Jump to content

Feeneyja

Advanced Members
 View Profile  See their activity

  • Posts

    162

  • Joined

  • Last visited

  • Days Won

    4

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Feeneyja

  1. Feeneyja
    I just want to chime in with another negative blood and biopsy experience but clearly gluten hurts my body. It has taken me months to feel better after my gluten challenge. I was just glutened for Halloween (either one of my kids got me or my in-laws crumb laden home where we spent the evening). Both me and one of my daughters are gluten intolerant...
  2. Feeneyja
    The number of folks walking around who don't know they have celiac is going down (from 80% to about 50%). That is due to testing and awareness. The overall rate within the population is independent of rate of diagnosis. The population rate says that in any random sampling, you will find x number with the disease. So something is increasing the rate in the...
  3. Feeneyja
    The prevelance rates have always been based on random screenings of the population. Pick 1000 people, and 1% will wave celiac disease. Of those with celiac, 50-80% won't know they have it. This presentation points to a huge increase in population based data. I believe a recent study in Italy pointed to the same thing. The rate of celiac disease is increasing...
  4. Feeneyja
    Inflammation is the critical point, I think. I keep wondering if inflammation is stopped early enough in the disease process (pick any disease, really), if there can be complete recovery without drugs. In many ways, celiac disease is a great example of this. We know what causes the immune response and subsequent inflammation and look what happens when you...
  5. Feeneyja
    Lots of folks with gluten intolerance (celiac or NCGS) also have a big problem with milk. Sometimes the symptoms are just as bad as with gluten. You might want to consider removing dairy until you heal.
  6. Feeneyja
    Right. Look up the drug. It's an immunosuppressant (the article doesn't say that, FDA info does). The risk for immonosuppressants is greater likelyhood of an infection your body can't fight. Of course, the interesting thing is that no one mentions the role of diet in inflammation. Drug money rules.
  7. Feeneyja
    I know you can find the number for Aldi's online. I have called them with questions about a product not specifically labeled gluten free. Based on a number found on the packaging info, they were able to put me into touch with the exact company that produced that product for them. I was able to ask about potential gluten cross contamination. Very helpful....
  8. Feeneyja
    One of my daughters is milk intolerant. She had a history of mucus and phlegm and I didn't connect it right away. One day while drinking kefir she got a weird sensation in her throat and almost threw up. That happened twice. We cut milk and it has never happened again. The mucus is gone as well as an eye twitch/tick she developed. So, it may be the...
  9. Feeneyja
    This paper from 2015 suggests the opposite is true: High Proportions of People With Nonceliac Wheat Sensitivity Have Autoimmune Disease or Antinuclear Antibodies. Open Original Shared Link Of course correlation does not equal causation, but it is compelling and something worth watching.
  10. Feeneyja
    I hhad been gluten free for several years for my daughter (who also is NCGS). It turns out that I am also gluten intolerant. I went on a gluten challenge for testing. Only lasted 1 month (supposed to be 3 months long). I did not test positive so am technically also NCGS. I haven't pursued genetic testing for either of us yet. But I can tell you that...
  11. Feeneyja
    These kinds of articles are a joke. The processed food diet is dangerous.
  12. Feeneyja
    Also, this site has some great ideas (paleo is inherently gluten free so that's a good place to look): Open Original Shared Link
  13. Feeneyja
    My kids eat any of the following cold for lunches: Pepperoni Pizza Muffins: Open Original Shared Link Left Over Pizza (using this Crust: Open Original Shared Link Meat and Cheese role ups (just roll up lunch meat with a cheese slice) Hard Salami slices and cheese slices Hot Dog Bites: Open Original Shared Link Hamburg Bites ...
  14. Feeneyja
    Just want to chime in that I too was negative (8 week gluten challenge, I had bee gluten free for two years for my daughter who is also gluten intolerant) and it took at least a month to feel better. Some symptoms resolved quicker than others. The bloat was the first to go. But the dizziness and problems with eye focus took longest. The constipation and...
