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kabons

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kabons

  1. kabons
    That’s interesting! The last time I definitely got glutened was about a year ago and the reaction was severe for a small amount. Is it possible I’ll react badly sometimes and other times not? Regardless, I’ll continue to be careful... the pain I had this time around (which not as bad as I would expect) was bad enough to motivate me to steer clear...
  2. kabons
    Hey everyone! I just had a really weird experience. So, I’ve been diagnosed Celiac for 5 years. I was highly symptomatic before diagnosis (constant stomach issues, joint pain). Since quitting gluten, I’ve had a few accidental encounters (a little barley in soup etc.) that resulted in severe burning pain. I also often have a few weeks at a time with general dig...
  3. kabons
    Well, I did have an endoscopy 1yr after being gluten-free because I couldn't tolerate gluten at all (still can't - makes me extremely sick). I didn't hear back about the results so I assume they didn't show anything. I'm a million times better gluten free. As I said, I can't even tolerate it in small amounts without severe pain and vomiting. However, I've...
  4. kabons
    Hey everyone! I've been gluten free for 5 years after getting a very positive Deamidated Gliadin IgG (66.7). Long story short, I only recently started getting follow-up support for my Celiac because the first gastro I saw was very unhelpful. For the first time in 5y, I took the blood test again, and the number isn't much lower: 41.5 How should I interpret...
  5. kabons
    Hey! This is interesting. So, you have these reactions from your medications not being entirely gluten-free? Or, are you saying you take these medications to help control these symptoms?
  6. kabons
    Yup, had a high antibody. The gastro who was working with me (very rude, ignorant guy) tested a second time two months after I first went off gluten. The antibodies went down a little, but he said they should have gone down a lot more if I was truly Celiac. He then told me I have IBS and gave me a pamphlet about fibre. Which is pretty messed up because GI...
  7. kabons
    The Fasano is a good idea. It's a new thing to try. I did keep a copy of my blood test, but it doesn't seem to carry a lot of weight for medical professionals (even though it was really high?). Question about SIBO - Is that a scientific thing? I asked my Dr yesterday about the possibility of bacterial overgrowth and he practically interrupted me...
  8. kabons
    Good to know about the family history thing. So, this too is complicated. Because I wasn't willing to do the gluten challenge, the gatro I was seeing (who I now think is pretty unknowledgeable about celiac) gave me one other option for diagnosis. We re-tested after a month of a gluten-free diet, and he said the antibodies should some back way lower if...
  9. kabons
    Yup, tried that already this summer. Didn't reveal anything.
  10. kabons
    Yup! I had that for a few months a few years ago. It was very strange. Painless, uncontrollable, and sometimes pretty violent twitching! Really bothers me that we have no idea what it is. These are not to be confused with intestinal spasms that ARE super painful. I got those a few months ago when I had some form of stomach flu. When you already have...
  11. kabons
    Interesting! I get pain frequently on either the left or right side when I'm having general digestive issues. However, I get a distinct burning pain in my lower left side when I'm glutened.
  12. kabons
    Hey! I'm also from Ontario So, I don't know if smelly gas is related so much to Celiac or just gut issues in general. But I can say I very much have this problem. When it happens, I isolate myself in my room. I can end up passing gas every 5min for 8h or so (throughout the night often). It reeks! Sometimes I feel like the smell is like burnt rubber...
  13. kabons
    Hey guys, Been crying for a couple hours after a discouraging Dr appointment and need some encouragement. I've been gluten-free for 5 years. I made the big mistake of going gluten-free before getting fully tested. Despite having most of the classic celiac symptoms and a very positive blood test result, I never received an actual diagnosis because I could...
  14. kabons
    Hey there, I call it "having the cereals"... when my stomach has been sick (likely from gluten issues), I can't stomach anything but dry gluten-free cereal and smoothies. Sometimes for days. It can take a long time to feel normal again!
  15. kabons
    Hi there, This won't be helpful in terms of your questions... but I'm disappointed on behalf of your family that your naturopath didn't suggest Celiac testing before having your daughter go gluten-free. Especially since you found a link between gluten and her pain?
  16. kabons
    Hi Chris, Have you been tested for Celiac?
  17. kabons
    Hi there, Have you noticed severe reactions to gluten after eating it? If not, I would encourage you to do a gluten-challenge and get tested. If you are symptomatic, the reactions will often get worse the longer you avoid gluten, and it will become more difficult to ever do the tests. The benefit of finding out for sure if it's celiac is you will know...
  18. kabons
    Thanks for your response! I guess my story is more complicated than just a 'diagnosis'. I had very typical celiac symptoms for years and finally got a blood test taken for celiac (back in 2015). By that point it was pretty obvious to me that I was reacting to gluten and stopped eating it. My blood tests came back mixed- one was very positive, the other...
  19. kabons
    Hey everyone, So, I was diagnosed about 5 years ago and ever since have been sharing a kitchen with 2-3 other single girls. I have never made the effort to switch out any utensils etc. in the kitchen because it felt too overwhelming. However, lately I've been trying to think about it more as I continue to have lots of digestive issues/stomach pain and...
  20. kabons
    I was diagnosed 4 months ago, but have been gluten free for about 10 months. I think I am finding that my sensitivity is getting more intense, which sucks. One positive thing (ish) is that I think I am understanding my body more in terms of how I react. Although, it's a little different each time depending on different factors, especially how much I've...
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