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Beverage

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Beverage

  1. If you get the DNA test, be sure all celiac genotypes are included in the test, not all of them include anything other than DQ2 and 8, but that's not all that can get you Celiac's Disease. I tested negative for DQ2 and 8, but positive on HLA-DQB1*02 which is a much lower chance of developing the disease, but I developed it anyway. I got my test done through...
  2. Hi. You need a separate lid, much more important than a separate pot.
  3. But seriously, it's very very difficult to keep your kitchen safe when gluten is going on. Besides all the other contamination issues, no gluten flour should be used in the air space that the Celiac would be in. Why not just get the InstaPot and only use it for gluten free cooking. Most things you would cook in it (I just made a whole chicken last...
  4. Food prepared in other people's gluten kitchens is NOT SAFE if you have Celiac's. Salads or veggies, any of that, can all be contaminated from their counter, their utensils, wooden spoons, non-stick cooking pans, their hands, any ingredients they used in make gluten containing food. If they taste what they have made and use the spoon again...I know...but...
  5. Eyes ears nose and mouth all lead to the gut. Breathing in airborne flour through the nose or mouth get that flour to the same place as eating it. This is NOT an allergic reaction if you have Celiac's disease. Allergies to gluten can be developed, but it's different response of the immune system than Celiac's which is an auto-immune (body attacks itself...
  6. ravenwoodglass is correct. I tested negative for the DQ2 & 8 genes, but positive on one of the others.. B1 or something like that. Make sure the complete genetic thing was done, not all doctors request them all and not all labs check them all.
  7. I'm a big fan of eggs, great protein for the brain and especially for young kids. Make a bunch of little egg cups using a muffin tin (one that has never seen gluten of course), and store them in the freezer that you can get out and microwave real quick. Spray cup with olive oil, a little gluten-free ham or turkey bacon or something like that, crack...
  8. Are you cooking or using gluten in your kitchen? I didn't feel better until we cut it out completely from the kitchen. I let my boyfriend have a gluten beer at the table, but nothing more. We tried marking condiment jars in the fridge but mistakes happened, too easy to dip into that mayo after touching gluten bread. He was trying to be super careful,...
  9. I love oatmeal too, but it reacts in my body the same as wheat rye or barley. I tried many brands of the certified and cleanest and all that, all the same. To me, not worth the risk, the protein is too similar to the other bad guys.
  10. Hi. I've never heard that high white blood counts are an indication of autoimmune diseases... is that true???
  11. Usually I drink green tea, but I drink coffee about once a week and have not had any issues. I don't know if any coffee brands might contain gluten for flavoring, but if you are using a coffee maker previously used, make sure it has only been used for plain coffee or with coffee you can make sure was gluten free. Also I have read that the glue on the lids...
  12. LilyR, the bottle works like the nedi pot, the saline water goes in one nostril and comes out the other. If your sinuses are plugged, it can drain down to your mouth (instead of out the other nostril). But you do this with your head bent over the sink with your mouth slightly open anyway, so anything that doesn't make the round trip comes out your mouth...
  13. I order from nuts.com all the time. They have a lot available in their gluten free section. The nuts are really really fresh, you won't realize how not fresh other nuts have been until you get these. I love them, I ask for them as a gift for Christmas and birthday. I order enough to get me free delivery and store the extra in the freezer. Delivery is...
  14. I can't take any steroid based things of any kind, including the nasal sprays, they all give me high blood pressure and mess with my beauty sleep. To get started on the nedi pot, you could first try the Neilmed Nasamist Saline Spray. https://www.amazon.com/Neilmed-Nasamist-Saline-Spray-Fluid/dp/B00I8NKNZ8/ref=sr_1_4_a_it?ie=UTF8&qid=15360147...
  15. Find that article that was in one of these emails a little while back. It was about getting glutened as little as once a month gets you a 40,000 times more chance of colon cancer. Is that what you are striving for?
  16. Hi. I'm a diagnosed celiac. I don't get symptoms unless I've eaten gluten for awhile. I had tried gluten free oats (which are not always gluten free enough or the protein is similar enough to wheat rye and barley to cause the same reaction in some) against my doctor's advice, and it took about a month. My doctor explained that no symptoms does not mean...
  17. I tried Bob's Red Mill gluten-free oats and had problems. I also tried the best certified gluten-free oats, and had problems with them too. I'm one that cannot eat oats, some celiac's cannot. The protein strand is very similar to the other bad ones, so the body just acts the same. I now follow my doctor's orders that he gave me before I thought I could...
  18. Caramel color can also be from gluten.
  19. My doctor said to stay away from oats. I ignored it, thinking I could eat the gluten free CERTIFIED kind, found the one with the best reputation, ha ha, I know so much. NOT. After being complete off all grains for a few months, I ate them and it took about a month, and got sooooo sick. No to oats for me.
  20. I agree, the cleaners would not contain gluten, however, what you are cleaning might. As my doctor told me, anything that goes into the eyes, ears, nose, or mouth all drain to the same place. If you inhale any dust created from most building or remodeling products that might contain glue, then you would in essence be eating gluten. The particles remain...
  21. I dropped 30 lbs after going gluten free in a MONTH. It seemed to be a lot of water flushing out of my body. Underneath I was underweight and looked emaciated. I've since built back 10 lbs of good weight in muscle and probably bone, and much healthier.
  22. Oat protein is very close to wheat, rye, and barley proteins. My body reacts to oats the same as the others, yes even gluten free oats, and even certified gluten free oats of the best most strictest brands. For some, it's close enough to the others to cause the same auto-immune response. Try cutting out the oats for awhile and see what happens.
  23. Great you know what the situation is, and I'm so happy you are all going gluten free. It really is the safest and best for the ones that have Celiacs. You're an awesome mom!!!
  24. Good for you! You'll be a great example to your wonderful son of facing an adversity and dealing with it in a positive way.
  25. The most effective thing that keeps me on the right track is, especially after reading a recent article here about how many more times a Celiac has of getting colon cancer if they get glutened as LITTLE AS ONCE A MONTH (I can't remember if it was 4,000 or 40,000 times more, but it doen't matter, not good if it was even 4 times) , I just one glance at my kitties...
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