  15. Feeneyja
    Well, high GI foods are TERRIBLE for someone with SIBO. I know first hand. My daughter had a confirmed SIBO diagnosis. Anything with fermentable carbs (low GI foods, fiber, complex starches) made her blow up like a balloon. From a dietary standpoint, she needed to cut all starches and high fiber foods. Red potatoes and Jasmine rice were actually OK because...
  16. Feeneyja
    My daughter's doctor had to provide documentation as to why it was needed for two weeks (it's typically prescribed for three days for travelers diarrhea). Once the additional paperwork was put in, it was covered. Alternatively, you can use Flagyl. But some don't tolerate it as well. Or you can use herbal antibiotics (oregano oil, garlic extract, berberine...
  17. Feeneyja
    My daughter's burping what terrible! We saw a pediatric GI at the University of Chicago. Insurance covered the breath test. We tried flagyl first but my daughter had a bad reaction to it and so the doctor ordered Xifaxin. She had to submit additional information to get it covered, but ultimately it was covered by insurance. But honestly, the SIBO returned...
  18. Feeneyja
    My daughter has had SIBO. The gas and belching and bloating were terrible. Probiotics DID NOT help. They made her worse. The standard antibiotics only temporarily helped. Diet change (SIBO Specific Diet - really reduced fermentable carbs), two months of different herbal antibiotics, daily Atrantil (a supliment created to help treat SIBO), daily Iberogast...
  19. Feeneyja
    Absolutely! I have a history of weight loss, headache, fatigue, bone breaks, various GI issues, dizziness, sores in mouth, hair loss. I went gluten free for my daughter, who was biopsy and blood work negative (so NCGS) and belatedly realized I had all of these problems resolve on the gluten-free diet. I underwent a gluten challenge and was super sick, tested...
  20. Feeneyja
    I have Non Celiac Gluten Sensitivity (as does my daughter), and both of us have a history of migraines when glutened. I have had them my whole life until we went gluten free. I could never figure out my trigger. Now, if I am glutened, that is one of the early symptoms (first it is stomachache, then headache, then sores in mouth, then dizziness and fatigue...
  21. Feeneyja
    My daughter did not test positive for celiac (6 week gluten challenge after being gluten free for 2 months). So she is technically NCGS. One of her worst symptoms is leg pain. It was a chronic problem when she was 7, to the point where she could no longer play soccer. At 8 we went gluten free because of GI issues and the leg pain went away. It came back...
  22. Feeneyja
    A lot of celiacs who don't feel well after adopting the gluten free diet test positive for SIBO (small intestine bacterial overgrowth). It can seem like you are having issues with all kinds of other foods. Namely, foods that are easily fermentable feed the bacteria in your small intestines that don't belong (they belong in your large intestines). Those...
  23. Feeneyja
    I read the actual Vatican statement. Nothing has changed from before. This is a clarification. The low gluten hosts are still OK. In the Catholic Church "matter" (the stuff used for the sacrifice) matters. Not a debate about why. So the hosts must be made from wheat, not contain sweeteners, be unleavened, and freshly made. There are reasons for all...
  24. Feeneyja

    ARCHIVED POTS

    Feeneyja replied to Feeneyja's topic in Related Issues & Disorders

    Thanks ccrew. I don't technically have celiac disease. I was very sick from my gluten challenge but did not test positive. I'm trying to decide if it's worth going to a cardiologist about this since lifestyle change is the first treatment. My GP said it could be vertigo and/or POTS. Not exactly a diagnosis. I'm supposed to just keep on keeping on and...
  25. Feeneyja

    ARCHIVED POTS

    Feeneyja replied to Feeneyja's topic in Related Issues & Disorders

    Thanks ccrew. I'm trying to figure this out. I think I had some POTS symptoms for a while, but nothing like during the gluten challenge and now it's like something new has emerged. I'm definitely better off of gluten, but I'm still seeing heart rate spikes that result in eyesight issues and dizziness. Water and salt seem to help quite a bit. I need to get...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.