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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Beverage
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I have severe asthma and I react really badly to steroids, so far, the albuterol inhaler is my only option. I have been prescribed chloroquinine as a preventative.
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Gluten in Spices
Beverage replied to Must be gluten free's topic in Gluten-Free Foods, Products, Shopping & Medications
Spicely brand https://www.spicely.com/ is certified gluten free. I have used theirs and it's good. This brand is not everywhere, but you can order online. They even have vanilla extract made with sugarcane alcohol, not grain alcohol. I also order from http://mortonbassett.com/. These are marked Gluten Free now (they didn't used to be), but they are... -
I don't have any issues with the Procapslabs.com nutrients. I take high doses now of their D3. My D was also low and refused to go up, I was eating eggs and all the other sources, but no help. I added their K2 (K helps D to be absorbed) and a teaspoon of apple cider vinegar just before the meal that I am takeing the D3 (you need stomach acid to absorb...
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Celiac and Sinus/ear problems?
Beverage replied to LJR1989's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I could not tolerate the steroid sprays as after awhile they made my blood pressure super high. Be careful, they are steroids and you really don't want to be on those long term. I had some acid reflux before I knew I had Celiac's and most of it went away after quitting gluten, but I still have symptoms when I lie down, so working on that with a naturopath... -
Celiac and Sinus/ear problems?
Beverage replied to LJR1989's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, to quote an ENT doc I saw before I was diagnosed with Celiac's..."it's a train wreck in there." I ended up getting allergy shots for years. The pin prick test showed I was allergic to everything except the negative saline control one. I was diagnosed with Celiac's in July and my next re-test for the allergies was in January. By January, my allergy... -
For me it does. When I get glutened, the best way to describe it is how you feel when you know you are just getting a really bad flu. I don't get the bad intestinal symptoms others describe, but I do feel a fluttery weird feeling in there. Aches and weakness are the majority of my symptoms. For me it is bad a day or 2, then the worst goes away gradually...
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Testing dilemma
Beverage replied to PaulUK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, you can get a medical diagnosis without the biopsy. I did, and I got an official letter from that doctor with that diagnosis in case I ever need it (but I have not yet). It takes 3 things: 1. positive on the blood tests 2. positive on DNA test 3. response to the gluten free diet HOWEVER, since you have a doctor that told you... -
D3 can help, but absorbtion can be difficult, so take it with K2 MK-7 to help the absorbtion (just 1 K2 a day). That combo really helps me. I also suggest working with a good naturopath or holistic type doctor (functional medicine doc). They have a lot more info than most traditional doctors on the forms of different vitamins that actually work so you...
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If it was just male pattern, I do not believe you would see hair loss in other locations. Get screened for Celiac Disease if you have not already done so. Have you asked your doctors if you have alopecia? I have read that people with one auto-immune disease, will on average develop 2 - 3 auto-immune diseases. So it could be alopecia or a vitamin deficiency...
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Hypoglycemia symtoms
Beverage replied to Brightstar101's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Work with a good naturopath, functional medicine doctor, or doctor very knowledgeable about nutrients. I had some blood sugar issues at first. Berberine and Cinnamon are excellent to help even out blood sugar and avoid going into diabetes or some other disease. But work with someone knowledgeable that can make sure you don't have something else going on... -
Feeling Worse
Beverage replied to elf41980's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No, I did have some symptoms of that, but no official diagnosis. I also had restless legs, and when I get glutened, that's usually my first indication. -
Feeling Worse
Beverage replied to elf41980's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Absolutely you can feel worse...at first. As soon as I gave up gluten, I felt like I had the worst flu of my life, like I was hit by a truck that backed up over me several times. Bones ached, I felt weak, poisoned, I could barely stand up, I felt like I was 100 years old. Before going gluten-free, I did not have the so-called typical intestinal symptoms... -
The What's For Dinner Tonight Chat
Beverage replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
I'm on my way over! Sounds wonderful. I was going to inject my turkey breast too, but realized I'd given my injector away years ago as I didn't know if I could clean it well enough to be safe, and then I never got another one. If you want to, can you share your recipe for the marinade you inject? I'm going to run out and see if I can get a cheap injector... -
I did not have any intestinal symptoms before I was diagnosed with Celiac's, but I did have that cough, acid reflux, sometimes food would get stuck going down, and severe asthma. The acid reflux got a ton better when I went gluten free, but the asthma and cough persisted. I would cough for hours when laying down and trying to sleep. My traditional...
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It does take time to be completely healed, but you will get more and more healing as you continue on your path. I was diagnosed in the summer of 2015 at age 58. At that point, my kidneys were failing, I could hardly walk around the house, and I felt I was slowly dying (after decades of going to doctors, a natuopath diagnosed me in 15 minutes, thank God...
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Does Fluttering or Twitching In Lower Abdomen Mean Celiac Disease?
Beverage commented on Jefferson Adams's article in Additional Concerns
A fluttering effervescent feeling in the abdomen was the only intestinal symptom I had. -
Lack of noticeable symptoms does not mean that an autoimmune reaction had not been triggered. Interpreting the level of reaction based on your symptoms does not necessarily correlate to having a reaction or not. I did not have the typical intestinal symptoms at all. It is hard for me to know when I've been glutened. It took a month of eating something...
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The What's For Dinner Tonight Chat
Beverage replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Kareng, thank you very much! I miss my full blown all home made sauce and noodles and everything. I tried with gluten-free noodles, and it was just mush. I will try it with these noodles. This looks like something we would love and so easy! -
Risk of Not Having EGD Endoscopy
Beverage replied to VLH's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I got an official written diagnosis WITHOUT the endoscopy. It's getting more accepted by celiac knowledgeable physicians (mine was an MD that is also a naturopath) if you meet these 3 points: 1. positive antibodies in blood test 2. positive DNA test 3. response to the gluten free diet -
The What's For Dinner Tonight Chat
Beverage replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Kareng...can you share this recipe? I miss my famous lasagna. -
Official biopsy results in
Beverage replied to Keight's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm so glad you found out. I was 58 when I found out, now 63. Looking back, I probably had it since I was a teenager or at least young 20's. So many other problems that are taking me years to overcome, and some I never will. But I still consider the day the naturopath told me as the day that man saved my life. -
I wouldn't even walk in that place, the air is going to be filled with wheat flour.
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I also did not have good luck with traditional doctors in diagnosing Celiac's and in any follow up. I finally found a great naturopath up here near Seattle. One big lesson I learned from mine is that not all forms of vitamins absorb the same and give you results. Also certain combinations of vitamins work better, as they help each other absorb. Classic...
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Celic's gain weight because they subsitute gluten free processed foods made with refined white flours from rice and other starches .... uhhhh, yea, not good, they're just as bad or even worse than refined wheat flour. Eat whole foods. Meat, vegetables, some fruit. Snack on cut up veggies, nuts. No refined processed stuff. I found tons of great ideas...