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Feeneyja

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Feeneyja

  1. Feeneyja
    I just want to chime in with another negative blood and biopsy experience but clearly gluten hurts my body. It has taken me months to feel better after my gluten challenge. I was just glutened for Halloween (either one of my kids got me or my in-laws crumb laden home where we spent the evening). Both me and one of my daughters are gluten intolerant...
  2. Feeneyja
    The number of folks walking around who don't know they have celiac is going down (from 80% to about 50%). That is due to testing and awareness. The overall rate within the population is independent of rate of diagnosis. The population rate says that in any random sampling, you will find x number with the disease. So something is increasing the rate in the...
  3. Feeneyja
    The prevelance rates have always been based on random screenings of the population. Pick 1000 people, and 1% will wave celiac disease. Of those with celiac, 50-80% won't know they have it. This presentation points to a huge increase in population based data. I believe a recent study in Italy pointed to the same thing. The rate of celiac disease is increasing...
  4. Feeneyja
    Inflammation is the critical point, I think. I keep wondering if inflammation is stopped early enough in the disease process (pick any disease, really), if there can be complete recovery without drugs. In many ways, celiac disease is a great example of this. We know what causes the immune response and subsequent inflammation and look what happens when you...
  5. Feeneyja
    Lots of folks with gluten intolerance (celiac or NCGS) also have a big problem with milk. Sometimes the symptoms are just as bad as with gluten. You might want to consider removing dairy until you heal.
  6. Feeneyja
    Right. Look up the drug. It's an immunosuppressant (the article doesn't say that, FDA info does). The risk for immonosuppressants is greater likelyhood of an infection your body can't fight. Of course, the interesting thing is that no one mentions the role of diet in inflammation. Drug money rules.
  7. Feeneyja
    I know you can find the number for Aldi's online. I have called them with questions about a product not specifically labeled gluten free. Based on a number found on the packaging info, they were able to put me into touch with the exact company that produced that product for them. I was able to ask about potential gluten cross contamination. Very helpful....
  8. Feeneyja
    One of my daughters is milk intolerant. She had a history of mucus and phlegm and I didn't connect it right away. One day while drinking kefir she got a weird sensation in her throat and almost threw up. That happened twice. We cut milk and it has never happened again. The mucus is gone as well as an eye twitch/tick she developed. So, it may be the...
  9. Feeneyja
    This paper from 2015 suggests the opposite is true: High Proportions of People With Nonceliac Wheat Sensitivity Have Autoimmune Disease or Antinuclear Antibodies. https://www.ncbi.nlm.nih.gov/m/pubmed/26026392/ Of course correlation does not equal causation, but it is compelling and something worth watching.
  10. Feeneyja
    I hhad been gluten free for several years for my daughter (who also is NCGS). It turns out that I am also gluten intolerant. I went on a gluten challenge for testing. Only lasted 1 month (supposed to be 3 months long). I did not test positive so am technically also NCGS. I haven't pursued genetic testing for either of us yet. But I can tell you that...
  11. Feeneyja
    These kinds of articles are a joke. The processed food diet is dangerous.
  12. Feeneyja
    Also, this site has some great ideas (paleo is inherently gluten free so that's a good place to look): http://nomnompaleo.com/post/59118514268/paleo-lunchbox-roundup
  13. Feeneyja
    My kids eat any of the following cold for lunches: Pepperoni Pizza Muffins: https://elanaspantry.com/pizza-muffins/ Left Over Pizza (using this Crust: https://www.americastestkitchen.com/recipes/7853-the-best-gluten-free-pizza Meat and Cheese role ups (just roll up lunch meat with a cheese slice) Hard Salami slices and cheese slices Hot...
  14. Feeneyja
    Just want to chime in that I too was negative (8 week gluten challenge, I had bee gluten free for two years for my daughter who is also gluten intolerant) and it took at least a month to feel better. Some symptoms resolved quicker than others. The bloat was the first to go. But the dizziness and problems with eye focus took longest. The constipation and...
