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GF-Cheetah Cub

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GF-Cheetah Cub

  1. GF-Cheetah Cub
    My daughter had the endoscopy when she was ten. It is a rather simple procedure. We went to the hospital early in the morning. They put her out first, which took just a few minutes. I got to stay with her and held her hands until went to sleep. Then the procedure itself took about 10-15 minutes. She came out, and stayed in a bed for an hour or...
  2. GF-Cheetah Cub
    If you were diagnosed 6 years ago, and have maintained a gluten free diet, your blood tests and endoscopy are supposed to be normal. It means your body has healed, but Celiac is a lifelong disease, you can not go back to eating gluten. Sorry. My daughter is also a non-symptomatic celiac. She was diagnosed by blood test, followed by the endoscopy...
  3. GF-Cheetah Cub
    I agree. What you need is a good doctor. You shouldn't have to worry about how to convince a doctor about feeling sick and helpless. Crohn's is indeed a very serious disease, and even more difficult to control than celiac. People with Crohn's tend to avoid a lot of food, including gluten. Good luck to you!
  4. GF-Cheetah Cub
    I am sorry to hear about your frustrating experience with the physicians. To me, the real question is: are you on a strict gluten free diet, and are you feeling better and healthier? If you are, you don't need to "convince" any doctors, you don't need their blessing, certainly not their attitude. It is your own body, if you know that gluten makes...
  5. GF-Cheetah Cub
    Oh! That is good to know. I always wondered about the two different spelling myself. So, it is like center vs centre!
  6. GF-Cheetah Cub
    "Is it also possible to see absolutely no damage, but then the biopsies come back showing damage?" Yes. This happened to my daughter. After her endoscopy, the two doctor came to tell us that they did not see damage. But two weeks later, the doctor called to tell us that her biopsies came back positive. So, just sit tight and wait for the official...
  7. GF-Cheetah Cub
    You don't have to have all the celiac genes to have celiac. One such gene is enough. Yes, if you have positive biopsy, you have celiac disease. Yes, your son, as well as all close family members should be tested.
  8. GF-Cheetah Cub
    "I think its important for the person I share a living space/kitchen with to understand it but I could be wrong. " -- You are not wrong. " ... to consider ordering from a place that has gluten free option ....Was I in the wrong to make that request? " -- Absolutely not. Celiac is an auto-immune disease, and the only treatment option is a gluten...
  9. GF-Cheetah Cub
    My daughter also loves to make ginger bread house every Christmas. I buy this gluten-free kit every December from a gluten free bakery called Sensitive Sweets. They ship the kit to our house. http://www.sensitivesweets.com/holiday-items/gluten-free-vegan-gingerbread-house-kit
  10. GF-Cheetah Cub
    Oh, thank you so much!! The Larkburger and Beau Jo's are perfect. They both have locations in Ft. Collins. We will be having a few family gather catered meals and a church pot luck lunch, so I need to be able to go somewhere and pick up a quick burger or pizza to go just for my daughter. Thanks!
  11. GF-Cheetah Cub
    Oh, we are actually going to Ft. Collins this weekend to attend a funeral service. If anyone know of any good gluten-free restaurants there, please let me know!
  12. GF-Cheetah Cub
    Maui is quite a gluten free paradise. It has a 100% gluten free restaurant, as well as a 100% gluten free bakery. Many restaurants offer gluten free menu or options, generally, great awareness of gluten-free dinning at most restaurants. Some ice cream shops even offer gluten-free cones, kept sealed in a container in its own area! We live in Northern...
  13. GF-Cheetah Cub
    Don't be sad. You can most certainly eat out and enjoy travel (big and small trips). It does require a bit of research and planning, that's all. Everything is online nowadays, so researching is easy. My family loves to eat out and we LOVE to travel. Many restaurants offer gluten free options. After my daughter was diagnosed, we traded our old...
