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docaz

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by docaz

  1. I hope that the COVID thing will resolve before you finish reading it.
  2. My children were in a similar situation. They were pretty much asymptomatic but they were incidentally diagnosed because of the high antibodies. They had the entire celiac panel, genetic test and endomysial test. On a gluten-free diet the numbers went down but when they started taking the enzymes then numbers went completely normal and we know that...
  3. This is a description of the enzymes by one of the most prominent celiac researcher there is https://www.healio.com/news/gastroenterology/20170831/latiglutenase-improves-symptoms-in-celiac-disease A follow up study is being planned and patients are being recruited. This is the underlying patent that explains how the enzyme combination of two complementing...
  4. I have been working with enzymes for many years and until recently, most celiacs cringed when they heard the word "enzymes". That is clearly changing. Now you can even see on the Stanford University celiac page under the highlighted innovation section that enzymes can prevent an inflammatory reaction. https://stanfordhealthcare.org/medical-clinics...
  5. I just learned something from you and I looked it up. Indeed with the newer scopes that use a camera chip you can magnify enough to see the villi. In my practice, I use magnification but through a microscope and not endoscopes. I am an oral maxillofacial surgeon. I started my training in Germany before moving to the US and I went to a special double...
  6. I want to make sure that you do not mislead you. I do not do endoscopies but work in the head and neck and the mouth areas. What the doctor probably meant to say is that the surface appeared smooth and very shiny rather than the typical velvet-like texture that one expects if the villi are present. The difference in wording might sound like semantics...
  7. This is absolutely true. Villi or so tiny that they are far too small to be seen by the eye no matter what scope is used. The endoscopy can show redness or ulcerations of the esophagus, stomach and small intestine but it is absolutely impossible to diagnose blunted villi or celiac disease from that. There are many, many conditions that cause changes in GI...
  8. The blunted villi and the blood tests are completely different tests. You can have blunted villi for many reason and the diagnosis of celiac disease is based also on a specific type of white cells that can be seen in the lining of the small intestine. It is wise to follow up with sequential blood tests (usually yearly) because these will show you are...
  9. In order to have a somehow normally functioning society, if all restrictions are based on the few exceptions instead of the large majority, the system collapses. Obviously the FDA has the task of protecting as many people as possible but if only medications or devices would be approved that have 0 complications, then nothing would get approved. Therefore...
  10. It gives us the freedom to eat gluten-free food in situations in which we do not have complete control over the environment. The trip on the picture below, would not have been possible without the enzymes.
  11. It is true that life is not fair but I am trying to teach them to be kind to others and to be resourceful whenever possible. They take enzymes and just two days ago the yearly blood tests came out perfect.
  12. I am making the assumption (and please correct me if I am wrong) that you travel alone and in that case it is much easier. Well, we do like cruises and guided bus tours. My kids also want to go to camps or other social gatherings or just simply have a sleepover at a friends house. All that is not possible and I think that we can not minimize the emotional...
  13. I am very glad that it is easy for you. I am not sure if you travel alone or with others. I have been on kho samui and it is a wonderful island. For our family before adding enzymes, traveling was a nightmare. We brought all kind of foods with us but it was still very hard. We have three very active kids with all kind of different tastes for food and cooking...
  14. The FDA finally is making a scientifically proven statement that distilled alcoholic beverages are gluten-free because the distillation process does not allow for gluten to get into the final product. If some people react to the beverages it is not the gluten, but something else. Recent research shows that many people who think that they are reacting to gluten...
  15. By the way, who should offer tens of thousands of dollar and additional perks to all the people who are exposed to gluten unintentionally. How about to the many that sometimes intentionally cheat because they can not take it anymore to live in a zip-lock bag? All medical trials come with risks but before they are started at least in the US, they have...
  16. You are suggesting that Dr. Joseph Murray, the the head of the Mayo Clinic who is one of the most respected celiac experts in the world and who is quoted on this site over and over again, is conducting a dangerous study without regard to his patients. Please substantiate your statement so that we can all understand why you think that's the case. By the...
  17. This is a big step forward from the FDA, removing scientifically unsubstantiated uncertainty regarding gluten content which is not detectable in distilled beverages.
  18. This posts misrepresents the previous statements and completely ignores the fact that NOBODY suggests to roll the dice and eat gluten. You are actually rolling the dice every time when you eat out of your house because you know with almost 100% certainty that you will unknowingly be exposed to gluten. In fact, you create a false sense of security but...
  19. There are three essential questions here 1. Is the absorption affected once the gluten passed through the small intestine? The answer to this is that change in absorption is not an on and off switch and even unless the gluten is consumed on a regular basis, a one time event does not affect the absorption but it does contribute to trigger an inflammatory...
  20. Since you wrote "dubious" so many times, I will post some more papers to neutralize each one. Please look at this paper that was recently published buy an international group of leading clinicians and please look at the chapter "Gluten degradation as a treatment". I hope that after you read it, at least one dubious transforms into cautious optimism ...
  21. That's great that you can do that and you do not need enzymes. Many people do not want to lead that type of lifestyle. Most people who run a household, have to send kids to school with lunch, attend social and business meetings can not do what you are doing.
  22. This is my best try for a short attention span Certain (not all) enzymes break down the proline-glutamine bindings of the gliadin molecule into very small fragments that the body further breaks down in even smaller segments in the stomach and these small fragments do not cause damage in the small intestine.
  23. This comment is not protecting anybody from a "dubious product" is not only ignoring serious science but it is harmful if it discourages people to read the science. At this time, we know that a pure gluten-free diet without cross-contamination and without any incidents of accidental ingestion is impossible unless you never leave your home and cook everything...
  24. There are recent studies suggesting that symptoms attributed to gluten are in fact related to complex sugars like fructan. You can take with every meal alpha-galactosidase enzymes which are very effective in breaking down complex sugars that the body can not break down. They are cheap and easily obtainable (Beano or the less expensive version Bean-zymes)...
  25. Blunted villi can range from mildly blunted to almost flat. If your villi have only lost the tip and are rounded (blunted) instead of greatly reduced in size, the absorption is mostly unaffected. If you want to go into more depth you could ask the pathologist to reviewed the slides to send you an image of a typical section that shows the damage and you can...
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