Palvyre
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cnazrael89 reacted to a post in a topic:
High ttg iga negative biopsy??
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I have frequent twitches especially when I don't eat enough. I think it's anxiety/stress related. The scary disease that can cause it, ALS, causes twitching in single areas that progress to muscle weakness. If you are having twitches in random muscle groups all over, that's most likely stress.
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Palvyre reacted to a post in a topic:
High ttg iga negative biopsy??
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High ttg iga negative biopsy??
Palvyre replied to AS2914's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had a high positive Ttg-IgA and a negative biopsy as well. My doctor gave me a genetic test which came back positive with a High Risk category. He then put me on a 4 month trial gluten-free diet and then reran blood work after that. My symptoms improved and my blood work went to normal. Based on that I was diagnosed with Celiac disease. A year later I had... -
Mccormick single ingredient spices are safe.
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You may have to get a lot more strict. I was extremely sensitive and got extremely sick from cross contamination. A blessing and a curse. I was able to completely eliminate gluten from my diet and my antibodies were < 3 after 4 months. I avoided any processed product not certified gluten free, I didn't eat out at all, I even found a family butcher for...
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The good, the bad & the ugly
Palvyre replied to Jojo0202's topic in Parents, Friends and Loved Ones of Celiacs
Thank you. I have worked hard to get here. I am extremely strict, I don't eat out and I avoid anything that is either not naturally gluten free or not certified gluten free. I don't take chances. I had a 2 year pity party where I gained a bunch of weight, over 60 lbs. Snacked on a bunch of cheese, used my Celiac and Osteoporosis as an excuse. I moved past... -
The good, the bad & the ugly
Palvyre replied to Jojo0202's topic in Parents, Friends and Loved Ones of Celiacs
I didn't deliberately not follow the diet, it took me over 20 years to find out what was wrong with me. By the time I figured it out I was very sick. I also have NAFLD and osteoporosis. I developed severe lactose intolerance and issues with all kinds of fruit sugars causing bloating and pain. I had severe GERD, IBS, balance issues, migraine headaches, vitamin... -
I found early in my diagnosis that I tolerated cashew milk okay.
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Biopsy Came Back Negative
Palvyre replied to Charmain Ross's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did you have a positive blood test? -
That sounds like a lipoma.
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testing was negative. can this change?
Palvyre replied to kim5798's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had symptoms from my early 20s on. I was tested in my late 20s due to symptoms consistent with Celiac and the test was negative. I was tested again at age 38 because I had gotten extremely ill, that time it was a very high positive. I had developed osteoporosis by that point though. -
That EMA test is extremely specific. It's over 99% accurate for Celiac. Given both your positives it's pretty much a definite.
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I had a negative biopsy, but was able to get a diagnosis of Celiac. I had positive blood work across the board with a ttg-IgA of 76.9, normal being < 15. When the biopsy came back negative I was sent for a genetic test. The genetic test came back positive with DQ2. 5 which labeled me "high risk". So I was put on a trial gluten free diet. My antibodies...
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Anal itching is a common symptom of malabsorption disorders. I had this for years. I was diagnosed with Celiac 2 years ago now and lactose intolerance. Eliminating those two has resolved the issue. If you are still having a problem after going gluten-free, I would try an elimination diet. The most likely candidate in a newly diagnosed celiac disease patient...