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ktyler44

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ktyler44

  1. ktyler44
    I've heard about DH scars that are purple, but the scars I have where my lesions are healing are more dark pink not purple. The lesions get scaly and then heal. Anyone else like that?
  2. ktyler44
    My husband has raised cattle all of his life. He's 67. Yes, we provide mineral blocks for them.
  3. ktyler44
    Thank you. That helps a lot. We raise our own beef and chicken. The laying hens are free range and get a small amount of chicken feed. The cows are grass fed, so those are pretty safe.
  4. ktyler44
    What's that?
  5. ktyler44
    I'm a little confused. Were you saying 2 weeks from the time the breakout started for getting a biopsy? Also, I'm still not sure about much iodine a person has to have for health. I haven't used iodized salt at home for years. I use Redmond Real Salt, which I'm sure has a trace amount of naturally occurring iodine like all sea salt. However, when eating out...
  6. ktyler44
    And those darn bugs have bitten me in at least 500 different places. Right? My rash keeps growing. It started with one small place on my back and now covers my torso - boobs and all. It is slowly breaking out on the inside of my elbows and forearms. It's on my butt and top of the back of my thighs. A few on my legs. I just don't know whether I should bother...
  7. ktyler44
    It's true that some have more symptoms and different symptoms than others. But Celiac is Celiac, whether it's manifesting as GI symptoms or DH. The same risk for intestinal damage applies to all. Also, symptoms tend to change or vary within an individual. I used to get bad GI symptoms. Now I'm getting a DH reaction, which I didn't have before. A friend...
  8. ktyler44
    But if you have DH, that means you are Celiac. And complications can come from that if you are still getting cross contaminated. You could still be doing damage to your small intestines. Right?
  9. ktyler44
    Squirmingitch, I noticed you mentioned something about the full blood panel test for celiac on another post. My son is going to a GI this week to see about getting tested. Could you post that info here or direct me to where we can find what the full panel consists of, please? Thank you.
  10. ktyler44
    I do have another question, though. Is it unusual for it to keep breaking out and spreading over my body? It's on my stomach and breasts, a few new places on my back and buttocks, one on the back of my neck and one on the back of my scalp. Now I think it's starting on my leg. I already had a couple on my face. I guess I didn't expect it to spread that...
  11. ktyler44
    Thank you so much for all of that info. That really helps me even if I don't have all the answers I'd like to have since they don't seem to exist at this point in time. I, too, am a research freak and have been trying to glean as much knowledge as I can anywhere I can.
  12. ktyler44
    I guess what I still don't get is that I've been eating gluten free for the past almost 3 years, except for the occasional accidental exposure. I've never had this type of reaction before. Actually, I was thinking about doing the gluten challenge a while back but decided after a couple of days that I didn't want to risk it. I had eaten plenty of gluten...
  13. ktyler44
    I had no idea you had to be on gluten that long for a dh test. I figured if you were breaking out they could test. The doctor knows I've been eating gluten free, but didn't say anything about having to eat gluten for the biopsy. I have been "loosely " diagnosed with Celiac by my GP due to multiple symptoms and my gene test, plus the improvement I have...
  14. ktyler44
    Thank you. I just came from the dermatologist. This whole DH thing is all new to me. I've had little bumps break out on occasion that I didn't associate with celiac, but I've never had a breakout like this before. I don't have insurance and can't afford the biopsy until I get some, but he said it definitely looked like DH to him. UGH!
  15. ktyler44
    How long do the bumps keep breaking out after getting glutened? Getting the rash is a new development for me.
  16. ktyler44
    How long does DH stay active for testing purposes? I have an appointment with a dermatologist in a couple of days, but I worry that my rash may be too far into it to show anything on biopsy. The first spot broke out about two weeks ago and another one a week later. I do have quite a few more random spots that have broke out over the past few days but not...
  17. ktyler44
    The photo isn't blurry on my end. And yes, I was diagnosed by means of gene test, symptoms, and improvement off gluten. The first doctor didn't test properly and I didn't want to go back and do the gluten challenge when I changed doctors. I had already taken myself off gluten and made a lot of progress. My new doctor gene tested me and I have two copies of...
  18. ktyler44
    Thank you. I used to get a breakout on my hand and it would blister and turn purple before going away. When I was a teen the doctor tried to tell me it was a type of herpes, but married for over 35 years and having 5 children and 10 grandchildren no one else has ever got it. If it was herpes, it would be contagious. I didn't know about DH or Celiac back then...
  19. ktyler44
    Thank you, but many of the pictures wouldn't show up. Says the site was temporarily down or had been removed.
  20. ktyler44
    I posted a couple of questions and a picture the other day. It's had many views but no responses. Anyone? Thank you.
  21. ktyler44
    Where is the DH photo bank on here that I've heard mentioned? Also, I sometimes get bumps on my face that sometimes itch and then ooze and crust. Others just go away without any problems. They aren't really in clusters but I usually get 2 or 3 scattered around. Now, I have a straight line of something itchy on my back that I have never had before. I haven...
  22. ktyler44
    I really don't see where anyone was being a bully. I do see a very aggressive attitude on your part. I'm sure everyone here wishes you well with your treatment. There was just concern that others may get the idea that Rituxan is a safe way to go for everyone. There are many newly diagnosed members on here and they are looking for help through this forum....
  23. ktyler44
    Is it possible to have the celiac gene and be non-celiac gluten sensitive? Or if you are reacting to gluten and carry the gene, does that give an indication of celiac? My son's blood test came back negative, but the doctor wouldn't do an endo biopsy because she said he didn't have celiac. But if he carries the gene and had symptoms, wouldn't that be a red...
  24. ktyler44
    I've never required antibiotics with these flares. It's digestive only with abdominal pain and constipation. It usually lasts 3-4 days and the pain is over the whole abdominal area.
  25. ktyler44
    What I don't understand, though, is that I never did react after those three days. Yet, other times when I've only eaten a little by accident, I'm in pain for days. Also, how can I tell the difference if this is a diverticulitis flare or celiac flare? I always assumed these were from gluten. Now I'm not sure.
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