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Beverage

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Beverage

  1. Beverage
    The doc that diagnosed me emphasized that the ears, eyes, nose, and mouth all drain to the same place. He said, besides obviously not eating foods containing gluten, to eliminate flours from my world immediately. If gluten flour is used, it gets into the air, and would be breathed in through the nose, which drains down to the stomach. Also, if it...
  2. Beverage
    I didn't have the typical intestinal symptoms before I was diagnosed, but had severe allergies, asthma, and failing kidneys. I often felt that horrible body achey felling like when coming down with a super bad flu. Now if I get glutened, I feel like I've been hit by a truck.
  3. Beverage
    I went through issues with oats when first diagnosed. I thought I couldn't eat any oats at all, even certified gluten-free. Then I learned about purity protocol oats. The list here has gotten smaller through the years, so I check it every time I order. I had been ordering one brand on the list that was later found to contain lower levels of gluten. I...
  4. Beverage
    Also, Vera Salt and Ava Jane's taste SO MUCH BETTER. Not sharp, and i need to use a lot less.
  5. Beverage
    I've recently researched a lot about salt lately. Celtics sea salts have minerals, which have been tested to include aluminum, cadmium, iron, lead, and microplastics. I used to use Redmond salt, but it tests as having aluminum, iron, and lead. I finally settled on 2 clean salts: Vera Salt, which you can only order from their web site. Also Ava Jane's which...
  6. Beverage
    I had horrible reaction to lisinopril, a severe cough that kept me up all night. The cough is apparently common. I did better with irbesartan, no cough, and it controlled my BP better too.
  7. Beverage
    My doc has me taking Boron supplements for osteopenia
  8. Beverage
    Sorry if I was unclear, I was not talking about Disinfection lamps at all, the D in D lamp stands for vitamin D, not Disinfectant. These are vitamin D lamps that stimulate your own body to make vitamin D.
  9. Beverage
    Morton & Bassett spices are labeled gluten free. I've been using them for years, no problems. I order direct from them as the selection at my grocery is very limited. They have a newsletter with regular discounts and specials: https://mortonbassett.com/ Spicely another good gluten free brand, CERTIFIED gluten-free, but not widely available where...
  10. Beverage
    I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting...
  11. Beverage
    Tums is an antacid. Calcium (also vitamin D) need it acidic for absorption, so you're not really getting any calcium benefit. Try DGL, it coats rather than counteracts acid. You need acid anyway to digest and get those vitamins. It's usually not too much acid that causes heartburn, it's not enough acid which causes food to rot and ferment in the stomach...
  12. Beverage
    I'd like to suggest nuts.com. They have a gluten-free section. I've never had an issue and their nuts are super fresh tasting. I eat them every day as afternoon snack. They label the packages as gluten-free, and more and more as Certified gluten-free. Here's their statement on gluten free: Gluten-Free The FDA is the only regulatory agency...
  13. Beverage
    My D was always low. It got better with gluten free diet, but was always below range or barely in range. I tried increasing D vitamins, found that K2 helps absorption of D. It improved a bit, yet remained on low end of ok range. After covid and bad flu years, i really wanted to get my D way up. We live in the Pacific Northwest, do lots outside 3/4 of...
  14. Beverage
    I got an official diagnosis from a naturopathic doctor, based on: 1. Very high blood antibodies 2.dna test and 3. Response to gluten free diet. I'm in the United States and have had absolutely no push back ever. My step granddaughter received an official diagnosis from an MD based on high antibodies blood test only. She's also in the U.S. and was told...
  15. Beverage
    Sounds like you're very careful with food. Any possible airborne or non-eating exposures? One time I got really sick from feeding my neighbor's chickens, the feed would get kicked up and I'd inhale the dust, read the ingredients, yup gluten. Another time we were doing some home remodeling, removed some old plaster, probably gluten in that. Anything...
  16. Beverage
    Oh gosh. I remember being shocked when my new doc said he thought I had Celiacs (went in bcuz kidneys were failing, no intestinal issues), but relieved at first to find an explanation for my issues. Then as I hit the library and the internet and read up on Celiacs, I got sooooo depressed and overwhelmed. Funny you say "is it an italian thing?" ... I'm not...
  17. Beverage
    As Scott suggests, look into dermatitis herpetiformis. Also the rash there could be from SIBO small intestinal bacterial overgrowth or candida. If your regular doc won't investigate those possibilities, consider going to a naturopathic doc or integrative medicine doc.
  18. Beverage
    The forms of vitamins really mattered for me, maybe not for everyone but very much for me. Learned so much here. This b12, recommended by @Ennis-TX has really helped me since diagnose. I can tell when i run out that i don't feel as good. LIQUIDHEALTH Vitamin B12 Methylcobalamin Liquid Drops with Sublingual Hydroxocobalamin - Boost Energy, Support...
  19. Beverage
    I also did not have the so-called typical Celiac symptoms, my main complaint was always getting sick, asthma, loss of sense of smell, and kidneys were failing. My GFR was in 40's - 50's and docs saying "Kidneys don't get better, we can only slow the decline" also "We don't do anything for kidneys until you are ready for dialysis." I was blown away, so decided...
  20. Beverage
    I've been using eos lip balms. I usually get it at costco. Eos has little round balms, but also stick ones like chap stick. Costco has both. They are labeled gluten free when you buy individual balms, but the combo package from costco isn't always labeled gluten-free. The company web site says they are gluten-free. I'm pretty sensitive, I use the...
  21. Beverage
    Last time i checked, Burts Bees does not label anything gluten free. They had 1 lip balm that contained gluten, and their site said their products can be made on shared equipment.
  22. Beverage
    Some docs in the US are diagnosing without the endoscopy. My step granddaughter (age 19) and I were both diagnosed by different docs based on blood test, DNA test, and response to gluten free diet. If you haven't already had the Celiacs blood tests done, you would have to eat gluten again for many weeks prior. I do have a letter from my doc saying i...
  23. Beverage
    I don't get typical intestinal symptoms when glutened. I feel fine for weeks trying something new, then bam I feel like I've been hit by a truck, joint and bone aches, can't think straight, no energy, etc. I tried gluten free Oreos and it took eating a few a day over at least a month until the bag was almost gone, then wham.
  24. Beverage
    I started going gray at 23, a very white streak that looked cool at first but quickly expanded. I did not have typical intestinal symptoms, lots of extreme allergies and got a lot of colds. I wasn't diagnosed with Celiacs until age 59. I realized the connection immediately. Now I'm 68 and normal greying for my age.
  25. Beverage
    I was 59 when diagnosed with Celiacs. I had not had the typical intestinal symptoms, mostly the pain, brain fox, etc. When I started gluten free, OMG, I couldn't get enough food and I dropped a ton of water weight / inflammation in the first few weeks. I was like a teenager, couldn't get enough and didn't gain back any weight, was actually too thin (bcuz...
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