Bane808

It would be nice if people that posted several years ago regarding their symptoms would come back and update their post with new info. There's a lot of people out there that would like to know if you saw improvement in your symptoms, what happened, etc.

KassieK, Have you been able to treat your hypothyroid symptoms like the muscle stiffness? Back in 2013 I saw a Rheumatologist and they tested for Rheumatoid Arthritis, Sjogren's Syndrome, and Lyme's Disease, but everything came back normal...

Thanks KassieK, I had my Free T4 retested and it came back at 0.8. So just borderline. I also had Free T3 pulled and it came back at 2.99 pg/mL range (1.50-4.20)- so normal but not upper levels. With TSH being always optimum, I'm wondering if Free T4 is having to convert at a higher rate to produce enough Free T3, which would indicate something off...

Thanks for the replies ladies and gents. Still no word back on the Celiacs tests pulled. My free T4 (thyroid) came back a little low at 0.75 normal range is (0.8-2.2), but my TSH was optimum at 1.37. Now I'm wondering if I am indeed somewhat hypothyroid. This is the first time in years besides TSH that Free T4 has been pulled, and after reading up...

Thanks for the reply roomorganizing. I actually just had some blood work pulled the other day and two of the Celiacs tests were run. Since I'm a military dependent and get my healthcare through Tricare, my pcp can only order blood work through the local VA nearby, unless he wants to refer me out to a specialist. Apparently the VA only has two of the tests...

Whoa, Ferritin of 2?! I'm surprised you were functioning at all, Cyclinglady. That's super low. I'm a bit surprised though you didn't opt for the iron infusions. Do you mind me asking how long exactly it took to get your ferritin levels up, what were you able to increase it to, and did you see any improvements in symptoms?

That's great you saw some relief! I'm considering Iron Infusions B12 injections, I really don't want to be taking iron supplements for 6 months - 1 year to see some improvements in symptoms

Hi everybody, I'm very curious about people's experiences with iron infusions. My understanding is that iron deficiency anemia and/or low ferritin levels is very common in Celiacs, in fact it may be only telltale sign for some to actually get tested for Celiacs. I myself have a lowish ferritin level of 18 ng/mL but normal Hemoglobin, Hematocrit, MCV...

Okay, I appreciate the input. I think I will request a referral when I see my pcp again.

Hi everyone, First, just want to say, I have not been diagnosed with Celiacs, but I believe there is a possibility (a small chance if anything) I may have it. I am posting here, because honestly I don't have much else to go off of. I'm looking for advice or perhaps input from others on this forum who may have gone through similar symptoms. I know I'm...