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tessa25

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by tessa25

  1. Unless your test results say weak positive that is not a weak positive. It's twice the normal value.
  2. I'm no doctor, but if I were you and the celiac blood tests come up negative I'd definitely get tested for Lyme disease. Might not be a bad idea to do it anyway if you've been near ticks this summer.
  3. You should not go gluten free until after your gastroenterologist has done their testing. Did you have the full celiac panel done? A high on only one celiac test means you should have an endoscopy/biopsies to verify if you have celiac. The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA It might be different...
  4. If I were you I would stick to meat, veggies, potatoes, eggs, water for a few weeks to see if that helps things settle down. Then slowly add on a new thing every few days to see what causes issues.
  5. Ahhh, that makes sense. I never did understand the purpose gene testing for celiac.
  6. Are you saying you had a child with positive bloodwork and positive biopsy, but didn't have celiac? What did they have? I'm confused.
  7. The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA You can either have a gastroenterologist order the full celiac panel or you can order your own test at a site like walkinlab.com. At walkinlab.com it's called the celiac comprehensive antibody test and costs $298.00 (not covered by insurance). The blood draw is done...
  8. What she said. You need to go to a gastroenterologist for the endoscopy/biopsies.
  9. Wow, she sounds like a winner! I always ask for copies of all reports for my records. Why? Because I can.
  10. The menu at Moxies in Texas says it's for lifestyle gluten avoidance, not allergies.
  11. There are many do-it-yourself diseases out there. People with diabetes use a meter to keep an eye on their levels. Celiac is very much a do-it-yourself disease in that it's up to the patient to keep their disease under control. One way is symptoms and the other way is checking one of the blood test levels regularly. It's not done (or recommended), but I think...
  12. I'd get all of the bloodwork reports for the past six years from the doctor. I'd look at TTG to see if it has been drifting up/down or just went high this year. If it just went high this year then either one of your goto foods isn't gluten free like it used to be or something you added on this year isn't gluten free enough even though it says it is. You...
  13. The whole set costs $298 at the lab I go to. People react to different tests so no one test is better than the others.
  14. If the report says 5 is weak positive then it's weak positive. H (high) appears for anything other than negative. I'd recommend you get the full celiac panel done. It includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA A high on any one should lead to an endoscopy (biopsy). Technically you already have a high. But a weak positive...
  15. The prep doesn't discuss challenges. The challenge duration would typically be decided by your doctor. If you're testing to see if she has celiac the recommendation by the celiac experts is at least one slice of bread per day for 12 weeks. If you're testing for compliance with the gluten free diet or testing to see if numbers have gone down because of a gluten...
  16. walkinlab.com is where I go these days. It's called Celiac Disease Comprehensive. It costs $298.00 and is not covered by insurance. The test is done at your nearest Labcorp and results appear at walkinlab.com in less than a week. What I don't know is if online places can be used for children or if it's only for adults. You would have to ask.
  17. There are foods that help with constipation. For instance, large portions of cooked zucchini help get things moving. Magnesium gets things moving (easy to go overboard on that one).
  18. I'm not far enough along to eat out. My Celiac numbers only go down on a liquid diet. I recently went to Aimes dedicated gluten free Bakery in Longmont when I needed to gain weight. I highly recommend their chocolate eclair and macaroons. The cheesecake and quiche are good as well. I feel like teaching them how to make a proper egg sandwich though. I...
  19. I like Dr Rebecca Dunphy in Fort Collins but her appointments are 5 months out.
  20. IGA is used to verify that TTG IGA results are valid. So a high TTG IGA means you should have an endoscopy done by a gastroenterologist to verify if you have celiac.
  21. Get the full celiac blood test.. It includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA It's just a blood test, no reason not to do it. You have to be eating gluten for 12 weeks for the test to not show a false negative. One slice of bread per day is enough. A positive on any one test is supposed to lead to an endoscopy to...
  22. So here's what I found out regarding food: Note: insert the words "gluten free" in every item mentioned as some of the companies also sell non gluten free stuff. It's tedious to write that phrase all the time. Get a chest freezer to store all of your frozen gluten-free foods. Makes things easier. Bread: Canyon bakehouse without question is the...
  23. With celiac you can't ingest gluten at all, ever, not even a smidge. It can take months to get better once you go completely gluten free. And it can take months to recover from accidental gluten ingestion. So you probably haven't started recovering yet. Going gluten free is not easy for many people so you're not alone in this.
  24. You make me want to go to Montreal just to get croissants. I love a warm croissant with ham and swiss, melted, then lettuce, tomato and honey dijon mustard. Yum! I hear Schar sells croissants now. Will have to try once I get better.
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