond flour and brown rice flour, and to a lesser extent tapioca flour, are things I have to avoid. The squinching of eyes as I read labels is excruciating. Wheat, natch, is low on the list of violators...
  5. Auldtwa
    What isn't clear to me is whether an endoscopy would or wouldn't help figure out which issue is causing your problems? If it would help even slightly, I'd say go for it. Endoscopies are not particularly grueling. Someone says "breath deep" and the next minute someone is offering you juice in recovery. Even the diet beforehand is way less of a problem than...
  6. Auldtwa
    Your question about treatment of accidental ingestion leaves one medication out. If your reaction is massive projectile vomiting, anti-nausea drugs can help, and are critical if you also have insulin dependent diabetes, because the vomiting really messes up the control of blood sugar by removing the food the insulin was working on. That's been my reaction...
  7. Auldtwa
    Yowsa. I've just got three, one of them dormant. And only one auto immune. Good luck.
  8. Auldtwa
    Thanks
  9. Auldtwa
    is it safe to say that if your bloodwork has the indicators for celiac AND you have the atrophy, the atrophy is due to celiac? I'm interested because I have a different eosinophilic disease, thankfully in remission for forever (pulmonary eosinophilic granuloma, now know as Pulmonary Langerhan's disease.) If you have one problem with eosinophils do you...
  10. Auldtwa
    This is weird. I had no sign of iron deficiency until I developed celiac disease. And yet this is saying that somehow my iron levels triggered the disease? Isn't it more likely that whatever gene it is is simply associated with people who present via iron deficiency?? So if I have a "tendency" to low iron, when celiac is triggered that's what's going...
  11. Auldtwa
    Malabsorption is how my celiac disease presented itself. I suddenly (over a short period, since I had tests every 3 months for my diabetes) went WAY anemic. At first the doctor thought it was an ulcer, which wasn't actually bleeding but might have, but after it was removed and the anemia persisted despite MASSIVE iron supplements, my canny doctor thought...
  12. Auldtwa
    Why not take a loaf of gluten free bread factory sealed, and possible cheese slices factory sealed? Small jar of peanut butter factory sealed. Make the sandwiches on the plane. If you can eat fish, smoked salmon factory sealed. Etc. Save those for Dubai. Bring whatever your home airlines allow for the first leg of the flight. I am diabetic (on...
  13. Auldtwa
    I have a funny story about food and customs that has almost nothing to do with celiac disease except advice. It is just funny. When my son was 17, back in the back of beyond, he flew to meet me in Ireland for a week's trip. He was, shall we say, anticipatory of later marijuana legalization. So I said "NO ILLICIT SUBSTANCES with you." He said fine...
  14. Auldtwa
    As I repeatedly complain to my supermarket, they have two freezer cases marked gluten free. Every time I have checked they contain NOT ONE gluten free product. Apparently Safeway thinks "plant based" is "gluten free" and apparently considers wheat a form of animal. The answer to KLM is devastatingly simple. If you can't guarantee your meals...
  15. Auldtwa
    This would be WONDERFUL news, since I love sourdough and it is actually hard to find in gluten free form. The closest I have been able to find is the Against the Grain baguette. It isn't particularly sour, but it does have the texture of sourdough. I once found a sourdough loaf on Amazon. It was reasonably priced--around $10. But the SHIPPING was...
  16. Auldtwa
    Another version of this just substitutes capers for the dill and broth/cream. Even faster
  17. Auldtwa
    yes. I seem to be able to handle trace gluten. At least a McDonald's french fry only screws my blood sugar, not my gut. If there's enough to warrant a warning on the package, it will send me to the barf bag. A McDonald's Bun would do me in before I got out of the parking lot.
  18. Auldtwa
    Same thing happened to me. Though I've had IBS since childhood, I never had upper gastrointestinal symptoms--no GERD, no upset tummy. All of a sudden I developed severe anemia --in between two A1Cs, so within 3 months. Doctor removed a small ulcer that wasn't bleeding but might have. No improvement for a year. Then he hit on celiac disease. I take supplemental...
  19. Auldtwa
    How many times have I stood in line at the supermarket and had the people in back of me make snide comments about "expensive fads" as I load my gluten-free stuff onto the belt. I roll my eyes. But how many times have I wanted to say "hand me that roll in YOUR cart and I'll projectile vomit all over you.
  20. Auldtwa
    Actually my first hospitalization was food FROM a hospital cafeteria. I was waiting for my daughter to finish an appointment. I asked specifically what they had that was gluten free--the clerk pointed to a muffin. The last thing I thought before I started urping was "wouldn't you know the only gluten free thing they have is pumpkin spice." I'm pretty...
  21. Auldtwa
    I have on several occasions pointed out to my grocery store that they might well be killing a careless shopper. In one case, the gluten free version of cookies was not just NEXT to the gluten ones--the packages were actually intermixed, so the one in back of the one you just picked might be the wrong one. I've also pointed out that their two-door frozen...
  22. Auldtwa
    Exactly my experience. I had no tummy issues; celiac disease was diagnosed after severe anemia. And now I am VIOLENTLLY ill when I am glutened. I've been hospitalized twice because it has caused me to pass out--in one case, because my blood sugar went into the deepest hole because the food my insulin was controlling went into the potty. Ironically...
  23. Auldtwa
    Canyon Bakehouse brand, particularly their "Heritage" type, is the closest to "real" bread I've found. Of course, it's been years since I've tasted "real" bread so to someone new to a gluten-free diet it may be a disappointing comparison. It is far less prone that other gluten free brands to having big holes in the middle of the loaf, though it does sometimes...
  24. Auldtwa
    I've also seen some studies, definitely not definitive, that shows that having controlled celiac disease actually made you more resistant to Covid. According to a geneticist friend (who has worked specifically with Covid and long Covid), the gene survives because it does make folks resistant to some types of pathogens. The question is what particular connections...
  25. Auldtwa
    I've had the opposite experience. I was diagnosed with celiac disease because of a major iron deficiency. I'd never had typical celiac digestive symptoms. After a few months on a fully gluten free diet, I was "glutened" when a purported gluten free muffin turned out not to be. Result--projectile vomiting and hospitalization. It's happened maybe 5 times...
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