  14. GF-Cheetah Cub
    cyclinglady, I think Joseph is hoping to exclude celiac disease. I feel for him, as I also had a hard time accepting my daughter's celiac. I had this gene test done hoping our GI doctor made a terrible mistake. But now I have triple prove that my daughter really does have it! I agree with you and others, that if biopsy confirmed celiac disease...
  15. GF-Cheetah Cub
    Our doctor ordered the Prometheus Celiac Plus test for us. It is some sort of in depth celiac blood test. This test report showed which celiac gene my daughter has. I think you can ask your GI for a celiac blood test with EMA. When I asked for the EMA test, we got this Celiac plus results back. I believe Prometheus is the name of the lab. ...
  16. GF-Cheetah Cub
    My daughter was diagnosed with celiac in 2014. She never had a problem with gluten, and she is still a silent celiac. But she was formally diagnosed with blood test and biopsy. So, having no "problems" with gluten does not necessarily mean you are not celiac. I too, did not want to accept that my daughter has celiac, and we did a DNA testing,...
  17. GF-Cheetah Cub
    We were in Santorini and Athens in August 2015. We found eating gluten free easy in Greece. Their cuisine involves fairly simply ingredients, olive oil, salt, and herbs. My celiac daughter can eat almost all the grilled meats and vegetables. Obviously you have to avoid the pita. Also, be careful of the gyro meat, because some places threw beer in...
  18. GF-Cheetah Cub
    I agree with cyclinglady. My daughter has had elevated ttg number for 3+ years now. We are also a gluten free family. My household went gluten free as soon as she was diagnosed. My daughter's ttg has came down dramatically over the years, but we never quite hit the below range (We came SUPER close with one of our tests). Our doctor is not...
  19. GF-Cheetah Cub
    My 14 year-old daughter was diagnosed with type 1 diabetes at the age of 10. 3 months later she was also diagnosed with celiac. Her ttg was sky high (it seems your son's ttg is also sky high). Our endo offered to formally diagnosed my daughter with celiac without an endoscopy, because she has never seen anyone with that high of a ttg number to not be...
  20. GF-Cheetah Cub
    Your daughter is only 7 years old. I believe with a strict gluten-free diet, and some time, she will grow. My daughter was diagnosed at age 10. When she was younger, she was always tall for her age. She was in the 90% percentile as a toddler. When she was finally diagnosed at age 10, we noticed that she did not grow at all for a little over...
  21. GF-Cheetah Cub
    My family visited Peru (my 13 year old has celiac) last Christmas, and we found Peru rather gluten free friendly. Peru is the land of corn and potatoes, and they have lots of grill meats. Their cooking ingredients tend to be naturally gluten-free. We did the 4 day Inca trail hike to Machu Picchu, and our chef did a great job making gluten-free meals...
  22. GF-Cheetah Cub
    After we bought our Zojirushi breadmaker, we loved it so much, we bought their rice maker too. So, I know the cute little songs the rice maker makes! LOL. Their breadmaker is very easy to use. After you put all the ingredient together, you push the gluten free setting, and wait a couple of hours, you will get a beautiful loaf of bread. The...
  23. GF-Cheetah Cub
    Shortly after my daughter was diagnosed with celiac, I researched and bought a Zojirushi bread machine. It has a gluten free baking setting on it. I have had great success with it, and made many, many loafs of fresh gluten-free bread. Of course, we only use it to bake gluten-free bread. Very easy to use, easy to clean. We love it. https://www...
  24. GF-Cheetah Cub
    Same here. Our doctor told us that my daughter does not have celiac right after the endoscopy. We were overjoyed. 2 weeks later, they called and gave us the test results, and that she does have celiac. I would wait at least until the actual results before worry about next steps.
  25. GF-Cheetah Cub
    "If the biopsy is negative, then is there another test that can be done to make sure I really don't have celiac? " Yes, we can do a genetic testing for the celiac gene, I think it is the DQ2 and DQ8 gene, and maybe one other. If you don't have one of these genes, I was told that you can not have Celiac. See if your insurance will pay for one...
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