ccrew99
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How long have you been doing this? And what kind of creatine( capsules, brand)?
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When I found out I had celiac I also got diagnosed with POTS and gastoparesis around the same time. I’m not sure which one started what but that’s what I got stuck with. If you have had celiac for a long time without knowing it can lead to a cascade of other heath issues. One point I need to make is that the gastroparesis actually causes the stomach mus... -
Celiac tongue?
ccrew99 replied to X-shane-X's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I used to get that as well. Don’t seem to get it anymore being gluten free, so I could see a link for sure. It could be from vit. deficiencies from celiac or just be from celiac. -
How long have you been off gluten?
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The only thing that looks like that and itches is DH in my mind. You can still have breakouts even if your gluten free, I have read several others on the show forum saying that. I’m not sure anyone really knows why. You could have ingested gluten and iodine somehow. Remember I’m no expert, but that does resemble how mine comes up.
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It does look like how mine presents. It also has a stinging itch- severe itch and takes about 2 weeks for it to finally heal. Sometimes turns purple in color and leaves a colored mark but eventually fades away. Mine also come back in the same place and on the adjacent side of the knee. I have been gluten free for about 3 years so it does not come up anymore...
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I got diagnosed with POTS after celiac diagnosis. I get Raynaud's phenomenon, muscle cramps/spasms, and had hives for a year and half. I'm not sure if there is any correlation between the symptoms but a lot of celiacs have multiple issues
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ARCHIVED vomiting ALL foods with celiac??
ccrew99 replied to sarahapril224's topic in Coping with Celiac Disease
I ended up with gastroparesis which causes delayed gastric emptying. Look into this as well. I ended up severely sick with this , not sure if celiac caused this but I have both. Chronic nausea and vomiting. Can not take any medications/supplements bc they do not leave my stomach quickly enough and build up toxicity very quickly. There is a test that can... -
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ARCHIVED Thinking about giving up
ccrew99 replied to kam00096's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I understand how you feel. I wasn't "officially diagnosed" celiac but had enough evidence that my docs and I put 2 and 2 together due to what we conconcluded to be DH, plus a gene test and positive blood work. I never did biopsy bc they said the ones with DH have a harder time getting diagnosed and I had enough proof for myself to never get back on gluten... -
ARCHIVED Angular Cheilitis
ccrew99 replied to JaneWhoLovesRain's topic in Related Issues & Disorders
Yes. It's awful!!! It was when I was deficient in b-12 but what I found out was that its not actually a symptom of b-12 deficiency but more so it's that your immune system can't fight off the natural bacteria in and around your mouth. I'm a dental hygienist and that made perfect sense to me. So I actually put neosporin on the corners of my mouth (very little... -
But yes POTS can make you feel terrible!!! It's not just when you change positions, it's that your brain isn't sending the right signals to your heart(nervous system) at the right time so you aren't getting adequate blood supply to various parts of your body. If you are nauseated and have a hard time eating your stomach may not be getting the blood it needs...
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I think if the gluten challenge started these symptoms it's a safe bet to say you definitely need to stay away from it regardless if testing negative. I have the dermatitis herpetiformis part of celiac( if they are still saying it's related) so I never had a lot of stomach symptoms like the rest and have been told it's hard to get a positive test result....
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Open Original Shared Link this is a forum I used to navigate POTS and it has some really helpful info and lists of POTS Drs
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That definitely sounds like POTS. Same symptoms for me as well. I just happened to get lucky finally and was sent to a POTS dr here in Dallas. From what I have read they are hard to find . It took many Drs and misdiagnosis after misdiagnosis sadly. Salt definitely helps. Interesting though a lot of POTS symptoms and adrenal symptoms are alike, so it's hard...
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I got diagnosed with POTS back in November. I had already been gluten free for about a year and half prior the POTS diagnosis. It was POTS that made me so sick for about 3 years and went undiagnosed until this November. I also had adrenal problems so it is my speculation that I had undiagnosed Celiac for so long that it damaged my adrenal glands which led...
