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sensitive celiac

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sensitive celiac last won the day on September 27 2022

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  1. icon Anna M reacted to a post in a topic: Fainting and blackouts
  2. icon Anna M reacted to a post in a topic: Fainting and blackouts
  3. icon Anna M reacted to a post in a topic: Fainting and blackouts
  4. sensitive celiac started following Fainting and blackouts , HLA-DQ–gluten tetramer-based Test , How to Stop following and 1 other
  5. sensitive celiac
    She is not talking about the test to see if you have the genetic basis to get celiac. A "new" test out of Norway can tell with over 90% accuracy if you HAVE celiac, without eating gluten. I am also looking for the status of this test.
  6. icon Scott Adams reacted to a post in a topic: How to Stop following
  7. sensitive celiac
    Thank you Scott! It worked perfectly to go to www.celiac.com/followed
  8. sensitive celiac
    Possibly she had a seizure? I didn't land in the hospital for it, but it took many years of ER trips before I got put in an epilepsy clinic. They said it wasnt possible and had that look on their face that said they were laughing at me. My doctor wouldn't let them release me until they tested until they checked for gluten. They decided that was the cause...
  9. sensitive celiac
    I tried to help someone out with information months ago. It is still ongoing and I would like to opt out. How do I do that?
  10. icon Scott Adams reacted to a post in a topic: Feeling worse......I want to give up this diet.
  11. icon knitty kitty reacted to a post in a topic: Feeling worse......I want to give up this diet.
  12. sensitive celiac
    Try going on the AIP diet for a month and see if you feel better. It is common for people qith celiac to develop other sensitivities, especially to dairy and oats. If you feel better on the aip diet, decide when you want to get off, then get off slowly. Reintroduce things one or two at a time. Keep a food diary so you can look for commonality of things giving...
  13. icon knitty kitty reacted to a post in a topic: I believe I have this! Serology tests all negative
  14. icon Scott Adams reacted to a post in a topic: I believe I have this! Serology tests all negative
  15. icon Rogol72 reacted to a post in a topic: I believe I have this! Serology tests all negative
  16. sensitive celiac
    1. All genetic tests are not the same. There are some designed mainly to amuse and to collect your data. They are not as accurate as medical tests. 2. 2% of celiacs have neither gene. 3. If you test completely negative, there is also non Celiac Gluten Sensitivity. If you have DH that would be a strong indicator that you have celiac. If you are...
  17. icon Hb333 reacted to a post in a topic: I believe I have this! Serology tests all negative
  18. sensitive celiac
    Yes. The test for deficiency is different. Also, if they biopsy your rash for DH, make sure they take it next to the bumps, not on a bump.
  19. sensitive celiac
    Get a test for IGA deficiency. It can make the IGA look normal when you actually have celiac.
  20. sensitive celiac
    Before you get too comfortable on the gluten-free diet, you should get a firm diagnosis. See a dermatologist and set up a test for biopsy when you have the blisters. Or ask your primary or gastroenterologist for a celiac test when you have been eating gluten for 6 tob8 weeks before the test. If it is less than this, you are likely to get a false negative...
  21. sensitive celiac
    I seriously suspect you are getting gluten from somewhere or are having a reaction to something else on top of celiac. Sometimes removing most of the gluten makes you more sensitive when you are exposed. I had similar symptoms. They improved when I stopped going out to eat and tried to follow a paleo AIP diet. After I found how gluten was creeping into my...
  22. sensitive celiac
    Have them run a test for IGA deficiency. If you are iga deficient, the tests for celiac may come back negative. Also, if you were not regularly eating gluten for AT LEAST 6 to 8 weeks, the tests for celiac are likely to be negative. The test is for antibodies created when you eat gluten. The endoscopy is a test that looks for damage created by gluten. If...
  23. sensitive celiac
    Cross contamination is often a possibility. Either from purchased foods, going out to eat, or from mistakes in your home, like shared condiments or even dish towels that might have wiped gluten hands or counters. My GI didn't do a thing to confirm or deny seizures. I went to a neurologist, and he sent me to a seizure lab. They took my seizure free time...
  24. icon sensitive celiac reacted to a comment: Are Pringles Gluten-Free?
  25. sensitive celiac
    Please be aware that celiac and gluten exposure can cause seizures. I had it happen for about 10 years, with grand mal seizures, and with doctors denying thr possibility, before it was proven in a seizure lab by having me purposely eat gluten to start a seizure that could be recorded. Even after the proof, I had doctors denying the possibility. I now have...
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