Beverage
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About Me
Diagnosed celiac disease 2015 high gliaden & all gluten antibodies + response to gluten free diet. Thalassemia beta.
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knitty kitty reacted to a post in a topic:
New to all of this
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New to all of this
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New to all of this
Beverage replied to Newhere19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I got an official diagnosis from a naturopathic doctor, based on: 1. Very high blood antibodies 2.dna test and 3. Response to gluten free diet. I'm in the United States and have had absolutely no push back ever. My step granddaughter received an official diagnosis from an MD based on high antibodies blood test only. She's also in the U.S. and was told... -
Beverage reacted to a post in a topic:
Christmas Cake
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Beverage reacted to a post in a topic:
A year and a half of test confusion...
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Beverage reacted to a post in a topic:
A year and a half of test confusion...
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Beverage reacted to a post in a topic:
My 5 months of Struggle
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Beverage reacted to a post in a topic:
fed up italian
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Barbra S reacted to a post in a topic:
fed up italian
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Scott Adams reacted to a post in a topic:
Antibodies went up
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Antibodies went up
Beverage replied to Barcino's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sounds like you're very careful with food. Any possible airborne or non-eating exposures? One time I got really sick from feeding my neighbor's chickens, the feed would get kicked up and I'd inhale the dust, read the ingredients, yup gluten. Another time we were doing some home remodeling, removed some old plaster, probably gluten in that. Anything... -
Oh gosh. I remember being shocked when my new doc said he thought I had Celiacs (went in bcuz kidneys were failing, no intestinal issues), but relieved at first to find an explanation for my issues. Then as I hit the library and the internet and read up on Celiacs, I got sooooo depressed and overwhelmed. Funny you say "is it an italian thing?" ... I'm not...
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Beverage reacted to a post in a topic:
Options - 7 year old boy - Helicobacter pylori and serology
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knitty kitty reacted to a post in a topic:
Muscle Twitching
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knitty kitty reacted to a post in a topic:
Daughter recently diagnosed with Celiac and I am questioning my results...
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Scott Adams reacted to a post in a topic:
Daughter recently diagnosed with Celiac and I am questioning my results...
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Scott Adams reacted to a post in a topic:
Muscle Twitching
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Beverage reacted to a post in a topic:
Muscle atrophy in legs
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Beverage reacted to a post in a topic:
Muscle atrophy in legs
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Beverage reacted to a post in a topic:
Muscle atrophy in legs
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As Scott suggests, look into dermatitis herpetiformis. Also the rash there could be from SIBO small intestinal bacterial overgrowth or candida. If your regular doc won't investigate those possibilities, consider going to a naturopathic doc or integrative medicine doc.
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The forms of vitamins really mattered for me, maybe not for everyone but very much for me. Learned so much here. This b12, recommended by @Ennis-TX has really helped me since diagnose. I can tell when i run out that i don't feel as good. LIQUIDHEALTH Vitamin B12 Methylcobalamin Liquid Drops with Sublingual Hydroxocobalamin - Boost Energy, Support...
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Beverage reacted to a post in a topic:
Muscle Twitching
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Scott Adams reacted to a post in a topic:
Severe joint swelling from Celiac
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knitty kitty reacted to a post in a topic:
Severe joint swelling from Celiac
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Severe joint swelling from Celiac
Beverage replied to Jean Shifrin's topic in Related Issues & Disorders
I also did not have the so-called typical Celiac symptoms, my main complaint was always getting sick, asthma, loss of sense of smell, and kidneys were failing. My GFR was in 40's - 50's and docs saying "Kidneys don't get better, we can only slow the decline" also "We don't do anything for kidneys until you are ready for dialysis." I was blown away, so decided...
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I've been using eos lip balms. I usually get it at costco. Eos has little round balms, but also stick ones like chap stick. Costco has both. They are labeled gluten free when you buy individual balms, but the combo package from costco isn't always labeled gluten-free. The company web site says they are gluten-free. I'm pretty sensitive, I use the...
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Last time i checked, Burts Bees does not label anything gluten free. They had 1 lip balm that contained gluten, and their site said their products can be made on shared equipment.
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Some docs in the US are diagnosing without the endoscopy. My step granddaughter (age 19) and I were both diagnosed by different docs based on blood test, DNA test, and response to gluten free diet. If you haven't already had the Celiacs blood tests done, you would have to eat gluten again for many weeks prior. I do have a letter from my doc saying i...
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I feel like I'm a conundrum....
Beverage replied to zebra1975's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't get typical intestinal symptoms when glutened. I feel fine for weeks trying something new, then bam I feel like I've been hit by a truck, joint and bone aches, can't think straight, no energy, etc. I tried gluten free Oreos and it took eating a few a day over at least a month until the bag was almost gone, then wham. -
Premature Graying and Celiac Disease: A Case Study and Implications for Diagnosis
Beverage commented on Scott Adams's article in Latest Research
I started going gray at 23, a very white streak that looked cool at first but quickly expanded. I did not have typical intestinal symptoms, lots of extreme allergies and got a lot of colds. I wasn't diagnosed with Celiacs until age 59. I realized the connection immediately. Now I'm 68 and normal greying for my age.- 6 comments
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- autoimmune disorder
- celiac disease
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Constant Hunger
Beverage replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was 59 when diagnosed with Celiacs. I had not had the typical intestinal symptoms, mostly the pain, brain fox, etc. When I started gluten free, OMG, I couldn't get enough food and I dropped a ton of water weight / inflammation in the first few weeks. I was like a teenager, couldn't get enough and didn't gain back any weight, was actually too thin (bcuz... -
While you are following the advice of the above very knowledgeable people, you might want to try adding some vitamin C and magnesium to help things move along. If you've been undiagnosed with celiacs and had intestinal issues also, you are probably low on a lot of nutrients. On vitamin C, docs that know anything about supplements will tell you to increase...
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I agree, gluten free does not mean good for you. If you look at the labels of "gluten free" things like bread, pasta, etc., most are full of starches and gums and all kinds of refined things that we have been told for decades to not eat. I just try to eat real food, aka whole food, meat and veggies. I started a garden a few years ago to grow veggies...
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Water filters and gluten
Beverage replied to Tonya Kane's topic in Gluten-Free Foods, Products, Shopping & Medications
I'd ask that person more specifics, brand, etc. and call the company that makes them.
