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Beverage

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Beverage

  1. Magda, I am so sorry to hear you are having so much trouble sticking with being gluten free. You might investigate why you are either in denial or if it's a rebellion thing. Just go hang around someone with dementia or alzheimer's disease... yea, that was my Mom's fate because she was not diagnosed, but we found classic symptoms all over her medical...
  2. It's harder than many thing to keep gluten out of your digestive system. It's not only what you put in your mouth to eat, it's also what you breathe or touch and then possibly touch your mouth. Anything you put on your body...shampoos, conditioner, cleansers, body lotion, they can contain obvious gluten ingredients like wheat germ oil, but the tocopherols...
  3. I miss falafel. Made this recipe using gluten free dried garbanzas from Nuts.com, substituted gluten-free flour (made a double batch and half cooked the extra and froze them so I can eat just a few anytime, just heating in oven): https://www.americastestkitchen.com/videos/4088-falafel?extcode=MCSAD10L0&ref=new_search_experience_2 And...
  4. I finally got my sister to get tested, it took a few years to get her to ask for it when she goes in for her annual blood tests. She has diverticulitis, hiatal hernia, food gets stuck all the time (been to emergency several times for it), unknown causes of diarrhea (just something she ate but doesn't know what, "something spicy" "certain spices" "other people...
  5. I am another one that does not get intestinal symptoms when getting glutened. I get joint pains, sometimes headache, weak feeling in legs and arms, depressed, crying, muddy thinking, sometimes it makes my asthma trigger. I tried purity protocol oats early on, and had to eat it for a month before I got any intestinal symptoms. So I'm also one that reacts...
  6. Correct. With auto immune disease, the response is often stronger as the immune system recovers and gets stronger. So eating gluten and having less of a reaction is a sign that your immune system is WEAKER, not that things are better. I don't think that's what you want to do.
  7. I felt like I got hit by a semi truck for about a month after I stopped eating gluten. Body aches, weak, shaking, muscle spasms, gut ache, and headache. I could hardly get out of the chair. For me, I lost 30 lbs. in that month (and I wasn't overweight), all water weight, and under all that, I was just a bag of bones. So I was starving to death. It all settled...
  8. I wouldn't do it unless I was going to the electric chair, and maybe not even then. The thought of it churns my stomach and makes the hair stand up on my arms. I'm not sure I could even swallow it. Yuck. Poison. I have accidentally eaten things I thought were gluten free and absolutely no response. That doesn't mean there was not an auto immune reaction...
  9. I find more and more gluten free items at Costco every time I go. However the last time, I was in a rush near the end of the big shopping trip, and quickly grabbed a PALEO BARS thing that looked great for something to have in my purse when I'm out and around. The label said grain free, but I didn't see the fine print that it was processed on equipment that...
  10. My friend used to have severe migranes and was greatly helped by magnesium supplements. CALM powder by Natural Vitality is the one her doc recommended and it is gluten-free.
  11. Those drugs are bad nasty things to put in your body. I reacted with super high blood pressure and lots of body aches to those and all steroid based drugs. You just do not want to be on those drugs long term, they are so very bad for your organs, so if you can find a way to get off them and control your asthma another way, by getting to the root cause, that...
  12. I would never eat (or even walk into) at a place with gluten flour flying around. It's just humanly impossible to not have contamination unless it's 100% dedicated gluten free.
  13. Regardless, you need stomach acid to digest your food so it doesn't rot instead of digest, which leads to worsening of acid reflux. You need stomach acid to break down your vitamins so that they can be absorbed in the intestines. Long term use of things that reduce stomach acid can have obvious long term effects and not a good idea except in a very...
  14. It's not easy. I try to explain in ways they can relate to, like you know I can't just go down the flour aisle at the grocery store, because I would breathe in flour and that goes down the same way as eating it. I could not help with remodeling the upstairs bathroom because of the gluten from the wall board and plastering was in the air... I explain that...
  15. It's really better to add supplements one at a time, giving each a little time to adjust and if there are any side effects that aren't working for you. I know from experience, had to track down 1 little thing that was causing my BP to go up, and it took awhile to eliminate everything, wait a week, add back 1 by 1, waiting a week in between. Of course it ended...
  16. Gosh, I'm so sorry you are going through this with this doctor. This does not sound even close to proper diagnosis methods for Celiac's. Please just go to a different doctor, call the office and ask to make sure they are more informed about proper Celiac's diagnosis.
  17. For about a month, I felt like I'd been hit by a truck, a really really big truck. Aches like the worst flu of my life, but no coughing/sneezing. Just awful. Drink lots and lots of water, that's the only thing that seemed to help me, and just laid low for awhile.
  18. Based on when I had weird symptoms in my first year at college at age 17, I could have had Celiac's since then. I was not diagnosed until age 58. And I do have some ongoing issues that one by one we are figuring out they are mostly related to vitamin deficiencies. Although I am taking several thousand IU of D3 supplements, my D was still on the low end...
  19. You should really read the newbie section in here. Contamination of cooking devices like bread makers is a real problem. Also if you have non-stick cooking pans or any cast iron (unless enamel coated like Le Creuset), they should be donated to somebody else, as they hold onto glutens of the past and are not safe for you. I donated my panini maker and waffle...
  20. BEFORE I went gluten free, I used to get food stuck all the time. It wouldn't go up, it wouldn't go down. That quickly went away after going gluten-free. After a few years of being gluten-free I started getting hoarse throat and severe asthma. Went to specialists, nothing worked for the asthma except predisone / steroids and all those made my blood...
  21. I wasn't going to mention the oats, I figured the dietitian would inform you. My naturopathic doc who diagnosed me with Celiac's told me not to eat it, that we could try it in 3 months or so after some healing, but I was stubborn and insisted. I even got the purity protocol oats that are grown and transported and processed in super magical conditions to...
  22. Good luck with your tests. You will do great. One thing you can start on without changing your diet yet is to think of "normal food" as you call it, as whole food, real food, meat veggies and fruit. That's what our bodies were built for. Processed foods and grains came about much later. Get in tough with your caveman side. ? Stay in touch.
  23. I'm a big fan of the Bare Minerals powder type mineral foundations you buff on. Afterglow Cosmetics is a gluten free brand. I don't have scars or discoloration but my sister does, and she loves it and it doesn't feel heavy like liquid foundation.
  24. Also read about the connection between TOO LITTLE stomach acid and GERD / acid reflux. Good articles out there by Dr Jonathan Wright a leading naturopathic doctor. This was my problem, the fumes from not having enough acid and food rots instead of digests, irritates the sphincter which allows sulphur fumes to work way up esophagus irritating throat sinuses...
  25. Thank you. All very good points. That's me, no intestinal symptoms but after a few weeks of unknowingly consuming gluten, I finally feel like I've been hit by a truck. We're all different.
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