  15. Feeneyja
    Well, high GI foods are TERRIBLE for someone with SIBO. I know first hand. My daughter had a confirmed SIBO diagnosis. Anything with fermentable carbs (low GI foods, fiber, complex starches) made her blow up like a balloon. From a dietary standpoint, she needed to cut all starches and high fiber foods. Red potatoes and Jasmine rice were actually OK because...
  16. Feeneyja
    My daughter's doctor had to provide documentation as to why it was needed for two weeks (it's typically prescribed for three days for travelers diarrhea). Once the additional paperwork was put in, it was covered. Alternatively, you can use Flagyl. But some don't tolerate it as well. Or you can use herbal antibiotics (oregano oil, garlic extract, berberine...
  17. Feeneyja
    My daughter's burping what terrible! We saw a pediatric GI at the University of Chicago. Insurance covered the breath test. We tried flagyl first but my daughter had a bad reaction to it and so the doctor ordered Xifaxin. She had to submit additional information to get it covered, but ultimately it was covered by insurance. But honestly, the SIBO returned...
  18. Feeneyja
    My daughter has had SIBO. The gas and belching and bloating were terrible. Probiotics DID NOT help. They made her worse. The standard antibiotics only temporarily helped. Diet change (SIBO Specific Diet - really reduced fermentable carbs), two months of different herbal antibiotics, daily Atrantil (a supliment created to help treat SIBO), daily Iberogast...
  19. Feeneyja
    Absolutely! I have a history of weight loss, headache, fatigue, bone breaks, various GI issues, dizziness, sores in mouth, hair loss. I went gluten free for my daughter, who was biopsy and blood work negative (so NCGS) and belatedly realized I had all of these problems resolve on the gluten-free diet. I underwent a gluten challenge and was super sick, tested...
  20. Feeneyja
    I have Non Celiac Gluten Sensitivity (as does my daughter), and both of us have a history of migraines when glutened. I have had them my whole life until we went gluten free. I could never figure out my trigger. Now, if I am glutened, that is one of the early symptoms (first it is stomachache, then headache, then sores in mouth, then dizziness and fatigue...
  21. Feeneyja
    My daughter did not test positive for celiac (6 week gluten challenge after being gluten free for 2 months). So she is technically NCGS. One of her worst symptoms is leg pain. It was a chronic problem when she was 7, to the point where she could no longer play soccer. At 8 we went gluten free because of GI issues and the leg pain went away. It came back...
  22. Feeneyja
    A lot of celiacs who don't feel well after adopting the gluten free diet test positive for SIBO (small intestine bacterial overgrowth). It can seem like you are having issues with all kinds of other foods. Namely, foods that are easily fermentable feed the bacteria in your small intestines that don't belong (they belong in your large intestines). Those...
  23. Feeneyja
    It's a personal choice (obviously). i have a daughter who did not test positive on her gluten challenge. We were told to continue eating gluten. I took her off of it. She did so well before the challenge when gluten free that to make her sick for testing was just heartbreaking. And her symptoms are primarily neurological. When I told her GI that she...
  24. Feeneyja
    These are all low in fermentable carbs, but limit amounts to see what is tolerated (for us, 2 tortillas, two biscuits, one sandwich round) and don't load up on lots of baked goods in a day I try to limit it to one baked good per day Tortilla/ flat bread: http://comfybelly.com/2013/04/tortillas-and-a-book-giveaway/#.WScABoFOmEc Sandwich Rounds...
  25. Feeneyja
    Also want to say that a lot of gluten free recipes are not good for SIBO- too many starches. Also large quantities of almond flour or coconut flour have too much fermentable fibers so be careful with Paleo/SCD recipes too. It's a bit of a balancing act in what you make and how much is eaten (that's why I like fast Tract- you can qualify things and it works...
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